What helps with post liver transplant fatigue?

@cmael, @contentandwell - I have been getting bone density scans since I was first diagnosed with liver disease. Knowing that liver disease does affect bones, my doctors wanted to establish a baseline for me. Since my transplant, part of my routine aftercare has been routine bone density scans (I think every 2 years) and they show some improvement from my serious decline at time of my severe stage of liver failure. I am at the osteoporosis stage, and I am encouraged at each annual post transplant check-up to keep on doing weight bearing exercises and to get enough calcium in my diet, which I supplement with Calcium Citrate/Vitamin D (approved by my transplant team). So far, I'm holding steady. I have my bone density scans done at Mayo when I am there as part of my check-up.

I am curiously looking toward what might be down the road (or trail since I like to hike) so I found this information to be helpful. I want to share it here. It covers a wide range information, even role of endocrinologist and diagnisis and treatment. (medication, exercise, diet).
https://www.mayoclinic.org/diseases-conditions/osteoporosis/symptoms-causes/syc-20351968
It also tells about other conditions that can increase the risk of osteoporosis. And questions for your doctor.

I don't see my team for another year. Let me know what you find out.

@cmael, Come back! I just added the link!

I’m wondering if anyone is on meds for bone density. My endocrinologist said that I could be a candidate for one of the drugs for osteoporosis because of the prednisone I’m taking and having osteopenia. It was ok’d by Mayo, but I’ve looked at the possible side effects and decided to wait til I see my endocrinologist next summer.

@des46893 I am 7 months post transplant and am almost always fatigued. I can't attribute it to any one reason. I am going with the flow resting and napping as needed. I'm assuming (because I don't know) that this will pass in time.

@gaylea1, I like your words, "going along with the flow and napping as needed". That has worked well for me, too. Over time, my need for daily naps has declined. For some reason, I seem to recall that at 9 months post transplant, I made a realization that I felt normal. I don't know why that sticks in my mind but it could be that 2009 was history and 2010 was going to be my 1st whole new year with my new organs. I transplanted in April 2009.
Anyway, enough of my chattering, How are you doing with the fatigue? Are you aware of any improvement?

@rosemary's...thank you so much for following up with me. My fatigue is calming down a bit. I do get tired after/while shopping or walking about after an hour or so. If I have a strenuous day i feel it the next day but take it easy. My "napping" has become infrequent now. I don't feel quite normal yet but I put that down to all the ERCPs and pancreatitis bouts (the last one being the beginning of June). My liver function is good though and I'm grateful for that if nothing else. Last year at this time I was dying and I'd had enough with the wait. Now I'm dying to live! I know normalcy is just around the corner 💖

@gaylea1, Do you know how much joy I get from reading your posts? I am happy read that you are finally feeling the good part of transplant and beginning to enjoy your new life!
Have you been able to return to some of the projects that you used to enjoy like diamond painting? Have you discovered any new interests?

@rosemary...I had so much support from you and the group and I know that's what got me through the whole process. They found some cancerous lumps on my arm (I am never in the sun) and the doctor took some biopsies to send off to be analyzed. I'm sure they'll be superficial and probably just cut them out. Boy...to have a stable immune system I always took for granted! I'm still diamond painting and have found a church nearby that I am now attending. We moved in May so I decided to go to a church closer to me. I've also been looking at a few book clubs and various community activities. Having my licence back is just amazing after 3 years without being able to drive. I can commiserate with so many people waiting for their surgery and experiencing a lot of symptoms I myself had. I am over the moon with my new lease on life and intend on living it to the fullest. Thanks to you and many others I can now say I'm on the other side.

@gaylea1 It really is so good to hear another post-transplant success story and that you are doing well now. As I posted in another discussion, I was three years post-transplant on Monday. What a wonderful feeling. Every day is a gift.
JK

@contentandwell thank you so much and congratulations on your 3rd anniversary! You are one of my key supporters and I'd really like to thank for putting up with all my complaints and offering some great solutions. I appreciate all you've done for me.