Many seizures, extreme anxiety

Posted by crsty40 @crstyday40, Mar 26, 2019

So almost 2 weeks ago I picked up my script Amitryptiline which i take for sleep. Last saw it on the couch, before my son got home from school i think I hid it somewhere and dont remember where I put it. The reason I hid it (i think) is my husband was gonna come by and pick me to go to the store and my son (hes 13) and his friend were going to be here and i didnt want them to see it just laying on couch. So i havent taken it in almost 2 weeks and i also have epilepsy and take Briviact, Onfi, Lyrica, Buspar(anxiety) and medical cannibas for epilepsy. I have been having many seizures..complex partials, extreme anxiety, racing thoughts, alot about dying whether its me, or my husband, my sons, my chihuahua, my mom...somebody close to me and it just wont stop!! My heart feels like its going to jump out of my chest, its just a roller coaster of ups and downs all day all night long. I dont work because of my uncontrolled seizures and im home all day by myself. Ive torn my house apart looking for that med. My memory is awful from having brain surgery, seizures, the meds im on doesnt help at all im sure. Ive talked to my neuro about it to see if theres anything she can do for me or have any suggestions and...nothing! I cant get it refilled until April 2nd. Im trying to get through this until then but I dont know how much longer I can do this..has this happened to anybody else? The buspar doesnt do anything the medical cannabis does absolutely nothing for my seizures anxiety..im so scared!!!! Thank you in advance for letting me ramble on. Please help!!!

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@lisalucier

Hi, @marazion - wondering if your exercise and mindfulness practices are still helping you with controlling anxiety? What do you do or think about during your mindful meditation periods?

@crstyday40 - wondering how things are going seizure-wise and also anxiety-wise?

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Yes, diet, exercise and mindfulness are still working. Of course I occasionally get moderate "situational anxiety" in response to extrinsic stress factors but I regard that as normal and nothing to be concerned about. Mindfulness is more to do with "living in the now" and ignoring thoughts as much as possible. I personally focus on the sound of my breathing and when thoughts try to intrude ( such as "how much longer till I can have a coffee!) I "accept" them as thoughts but carry on without responding. Other people use other focusing techniques. Now that must sound weird! Let me tell you as a chemistry graduate who worked for many years in the pharmaceutical industry I think it is weird too but with one caveat...I have tried it and it it helped me tremendously. Now, is it my diet my exercise or my mindfulness that helps the most ? I frankly don't know but I think for depression/anxiety/stress resistance they all matter. They also help with cardiovascular health and other things as an added benefit!

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@crstyday40

Hi @lisalucier my anxiety is better, i think but still been having seizures everyday! I thought the new cbd oil I have was helping but unfortunately its not so much anymore :/ when I have a seizure it does me in for the rest of the day! Cant remember anything and just dont feel "normal" always feeling "off" about everything. Its hard to explain!! My VNS has been hurting my neck area when it comes on. I want to just get it turned off when i go to my next appointment, since its not doing anything! Thank you for asking!!

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@crstyday40, thinking of you.

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