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Pernicious Anemia and B12 Ranges

Posted by bumble81 @bumble81, Sep 18, 2019

I was diagnosed in 2015. Do any of you with PA still have symptoms related to your PA even when your B12 levels are in normal ranges? I was under the impression that getting B12 shots would eliminate any issues caused by PA.

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loisnovell | @loisnovell | Jan 31, 2021
In reply to @hopeful33250 "@loisnovell I'm glad to hear that you have an appointment coming up for a physical. I..." + (show)
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@loisnovell

I'm glad to hear that you have an appointment coming up for a physical. I hope you do get some answers.
If you read the article that I posted, did you learn anything new or anything that seemed to apply to your current health situation?

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Yes I found it very informative and very glad that you sent it. Thank you again..

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roefote64 | @roefote64 | Feb 27, 2021

Hello, my first auto immune disease was Hashimoto’s. Actually it was asthma and allergies as a baby. I now have gastritis, Gerd, type one diabetes, lichen planus, vitiligo, psoriasis and pernicious anemia. I am feeling like the poster child for auto immune diseases. I’m in my mid-50s. I would really like to know what the optimum levels of B12 should be for someone with pernicious anemia? I take B12 shots randomly but would really like to know how to manage this effectively. I have talk to my GP about it but it doesn’t seem like she’s very knowledgeable is there another specialist I could see?

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 28, 2021
In reply to @roefote64 "Hello, my first auto immune disease was Hashimoto’s. Actually it was asthma and allergies as a..." + (show)
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Hello, my first auto immune disease was Hashimoto’s. Actually it was asthma and allergies as a baby. I now have gastritis, Gerd, type one diabetes, lichen planus, vitiligo, psoriasis and pernicious anemia. I am feeling like the poster child for auto immune diseases. I’m in my mid-50s. I would really like to know what the optimum levels of B12 should be for someone with pernicious anemia? I take B12 shots randomly but would really like to know how to manage this effectively. I have talk to my GP about it but it doesn’t seem like she’s very knowledgeable is there another specialist I could see?

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Hello @roefote64 - Welcome to Mayo Clinic Connect. According to the National Heart, Lung and Blood Institute along with your primary care doctor the following specialists may be involved - a neurologist (nervous system specialist), a cardiologist (heart specialist), a hematologist (blood disease specialist), and a gastroenterologist (digestive tract specialist).

- NIH - Pernicious Anemia: https://www.nhlbi.nih.gov/health-topics/pernicious-anemia

Have you asked your GP if she can give you a referral to a specialist?

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peach414144 | @peach414144 | Apr 4 5:26pm
In reply to @peach414144 "what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though..." + (show)
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what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though I see an oncologist. Maybe once a year a b12 shot, once a year a drip of ferretin. Nothing helps the fatigue. I seem to have so very many medical problems. I guess because of this. It affects the entire body. (Just feeling sorry for myself again). But the Psoriatic and rheumatoid arthtitis are swelling the legs and the chronic venus insufficiency is swelling at the same time. The doctors are confused. I would be to if I were one of them. How to treat when this is going on? About almost two years now. It would be easy to give up. But I keep fighting. The pain is unbelievable. Worry for the cat a d dog keeps me going. It is just as if they are my children and I live for their welfare. Opiods are worthless for the pain. 4 advils help somewhat. Ahhhh, the will to live is so terribly strong. Sorry to disturb anyone but writing this seems to help the mind somewhat. Of course I think of wanting to die to rid the pain. I think it can be a natural thing. The doctors laugh if i bring up the pain pump. Being 82 and having more painful health problems are not enough for the pump I am told. So here we are. I do thank all of you for your time and understanding. One last ting: One of my conditions is I am legally blinf and cotinuing to lose the rest of my sight slowly. This would be the last straw. Again, I am not ready yet but who knows? Who could have the will power, the guts Not yet. to actually pull the trigger?

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@peach414144 WOW'''' I have the same medical problems with all the same symptoms, so I know and suffer the same as you. You are going through hell. But please hang in there as somewhere along the line it will clear up again (but the sneaky pain will sneak in again) . So,,, get back on the roller coaster and hold on tight Somewhere along the line life will come back on again. Save a puppy or a kittens life and god will bless you for doing this. And you will enjoy the blessing you have done for the world and yourself. GOD BLESS.

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