1. < Epilepsy & Seizures

Experiences with Clobazan (SYMPAZAN)?

Posted by pamelastewart5 @pamelastewart5, Nov 13, 2019

Has anyone tried SYMPAZAN? If you have, did it help? What about side=effects? Thanks for any info.

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Leonard | @jakedduck1 | Jan 25, 2020

@pamelastewart5
Hello,
I’m very sorry to learn the Epidiolex is not as helpful for Caleb as hoped. Has the neurologist mentioned why this isn’t as helpful as the medical marijuana? Have you noticed that his seizures are any less severe than before starting the Epidiolex?
I believe he’s been on it nearly 8 months. What is his dose now?
Jake

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1 reply
pamelastewart5 | @pamelastewart5 | Jan 30, 2020
In reply to @jakedduck1 "@pamelastewart5 Hello, I’m very sorry to learn the Epidiolex is not as helpful for Caleb as..." + (show)
@jakedduck1

@pamelastewart5
Hello,
I’m very sorry to learn the Epidiolex is not as helpful for Caleb as hoped. Has the neurologist mentioned why this isn’t as helpful as the medical marijuana? Have you noticed that his seizures are any less severe than before starting the Epidiolex?
I believe he’s been on it nearly 8 months. What is his dose now?
Jake

Jump to this post

Hi, Jake and Everyone,
Caleb's current dose of Epidiolex is 4 ml. twice a day. He dozes off at times during the day. He seems pretty cheerful when he is awake. Last few days, no seizures.

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Leonard | @jakedduck1 | Jan 30, 2020

@pamelastewart5
Has his drowsiness increased with the dosage increase?
Jake

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pamelastewart5 | @pamelastewart5 | Jan 31, 2020

His drowsiness seems about the same.

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santhosh1000 | @santhosh1000 | Feb 4, 2020
In reply to @lisalucier "Hello, @pamelastewart5 - Here is some Mayo Clinic information about the medication clobazam (Sympazan) https://www.mayoclinic.org/drugs-supplements/clobazam-oral-route/description/drg-20075333. Please..." + (show)
@lisalucier

Hello, @pamelastewart5 - Here is some Mayo Clinic information about the medication clobazam (Sympazan) https://www.mayoclinic.org/drugs-supplements/clobazam-oral-route/description/drg-20075333. Please note there is a section especially about side effects, which you asked about.

Hoping that @jakedduck1 @hopeful33250 @jenniferhunter @crstyday40 @patrassi may have some input on this medication.

Wondering if your son's doctor is looking at clobazam (Sympazan) for your son's treatment?

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Clobazam is helpfull for anti-sezures.im using that its very good for sleeping too

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1 reply
Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 5, 2020
In reply to @santhosh1000 "Clobazam is helpfull for anti-sezures.im using that its very good for sleeping too" + (show)
@santhosh1000

Clobazam is helpfull for anti-sezures.im using that its very good for sleeping too

Jump to this post

Hi, @santhosh1000 - thanks for the input on the clobazam. Welcome to Mayo Clinic Connect.

Do you have a diagnosis of Lennox-Gastaut syndrome, or are you taking it for any other reason?

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