My dad has a mass on bladder and kidney not functioning

Yes he was at the doctor when he had the drain adjusted- he is constantly checking anything before he does it with the team- he has his urine bag drain and a drain for extra fluids building up - not being absorbed but as of this am he is back in hospital with some sort of infection fever and is in pain with backed up fluids basically coming out “other bodily holes” is it possible that drain from having the bladder removal surgery is seriously going to be an ongoing thing? Besides his ostomy?
i cant find much online anywhere about other people having this surgery and having this issue to deal with has anyone heard of this?
fluids building

I am so sorry to hear about your dads ongoing problems @formydad. It must be So discouraging for everyone. It is not unusual to have complications after surgery. Have the doctors given you any ideas about why this has happened and what you can expect?

@formydad, I had 3 drain tubes in my abdomen after my liver/kidney transplant surgery to drain the ascites (fluid build up due to my endstage liver disease) Each one was removed when the drainage ended. They had all been removed by the time I was released from out patient care.
I imagine that your dear dad is worn out with worry and all of unanticipated additional ER and doctor visits. I like what @gingerw and @becsbuddy have said about talking to the doctor.

Yes hes trying desperately to get answers. When he told them he had fluid coming out his”other end” they looked at him confused although thats exactly what was happening.and liquid looked exactly like what was in drainbag.
another doctor told him it was strange for fluid to come out of the actual cut drain hole after the doctor had plugged it to see if his body would absorb last week- it did not come out the drain because it was pugged started leaking from around the incision.. hes basically just laying inhospital tonight they did another culture today- they are doing a procedure tomorrow— not quite sure what- either putting in a new drain or. Something.. im frustrated and yeah i think he just isnt getting much out of docs on whats really the issue.. if its normal ok if its not ok so what do we do how do we resolve going back n forth for days at a time each time takes a toll. Im hoping more answers cone tomorrow.After original op he had a drain in hosp. They sent him home w/ out it
Then he filled with fluid was in pain went back up they pur a drain in- hes been watching Amts that drain puts out then went back to doc thats when he plugged to see if bod would absorb shortly after apt they left in store he had it draining out of the incision - thats when he called back and asked what to do
when he when he went to er this time it was more pain from fluid not draining- fever infection- guess we’ll see how it goes tomorrow . Just need so e answers thats all. I cant find much anywhere on this issue..

@formydad, It sounds to me like you are hearing this via your dad. Is that correct? Is it possible for you to be there with him so you can hear the words and of the doctor?

Have your dad record his visit with his doctor if you cannot be there. Do you have patient portal access to your dad’s doctor? My son a d daughter-in-law have access to my doctors.
Sometimes there is just so much information and it can be overwhelming. My kids will go over the doctors’s notes and then we discuss it. There are times when I missed something the doctor said.
Ask your dad to add you to his charts for sharing i information with you.

Ok thanks for the info- they are working on putting me on to get information- and the docs seem to come when im not there i live an hour away from my parents ive asked my parents to record it but i think they just forget in the midst of it all. Hopeing for more answers tomorrow the constant waiting to even see a doc in the hospitals today are really a sad state of affairs...

Hang in there
- praying for your dad and family

@formydad I might also suggest asking your dad if he has a medical power of attorney. Besides stating what his wishes are, it also names the person, or persons, who can make decisions if he cannot. Usually it is the spouse. Ask to have yourself added. Then the docs know that you’re part of the decision making team and/or want information. I did this with my parents. When dad needed surgery, my mom told the doctors to call me and discuss options. They always did. I was 2000 miles away. I could then discuss everything with my mom and siblings and put all the info into laymen’s terms. The unit’s social worker can probably help with all of this. You might also ask about a care conference with your parents and the whole team. Do you think this might work for you? Let me know what your parents think about this. You’re doing a great job!

@becsbuddy This is a very good suggestion. Often it takes more than a couple of people to understand what is being put in place; the medical team is familiar with procedures and sometimes forgets it is not in laymen's terms!
@formydad I hope your parents will consider a care conference with the whole team, and allow you to help as you want!
Ginger