Welcome to Connect, @kdm1028 and @captainterry,
@captainterry, I do think that your experience with HCM makes you an “expert” in a manner of speaking:) Thank you for sharing your story.
@kdm1028, allow me to introduce you to @ronitb @rrowner2 @ajand @sheim @timdines @mbcube @vivian88 @ronaldpetrovich @margie11 @PatMattos @traceysmith, who might be able to answer your questions about screening.
Here are a few discussions where @melissax3 @bamknits @reenj62 @jshah @archer @conbrue have written about the possibility of AFib, rapid heart rhythm, dizziness related to HCM:
– https://connect.mayoclinic.org/discussion/afib-and-hcm/
– https://connect.mayoclinic.org/discussion/i-need-answers-1/
– https://connect.mayoclinic.org/discussion/dizzy-spells/
I’d also like to offer this information (from Mayo Clinic) with regard to diagnostic tests and clinical trials:
– https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/care-at-mayo-clinic/mac-20350208
– https://www.mayo.edu/research/clinical-trials/cls-20320508?_ga=2.130841679.119402583.1566397261-1699395448.1566397261
@kdm1028, from what I’ve researched, an in-office EKG is not the best test for diagnosing HCM; have you consulted with a cardiologist or ruled out other possibilities (AFib, tachycardia, etc.) for your symptoms?
I have contacted our HCM cardiology team in my area. They have ordered a new echo and Holter monitor for 48 hours. Then in two weeks I have an appt to go over results with the cardiologist.