← Return to Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

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allegro (@allegro)

Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

Caregivers | Last Active: Aug 15 8:24am | Replies (82)

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@colleenyoung

@allegro, Making the decision to care for your husband at home or care (nursing) home is a heart-wrenching decision. I'd like to bring a few other caregiver members into this conversation like @julesa @debbraw and @rmftucker. While their partners do not have ALS, they have had to make choices about care for their husbands and for themselves. I hope they'll add their experiences.

You may also be interested in this discussion
– Dealing with anxiety/guilt over spouse in LTC with Dementia https://connect.mayoclinic.org/discussion/dealing-with-anxiety-guilt-over-spouse-in-ltc-with-dementia/

Personally, I think part of your decision has to consider which setting allows you to be the best caregiver to him and to maintain your health and well-being. Naturally, you want to do what is right for him, but you also have to do what is right for you and for both of you in the time you have left together. There is no right answer. But the decision you make will be the one that is right for the information and situation you have in front of you now.

How are doing today?

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Replies to "@allegro, Making the decision to care for your husband at home or care (nursing) home is..."

I HAVE GOOD DAYS AND BAD DAYS….SOMETIMES I THINK I CAN'T DO THIS ANYMORE, AND THEN I REALIZE HOW MUCH HARDER IT IS FOR MY HUSBAND AND I SHOULDN'T FEEL THIS WAY……I WAKE UP EACH DAY WITH AN ANXIETY ATTACK BUT IT FINALLY PASSES WHEN I HAVE TO START THE CARETAKING…..HE DOES NOT WANT TO GO TO A FACILITY AND I THINK HE WOULD RESENT ME IF I FELT HE SHOULD….ALS STANDS FOR "A LIFE STOLEN" IN MY ESTIMATION……..