I'm having multiple odd episodes that are keeping me undiagnosed. Help

Posted by johnwes5819 @johnwes5819, Mar 10, 2019

Hello,

I posted before in another group in its entirety but I think it's too broad and there could be a multitude of theories and explanations. So I'm going to break my story down into my most bothersome episodic symptoms. To start, everything on the surface looks like panic disorder or anxiety. However, my different episodes seem to be helping each other keep me feeling frantic more days than not so on the surface it looks like anxiety. I've had lots of lab work testing including thyroid, Lyme, sleep apnea home test, brain MRI, spine MRI, abdominal ct scan, and way too many doctor visits with no answer, but they do agree on one thing. The symptoms are weird and seem to be more than just anxiety. There are little bits here and there but unfortunately not enough to go on.

Keep in mind these episodes aren't all going on at the same time but they're not giving me any recovery time and feel like i'm sinking further down the hole. It's like fighting 5 bullies one at a time and losing. Just as you feel like you can get up another bully hops in.

Episode 1: After waking up with head pressure, teeth chattering, shivering, lower back pain, and sweating. Oral temperature is ALWAYS between 93.8 F and 94.8 during these episodes. Also, every day is constant cold hands and feet that never happened until all of these episodes started.

Episode 2: Brain fog, head pressure that feels like you're being pushed down when standing (like when you've had one too many drinks), usually later in the day when that feeling wears off, I'll have adrenaline body tingling, uncontrollable thoughts of self-harm and head chatter. (Not dwelling on things or worried about things, it's just the mind doing what it does and I have no control.) Also, my eye will twitch like crazy before and during these.

Episode 3: When standing for a long period of time, like cooking or washing dishes, and sweating starts to happen my heart rate increases and get extremely dizzy and feels like I'm being physically pulled down.

Episode 4: An overly excited feeling, almost like needing to yell or run to get adrenaline out, Heart rate is low.

Episode 5. Sharp colon pain, yellow stools (frequently), stools that look sickly or unhealthy, and constipation more often than not. I had a colonoscopy recently and I was told everything looks good.

I've tried SSRI's and benzodiazepines and they don't stop these episodes from occurring. I've tried strict diets and those don't help.

If you have any thought about even one of these episodes please don't be shy to comment. Thank you so much for taking the time to read.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

I can think of a number of food issues that affected my health, sometimes, and sometimes not. Same thing with the prescribed meds. I read that too much raw cabbage killed one of the ancient philosophers, and it did a number on my gall bladder the summer before I had the gall bladder removed. The emergency room doctor threatened to put me in the psych ward because I had stomach pain and was "faking it", he claimed. The surgeon gave me a jar of small gall bladder "seeds" which would have made me worse had I waited on the surgery. My granddaughter asked me if I was going to plant the jar of seeds in the garden. I explained that they were not that kind of seeds. I had pain and bowel problems after the surgery, but eventually got things under control.
It is possible that constant stress is the cause of many health problems so we need to make that our number one priority to eliminate the problem. I am making good progress on that front, but it gets lonely at times. Dorisena

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How insensitive...and abusive of that doctor in emergency telling you that you belonged in the psych ward! I think you should report him. There is an ombudsman in every hospital that looks into issues of this kind.
I have intolerances and finally a naturopath sent my blood to be analyzed to determine which ones they are. I recommend that you do the same. After I had the results in hand which were surprising, I spent 2 hours in the grocery store reading labels. Dairy is my biggest issue which I already knew from reactions. I didn't realize that a lot of bread contains dairy products. The only pastry with no dairy is apple turnovers..which I definitely don't need! Thank God, gluten is NOT an issue and I thought it was because after eating bread I became short of breath (asthmatic). It was dairy in the bread.
You have to be a sleuth but having test results definitely helps. Next I have to do a stool test which again is sent away to a special lab.

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@afrobin

How insensitive...and abusive of that doctor in emergency telling you that you belonged in the psych ward! I think you should report him. There is an ombudsman in every hospital that looks into issues of this kind.
I have intolerances and finally a naturopath sent my blood to be analyzed to determine which ones they are. I recommend that you do the same. After I had the results in hand which were surprising, I spent 2 hours in the grocery store reading labels. Dairy is my biggest issue which I already knew from reactions. I didn't realize that a lot of bread contains dairy products. The only pastry with no dairy is apple turnovers..which I definitely don't need! Thank God, gluten is NOT an issue and I thought it was because after eating bread I became short of breath (asthmatic). It was dairy in the bread.
You have to be a sleuth but having test results definitely helps. Next I have to do a stool test which again is sent away to a special lab.

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Yes, my son who was a paramedic on our local squad at the time, was known to the hospital folks, so he reported the abusive doctor to the emergency room supervising doctor who found out the man was volunteering overtime in the emergency room and shouldn't have been there at that time. Evidently the doctor had a compulsive problems and he was written up and disciplined. I remember I went to my family doctor who prescribed a liquid diet for a while and I avoided eating the many raw veggies from the garden. I had the surgery soon after that and I didn't go near the emergency room. My son has dairy issues, so I am familiar with that problem. My mother couldn't eat cheese in her old age, which she loved, and claimed it was because in her day children didn't drink much milk because the families got rid of the cow out back after the babies in the family quit drinking from a bottle. Then you had to purchase milk and keep it cold. That idea involves sensitivity issues that develop sometimes from avoiding certain foods. So it is complex to figure out. Do you or don't you try to eat and digest certain foods? I was diagnosed allergic to peanuts from skin tests but I never gave them up and enjoy them to this day.
Dorisena

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Hello Dorisena,
I'm glad to hear that your son went to your rescue and reported that idiot of a self righteous doctor who could learn a lesson in empathy.

My naturopath has me on daily probiotics (50 billion...costly but worth it). They heal the gut. And did you know that 80% of the immune system is IN the gut? So if you want to keep your immune system strong and able to fight disease including cancer, you want a healthy colon.

Of course, eating 6 - 10 servings of veggies and fruit per day is very important. I put several into a blender in the morning. For example: a handful of raw spinach and a cup of berries (from frozen), some almond milk, a few turmeric pills + a couple of grinds of pepper and almond milk. I will often add ground flax seeds. I don't drink it to enjoy the flavour; I just chug it down and consider that a very healthy breakfast and start to the day.

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@sirgalahad

should check stop taking the medicine for a couple of days 2-3 dyas and see if its the meds or an underlying causal agent like asthma or pneumonia chest infection .get diaphragm check .when you cough what colour sputum are you cringing up .if white frothy to clear then its not an infection if brown yellow and or bloody then it is an infection and go back and get a sputum culture of that infection.
I would chat to your doctor about the cough before taking yourself off the meds and also check and look up mims and see what the contraindications of the medicine you are on is

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also consider lung function test or a spirometry tests and or Mantoux test to rule out stuff

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@sirgalahad

also consider lung function test or a spirometry tests and or Mantoux test to rule out stuff

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@sirgalahad Thanks for all of your input. If anyone has any other input in regards to my original post, I'm open ears, thanks a lot everyone!

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@johnwes5819

@sirgalahad Thanks for all of your input. If anyone has any other input in regards to my original post, I'm open ears, thanks a lot everyone!

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your welcome hopefully you will get to the root cause of your health issues

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Do you have a doctor who is prepared to test you for EVERYTHING? Brain scans, hormone issues such as thyroid and adrenal. Could it be Addison's disease? https://www.mayoclinic.org/diseases-conditions/addisons-disease/symptoms-causes/syc-20350293 Leave no stone unturned until every organ in your body has been examined. I presume you live in the US so I hope you have insurance. Here in Canada, it would all be free. Let us know how this mysterious condition is diagnosed because there IS something not right. And it could be a simple fix. Take care!

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@afrobin

Do you have a doctor who is prepared to test you for EVERYTHING? Brain scans, hormone issues such as thyroid and adrenal. Could it be Addison's disease? https://www.mayoclinic.org/diseases-conditions/addisons-disease/symptoms-causes/syc-20350293 Leave no stone unturned until every organ in your body has been examined. I presume you live in the US so I hope you have insurance. Here in Canada, it would all be free. Let us know how this mysterious condition is diagnosed because there IS something not right. And it could be a simple fix. Take care!

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For some reason that made me laugh. I think that’s the main problem in the us. We pay a lot to get shoved in stupid shit. Someone is making out but usually not the patient.

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@dorisena

Thank you for the information. What I am really interested in is what increases the risk of cancer and whether or not diabetes makes the risk higher, because my husband did not take care of his diabetes and did not stay on the prescribed regimen and his cancer metasticized into a tumor on the spine which killed him in short order. I have been taught that there is a relationship between fat in the breasts and cancer, which I had and survived, so I am more careful about fat in my diet. I prefer olive oil and no longer raise hogs on the farm, so the lard is gone out of my life. I did not believe that sugar speeds cancer cell growth.
I thought it went to the cancer cells first, and neglected the good cells. Of course, I will continue searching for the latest information. I certainly am happy avoiding sugar and sweets, however, it is difficult to convince my friends of my content. I want to feel as though I am doing everything I can to avoid recurring cancer if possible, or have it return at a very old age and die quickly. I prefer not to die being run over by a truck. My husband ran over my leg with a disk and I survived that without losing my leg, so I tend to be careful about many risks. I am glad to hear that obesity is associated with increased risk of cancer, because I believe that dealing with his overeating disorder could have helped prevent his early death. His awful death was a big lesson for me.
What I read was that sugar 'feeds cancer cells" and that was a turn off for me. Dorisena

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Hi, @dorisena - your question about diabetes increasing the risk of cancer would be a perfect topic for starting a new discussion in the Connect Diabetes & Endocrine System group, https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

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