Best Shower heads for MAC

Posted by kathyhg @kathyhg, Mar 18, 2019

I've been reading about shower heads and it seems that many are bad for growing bacteria. One mentioned on another forum was called The Original Chrome Shower Head by Shower Clear. It is very expensive and wondering if anyone has experience with this or others that might be good.
Thanks,

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First visit in Nov. the NJH gastro doctor prescribed 40 mg Prilosec in am and 40 mg of Pepcid before bed for the GERD. Followup visit in June he added another 40 mg of Prilosec at night plus the Pepcid and not much of an explanation other than he wants to do a BRAVO test again with me on the meds which doesn't make sense to me. My local gastro doctor of 20 plus years said it's overkill and also a few other of my doctors. For years I took Previcid 20 mg with very little symptoms. With the 40 mg of Prilosec no acid symptoms so don't know why he would add the extra dose. I have osteopenia and PPI's can cause bone loss so I'm trying to just take Pepcid 40 mg in am and 40 mg in pm. I have had some heartburn so I take Gavascon and Prilosec in the am if I know we're having a meal that might give me symptoms. After watching a NJH gastro video where NJH's top ID doctor, Dr. Huitt, said PPI's do not get rid of GERD just the acid and if you don't have symptoms don't take them and you can still aspirate even with PPI's. She said PPI's reduce acid in the stomach and it's good to have acid because it can reduce gut bacteria. She also said PPI's can cause community acquired pneumonia. I won't see the gastro doctor on my 6 month NJH follow up because I'm not following his recommendation. He also recommended LINX surgery. I don't want to have surgery because there is only a 50% success rate which he did tell me. I have a local gastro surgeon who also told me only 50% success rate. He's highly regarded and pioneered gastro surgeries. As for the dysphagia, I was instructed to do swallow exercises which are hard swallows 10x's in a row, 3 times a day and another one holding your tongue and swallowing which I can't do. I haven't been doing them too often because I'm always bringing up mucus instead of swallowing. I have silent aspiration so no way of knowing if and when I aspirate. The barium swallow indicated it was liquid that went into my lungs. Lots of frustration dealing with all of this.

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@windwalker

Several members on this site have ordered copper showerheads that are hinged and open up to thouroughly empty and dry. I would imagine that they are pricey. They are made from copper as that metal is naturally anti-microbial.

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Hi Terri do you think that somebody could send a picture of that showerhead by chance? that would be very interesting. They used to have copper pipes Too! I usually lay down in the tub and wash my hair First of all, then bathe body. I know it’s not the best but it seems to get my hair fairly clean then and I do it all at one time👏👏👏

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@cali2142

First visit in Nov. the NJH gastro doctor prescribed 40 mg Prilosec in am and 40 mg of Pepcid before bed for the GERD. Followup visit in June he added another 40 mg of Prilosec at night plus the Pepcid and not much of an explanation other than he wants to do a BRAVO test again with me on the meds which doesn't make sense to me. My local gastro doctor of 20 plus years said it's overkill and also a few other of my doctors. For years I took Previcid 20 mg with very little symptoms. With the 40 mg of Prilosec no acid symptoms so don't know why he would add the extra dose. I have osteopenia and PPI's can cause bone loss so I'm trying to just take Pepcid 40 mg in am and 40 mg in pm. I have had some heartburn so I take Gavascon and Prilosec in the am if I know we're having a meal that might give me symptoms. After watching a NJH gastro video where NJH's top ID doctor, Dr. Huitt, said PPI's do not get rid of GERD just the acid and if you don't have symptoms don't take them and you can still aspirate even with PPI's. She said PPI's reduce acid in the stomach and it's good to have acid because it can reduce gut bacteria. She also said PPI's can cause community acquired pneumonia. I won't see the gastro doctor on my 6 month NJH follow up because I'm not following his recommendation. He also recommended LINX surgery. I don't want to have surgery because there is only a 50% success rate which he did tell me. I have a local gastro surgeon who also told me only 50% success rate. He's highly regarded and pioneered gastro surgeries. As for the dysphagia, I was instructed to do swallow exercises which are hard swallows 10x's in a row, 3 times a day and another one holding your tongue and swallowing which I can't do. I haven't been doing them too often because I'm always bringing up mucus instead of swallowing. I have silent aspiration so no way of knowing if and when I aspirate. The barium swallow indicated it was liquid that went into my lungs. Lots of frustration dealing with all of this.

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@cali2142 I too have picked up on differences in the school of thought between NJH gastro docs and MAC theories.

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@aerogirl

@cali2142 I too have picked up on differences in the school of thought between NJH gastro docs and MAC theories.

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Care to elaborate?

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@cali2142 Just very similar to you ... heard same case for not treating GERD when MAC in play, whereas GI docs seem much more in favor of treatment.

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I had the same experience with GI recommending treatment but the respirologist said not to take anything for it (I think it’s called silent reflux).

Instead, respirology recommended not eating or drinking anything 3 hours before going to bed/napping and elevating the head of my bed. I had already been managing acid reflux through diet/lifestyle changes.

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@windwalker

@sueinmn Spot on, Sue! I do the same thing as you. I do soak my shower-head in a baggie of vinegar as an added pre-caution since that is where there are the heaviest with colonization.

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Great idea! Soaking shower head in vinegar........I was wondering how to clean it, because they have several parts inside, and might not be too easy to put back together! Thanks for the great tip......

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@sueinmn

If it makes you feel better that you are "doing something" by replacing your shower head, then do it. But that doesn't help with exposure to MAC prevalent throughout the environment.
After reading everything I can get my hands on, I would say the science isn't there yet to prove a conclusive link between your MAC infection and specifically, your shower. And even less that replacement of the shower head will "cure" the problem or prevent reinfection. As I understand this disease, once your lungs are colonized with MAC, it is not totally eradicated by treatment - just knocked down to undetectable numbers, so trying to "prevent infection" may be a moot point.
All of the studies cited are of very limited scope, with small sample sizes, and only one (from Japan) compared strains of mycobacterium found to the strains infecting residents of the homes. The results showed that only a few of the NTM found in the showers matched the strain the patient was infected with. None of the studies went as far as to evaluate any treatments like disinfecting or replacing the shower heads.
From a microbiological perspective, the biofilm that is formed surrounding NTM is tough, and I don't know what you can do at home to dislodge it & disinfect. That should certainly be subjected to thorough study as part of NTM research. That biofilm readily attaches to plastic - hmm, maybe the increase in infection is linked not to the shower heads, but to the replacement of copper plumbing and metal fixtures with plastic fixtures and pipe (PVC & PEX.) That would certainly be something to study as well.
As for myself, I have chosen to take the path of living a normal life, with reasonable precautions. I eat, rest, exercise, take my meds and do my breathing treatments to stay healthy. I wash my hands (a lot) and keep them away from my face. I avoid close contact with sick people. That means taking care when handling soil (avoid dust, wear gloves, wash thoroughly afterward.) At my Texas home, where I am pretty sure I contracted MAC, I have covered all the soil near my patio with ground cover, have a gardener mow, weed, rake & fertilize my yard & wash the patio while I am away & the house is well closed. I only garden there in pots with sterile potting soil. And I avoid blowing dust.

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Hello Sue - I am curious as to where you get sterile potting soil and how do you know it is sterile?
Thanks so much.

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@virginiae

Hello Sue - I am curious as to where you get sterile potting soil and how do you know it is sterile?
Thanks so much.

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I get sterile potting soil from my locally owned nursery for use indoors and starting or transplanting seedlings. It is labeled sterilized, and is specifically intended for plant starting and propagating houseplants. In an indoor or greenhouse environment the sterility is important as bacteria and fungi can quickly get out of control.
Sue

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@aerogirl

I'm replacing our two shower heads and know there is much wisdom out there! Does a hand held version (with the hose) present an even greater opportunity for mycobacteria growth? Is it best to go with a simple model, sans the hose? Thanks in advance!

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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9802317/
According to this study, greater numbers of bacteria were found in “rain head” style shower heads than hand held or “massage” heads. I wonder if that’s because rain head styles are mounted flat and therefore don’t drain completely or dry as fast?

I’ve also been researching using vinegar for disinfecting shower head. Seems it has to be at least 6% acetic acid. Most of what is sold in US is less than that. At that higher strength, can only submerge 30 minutes before damage to materials.

I use a household vinegar soak once a week to reduce mineral clogging but I’m not finding where that practice kills MAC. Even so called “cleaning vinegar” in the US is only 5%.

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