@allegro, Making the decision to care for your husband at home or care (nursing) home is a heart-wrenching decision. I'd like to bring a few other caregiver members into this conversation like @julesa @debbraw and @rmftucker. While their partners do not have ALS, they have had to make choices about care for their husbands and for themselves. I hope they'll add their experiences.

You may also be interested in this discussion
– Dealing with anxiety/guilt over spouse in LTC with Dementia https://connect.mayoclinic.org/discussion/dealing-with-anxiety-guilt-over-spouse-in-ltc-with-dementia/

Personally, I think part of your decision has to consider which setting allows you to be the best caregiver to him and to maintain your health and well-being. Naturally, you want to do what is right for him, but you also have to do what is right for you and for both of you in the time you have left together. There is no right answer. But the decision you make will be the one that is right for the information and situation you have in front of you now.

How are doing today?