Post liver transplant fatigue

Posted by des46893 @des46893, Fri, Aug 16 5:35pm

I am 40 months post liver transplant. Prior to my transplant my only symptoms were muscle cramping and fatigue. Post surgery I no longer have issues with cramping but I am still dealing with fatigue. I googled for information and was surprised that this a common occurrence after the transplant. Some of the literature speculated that an exercise program might help. Any opinions or experiences to share would be appreciated.

@gaylea1

@rosemary's…thank you so much for following up with me. My fatigue is calming down a bit. I do get tired after/while shopping or walking about after an hour or so. If I have a strenuous day i feel it the next day but take it easy. My "napping" has become infrequent now. I don't feel quite normal yet but I put that down to all the ERCPs and pancreatitis bouts (the last one being the beginning of June). My liver function is good though and I'm grateful for that if nothing else. Last year at this time I was dying and I'd had enough with the wait. Now I'm dying to live! I know normalcy is just around the corner 💖

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@gaylea1, Do you know how much joy I get from reading your posts? I am happy read that you are finally feeling the good part of transplant and beginning to enjoy your new life!
Have you been able to return to some of the projects that you used to enjoy like diamond painting? Have you discovered any new interests?

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@rosemarya

@gaylea1, Do you know how much joy I get from reading your posts? I am happy read that you are finally feeling the good part of transplant and beginning to enjoy your new life!
Have you been able to return to some of the projects that you used to enjoy like diamond painting? Have you discovered any new interests?

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@rosemary…I had so much support from you and the group and I know that's what got me through the whole process. They found some cancerous lumps on my arm (I am never in the sun) and the doctor took some biopsies to send off to be analyzed. I'm sure they'll be superficial and probably just cut them out. Boy…to have a stable immune system I always took for granted! I'm still diamond painting and have found a church nearby that I am now attending. We moved in May so I decided to go to a church closer to me. I've also been looking at a few book clubs and various community activities. Having my licence back is just amazing after 3 years without being able to drive. I can commiserate with so many people waiting for their surgery and experiencing a lot of symptoms I myself had. I am over the moon with my new lease on life and intend on living it to the fullest. Thanks to you and many others I can now say I'm on the other side.

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@gaylea1

@rosemary…I had so much support from you and the group and I know that's what got me through the whole process. They found some cancerous lumps on my arm (I am never in the sun) and the doctor took some biopsies to send off to be analyzed. I'm sure they'll be superficial and probably just cut them out. Boy…to have a stable immune system I always took for granted! I'm still diamond painting and have found a church nearby that I am now attending. We moved in May so I decided to go to a church closer to me. I've also been looking at a few book clubs and various community activities. Having my licence back is just amazing after 3 years without being able to drive. I can commiserate with so many people waiting for their surgery and experiencing a lot of symptoms I myself had. I am over the moon with my new lease on life and intend on living it to the fullest. Thanks to you and many others I can now say I'm on the other side.

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@gaylea1 It really is so good to hear another post-transplant success story and that you are doing well now. As I posted in another discussion, I was three years post-transplant on Monday. What a wonderful feeling. Every day is a gift.
JK

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@contentandwell

@gaylea1 It really is so good to hear another post-transplant success story and that you are doing well now. As I posted in another discussion, I was three years post-transplant on Monday. What a wonderful feeling. Every day is a gift.
JK

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@contentandwell thank you so much and congratulations on your 3rd anniversary! You are one of my key supporters and I'd really like to thank for putting up with all my complaints and offering some great solutions. I appreciate all you've done for me.

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@gaylea1

@contentandwell thank you so much and congratulations on your 3rd anniversary! You are one of my key supporters and I'd really like to thank for putting up with all my complaints and offering some great solutions. I appreciate all you've done for me.

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@gaylea1 I think all of us who are post transplant, no matter the organ, feel a connection with each other. We are all so happy to be alive and to be living in a time when this is possible. I owe my life to the wonderful physicians and the wonderful care I had at Mass General Hospital. My surgery was 7.5 hours long and there were three transplant surgeons in there! I presume only my primary surgeon was there for the whole time.
My surgeon was great. I was admitted in mid-afternoon and he came in to introduce himself and tell us that the surgery would take place after midnight. My husband asked him what he was going to do now for some reason. He told him that he was going home to get some sleep! Good answer. 😊
JK

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@contentandwell

@gaylea1 I think all of us who are post transplant, no matter the organ, feel a connection with each other. We are all so happy to be alive and to be living in a time when this is possible. I owe my life to the wonderful physicians and the wonderful care I had at Mass General Hospital. My surgery was 7.5 hours long and there were three transplant surgeons in there! I presume only my primary surgeon was there for the whole time.
My surgeon was great. I was admitted in mid-afternoon and he came in to introduce himself and tell us that the surgery would take place after midnight. My husband asked him what he was going to do now for some reason. He told him that he was going home to get some sleep! Good answer. 😊
JK

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@contentandwell you are so right. I also had a great surgical team and mine lasted 8.5 hours. I was called at 12 noon and the surgery began at 5pm. I was wheeled out at about 1:30 am. I came to surrounded by my kids and mother. Best thing I have ever seen, smiling relieved faces.

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