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Dizzy still after my liver transplant

Transplants | Last Active: Aug 15, 2023 | Replies (65)

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@rowdyramsey

Can someone help me find out how I can ask a question? I only see how to reply to messages. Can’t find a link that says.”ask your question here” please,anyone? I suffered 2-3 yrs of daily hepatic encephalopathy.my ammonia levels ran from 175-210 daily. I believe I suffer permanent brain damage from this. It’s getting worse and worse. Transplant date was July,2015. Can someone tell me how I can ask others this question?

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Replies to "Can someone help me find out how I can ask a question? I only see how..."

@rowdyramsey -You did it right, already!
For additional help - Here is a link to "Get Started on Connect". You will find a list of easy to read How To's.
https://connect.mayoclinic.org/get-started-on-connect/

I think you might consider starting a new discussion in the transplant group or pvisit the Liver transplant support group ere you will meet other liver transplant patients.whhttps://connect.mayoclinic.org/discussion/liver-support-group/
Again - I will help you if let me know.

Here are some discussions where members have discussed Hepatic Encephalopathy (HE) To make a reply/ask a question, you can click the reply box at the beginning of the discussion, or you will see a reply box at the bottom of the page . You just start texting in that box. If you want to address a particular memner, then you will use athei @name like I used at the beginning of this reply to you. Did you get a notification?
You are welcome to participate anywhere, or to begin a new discussion. Let me know if you need more help.
Groups > Digestive Health > Elevated ammonia levels
https://connect.mayoclinic.org/discussion/elevated-ammonia-levels/

Groups > Digestive Health > Hepatic encephalopathy
https://connect.mayoclinic.org/discussion/hepatic-encephalopathy/

Groups> Transplants > Liver transplant support group
https://connect.mayoclinic.org/discussion/liver-support-group/

@rowdyramsey I see that @rosemarya has already answered your question, but I just wanted to say, that I too had HE episodes. I was transplanted in September 2016. For a very short time after that, I still didn't feel totally back to being myself but I did quickly. My HE episodes were much less frequent than yours. After my hepatologist prescribed xifaxan I had almost a year of no episodes.

What is happening that makes you feel you have brain damage? If it's getting worse I doubt it would be from HE episodes prior to transplant.
JK

@rowdyramsey, Here is how to start a new discussion. This is a good question and I encourage you to begin a new discussion about "Hephepatic encephalopathy after liver transplant.
All you need is a Title, and an opening question. If you need more assistance let me know.
Here are the instructions:
https://connect.mayoclinic.org/get-started-on-connect/#start-new-discussion
Rosemary

@rowdyramsey I suffered from HE episodes prior to transplant. My first (and worst) was when I was diagnosed with liver disease. I fell into a coma and life was touch and go for about 3 weeks. For 4-5 months i lost my memory and couldn't differentiate what day it was even month what it was. I forgot my address, telephone number and all other important information. Once wait listed my HE episodes lessened but I was taking lactulose and rifaxamin to counter act them. This eventually passed but I have dizzy spells now of and on. I received my liver Nov 28th 2018. I am just now able to remember things but the past 3 years are a complete blur. Be easy on yourself. Remember everyone heals differently and some people take longer than others.