I'm having multiple odd episodes that are keeping me undiagnosed. Help

Posted by johnwes5819 @johnwes5819, Mar 10, 2019

Hello,

I posted before in another group in its entirety but I think it's too broad and there could be a multitude of theories and explanations. So I'm going to break my story down into my most bothersome episodic symptoms. To start, everything on the surface looks like panic disorder or anxiety. However, my different episodes seem to be helping each other keep me feeling frantic more days than not so on the surface it looks like anxiety. I've had lots of lab work testing including thyroid, Lyme, sleep apnea home test, brain MRI, spine MRI, abdominal ct scan, and way too many doctor visits with no answer, but they do agree on one thing. The symptoms are weird and seem to be more than just anxiety. There are little bits here and there but unfortunately not enough to go on.

Keep in mind these episodes aren't all going on at the same time but they're not giving me any recovery time and feel like i'm sinking further down the hole. It's like fighting 5 bullies one at a time and losing. Just as you feel like you can get up another bully hops in.

Episode 1: After waking up with head pressure, teeth chattering, shivering, lower back pain, and sweating. Oral temperature is ALWAYS between 93.8 F and 94.8 during these episodes. Also, every day is constant cold hands and feet that never happened until all of these episodes started.

Episode 2: Brain fog, head pressure that feels like you're being pushed down when standing (like when you've had one too many drinks), usually later in the day when that feeling wears off, I'll have adrenaline body tingling, uncontrollable thoughts of self-harm and head chatter. (Not dwelling on things or worried about things, it's just the mind doing what it does and I have no control.) Also, my eye will twitch like crazy before and during these.

Episode 3: When standing for a long period of time, like cooking or washing dishes, and sweating starts to happen my heart rate increases and get extremely dizzy and feels like I'm being physically pulled down.

Episode 4: An overly excited feeling, almost like needing to yell or run to get adrenaline out, Heart rate is low.

Episode 5. Sharp colon pain, yellow stools (frequently), stools that look sickly or unhealthy, and constipation more often than not. I had a colonoscopy recently and I was told everything looks good.

I've tried SSRI's and benzodiazepines and they don't stop these episodes from occurring. I've tried strict diets and those don't help.

If you have any thought about even one of these episodes please don't be shy to comment. Thank you so much for taking the time to read.

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@lisalucier

Hi, @dorisena - just wanted to point out a Mayo Clinic article on causes of cancer https://www.mayoclinic.org/diseases-conditions/cancer/in-depth/cancer-causes/art-20044714 that might be of interest to you. It offers this information on a cancer causation myth related to sugar:

Myth: People with cancer shouldn't eat sugar, since it can cause cancer to grow faster.

Fact: Sugar doesn't make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn't speed their growth. Likewise, depriving cancer cells of sugar doesn't slow their growth.

This misconception may be based in part on a misunderstanding of positron emission tomography (PET) scans, which use a small amount of radioactive tracer — typically a form of glucose. All tissues in your body absorb some of this tracer, but tissues that are using more energy — including cancer cells — absorb greater amounts. For this reason, some people have concluded that cancer cells grow faster on sugar. But this isn't true.

However, there is some evidence that consuming large amounts of sugar is associated with an increased risk of certain cancers, including esophageal cancer. It can also lead to weight gain and increase the risk of obesity and diabetes, which may increase the risk of cancer.

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My 55 year old friend died of metastatic breast cancer that went to the brain. Her oncologist told her not to eat any sugar because it feeds cancer. She complied and perhaps lived longer...but sadly did eventually die...
This TED Talk by Dr William Li on Angiogenesis, Can We Starve Cancer is very informative concerning the relationship between what we eat and cancer. https://www.ted.com/talks/william_li?language=en

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I say look to the medications you are taking. Look up each one and see which could cause your symptoms. Too often the cure is worse than the disease...
Case in point: I have been having daily coughing fits for 18 months....since I started on a drug to lower blood pressure. I finally looked up the side effects and there it is: coughing!

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@afrobin

My 55 year old friend died of metastatic breast cancer that went to the brain. Her oncologist told her not to eat any sugar because it feeds cancer. She complied and perhaps lived longer...but sadly did eventually die...
This TED Talk by Dr William Li on Angiogenesis, Can We Starve Cancer is very informative concerning the relationship between what we eat and cancer. https://www.ted.com/talks/william_li?language=en

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the only way to starve a cancer or tumour mass is to cut off the blood supply and insert directly into the mass stuff to kill it

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@afrobin

I say look to the medications you are taking. Look up each one and see which could cause your symptoms. Too often the cure is worse than the disease...
Case in point: I have been having daily coughing fits for 18 months....since I started on a drug to lower blood pressure. I finally looked up the side effects and there it is: coughing!

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@afrobin I was on the same medication a number of years ago -- lisinopril? I called my PCP and told her I was coughing a lot and she immediately said it was from that drug and switched me. Apparently that is a very common side-effect of that drug. My sister takes it though and has no problem at all.
JK

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@contentandwell

@afrobin I was on the same medication a number of years ago -- lisinopril? I called my PCP and told her I was coughing a lot and she immediately said it was from that drug and switched me. Apparently that is a very common side-effect of that drug. My sister takes it though and has no problem at all.
JK

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@contentandwell I just noticed I have been coughing, mainly in the middle of the night. I am taking lisinopril. I thought it was something else. I take a cough drop. Maybe I should have my MD try something else? If you cough should you change? I’m going to check with my MD to see if I need to change. Thanks

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should check stop taking the medicine for a couple of days 2-3 dyas and see if its the meds or an underlying causal agent like asthma or pneumonia chest infection .get diaphragm check .when you cough what colour sputum are you cringing up .if white frothy to clear then its not an infection if brown yellow and or bloody then it is an infection and go back and get a sputum culture of that infection.
I would chat to your doctor about the cough before taking yourself off the meds and also check and look up mims and see what the contraindications of the medicine you are on is

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@fluffykitty

@contentandwell I just noticed I have been coughing, mainly in the middle of the night. I am taking lisinopril. I thought it was something else. I take a cough drop. Maybe I should have my MD try something else? If you cough should you change? I’m going to check with my MD to see if I need to change. Thanks

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@fluffykitty, a dry cough is a common side effect of lisinopril.

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@capausz

@fluffykitty, a dry cough is a common side effect of lisinopril.

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@fluffykitty I have the same thing with the lisinopril. Try to get the new primary to prescribe something else. Another new primary which is the 3rd one in 4 years. Maybe this one will stay. So frustrating!! As is waking up at night with a dry cough.

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Interesting thing about foods that feed cancer. There are possibly foods that do so in some people and yet not others.
Possibly I think too much. We surely are not all wired the same.

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@fluffykitty

@contentandwell I just noticed I have been coughing, mainly in the middle of the night. I am taking lisinopril. I thought it was something else. I take a cough drop. Maybe I should have my MD try something else? If you cough should you change? I’m going to check with my MD to see if I need to change. Thanks

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@fluffykitty My problem was in the early 2000s so I really do not remember if the cough was constant, but I am thinking it was all day. As soon as I mentioned it to my doctor she changed my BP med. I would definitely let your doctor know.
JK

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