← Return to Cryptogenic Organizing Pneumonia (COP): Any success in treating?

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@oakbourne

HI y'all. I don't know about this type of pulmonary disease. My disease was BOOP PNEUMONIA. For one thing, Boop is not contagious and the problem is INFLAMMATION! Your lungs on X-ray are white. It's deadly in many ways but mine was caught early or late. Either way I survived. I used Prednisone and it nearly killed me. The drug is our enemy! I'd rather die that take that stuff. I looked on-line and found a book on BOOP and ordered it. Written by a wonderful caring pulmonologist MD. You can use an antibiotic, it'll take longer but it's better and easier on the body than Prednisone. That stuff literally drove me mad. Doctors don't give their kids Prednisone, but give it to us like candy.Grrrr! I used my hospital in Savannah and we have horrible health care in this town. I have silent Celiac Disease and Microscopic Colitis. MC is an autoimmune condition and is INFLAMMATION. I see a trend here. INFLAMMATION is a big problem in our body. It was hell in my life and Prednisone was an awful experience I will never revisit.

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Replies to "HI y'all. I don't know about this type of pulmonary disease. My disease was BOOP PNEUMONIA...."

Hello! Thanks for the reply. BOOP is now the "new and exciting" COP...don't know why the name change. My visit at Mayo went well and I was very happy that they took me off of Prednisone and instead I will be on a low dose of Bactrim for the rest of my life. Dr.'s are reviewing lung biopsies and should hear something by next week. The wait continues and no known causes are known for now.

COP, I also feel that inflammation could be the root cause COP...…..I took have Microscopic Colitis...Correlation here? What to you to try to not have as much inflammation in your body. I'm trying to get off sugar which I know causes inflammation. Prednisone is a gift and then then the Devil. Probably saved my life though so I am thankful for it. Just so happy to be off Prednisone....instead I'll be on a low dose of Bactrim for the rest of my life. Hey I'll take it~