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Periodic Limb Movement Disorder

Sleep Health | Last Active: Apr 30, 2023 | Replies (50)

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@johnbishop

Hello @bill54321, welcome to Connect. It must be difficult trying to deal with these symptoms and not find any answers. There is an older discussion on Connect where @daisy3, @ctandy1271 and @mhall2eat have discussed Myoclonus - https://connect.mayoclinic.org/discussion/myoclonus/. Hopefully the members may be able to share some suggestions with you if they are still on Connect. I did find some other information that may be helpful to you.

NIH - Myoclonus Fact Sheet: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Myoclonus-Fact-Sheet

Mayo Clinic - Myoclonus - Diagnosis & Treatment: https://www.mayoclinic.org/diseases-conditions/myoclonus/diagnosis-treatment/drc-20350462

NCBI - Treatment of Myoclonus (PDF) - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3899494/pdf/13311_2013_Article_216.pdf

Has your doctor provided any suggested treatments?

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Replies to "Hello @bill54321, welcome to Connect. It must be difficult trying to deal with these symptoms and..."

If I forgot, I wish to thank you for your input. I had not heard of Myoconus Syndrome until your referral. I have been operating under the illusion I had RL problem. I use Gapadentin and Roperole . They are parkinson and seizure medications. I see my primary care physcian
tomorrow. I need to check more on causes. 7 brothers and sisters and my daughter all died of cancer. I have modified.my diet to become a health nut. But at 90 yrs. old, I have outlived their averages. Still, a brain tumor, spinal lesion, and brain barrier problem are things I can be tested for. Thank you again. You were a big help.