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Caregiving Frustrations: When the stuff hits the fan!
My wife has outlived her expected lifespan (MDS, RCMD) by quite a long time and I FEEL like the current status quo will continue indefinitely. However, I suspect that one day things could very well take a turn for the worse and we'll get the BAD NEWS. AML is the next step in this progression. If that day comes, what am I to say? I've been telling her for years that NOBODY knows what tomorrow will bring, we never know how long we have but getting a(another) bad diagnosis will push her over the edge and me along with her. Words only go so far. I see fear now and I know more bad news will only freak her out. I will, of course, stay by her side come hell or high water, but it won't be enough,
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Ginger, sometimes I wonder if I'm just in denial... ? On the other hand, we both try hard to not focus on what MIGHT happen tomorrow. We try to stay in the moment and make the most of it.
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3 Reactions@bradmm Living for now is a good approach. We don't always know what is in our near future, so understanding what might be in store for us is good to keep in the back of your mind, but do not dwell on it. That's my manner of coping, anyways!
Ginger
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3 ReactionsI’m jealous of everyone who dives. Always wanted to but seizures and water don’t mix. Nice picture.
Jake
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1 ReactionUpdate! I'm no longer working on my dive instructor certification. When the transfusions started, I waited to see if they were going to be routine and, after the last third one in six weeks, I decided I needed to focus on other things.
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2 Reactions