Fibromyalgia: How do you cope?

Posted by sandymom @sandymom, Mar 8, 2019

Since 1983 fibromyalgia has cost me my job home life. Daily struggles. One day up next down. What to do to cope? See psychiatrist med nurse pcp etc. let me here your story the sufferings this has caused. Any help please!

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for Jen, Alumna Mentor @sandytoes14

For the past couple of weeks, I have been in a real funk. It's one of those things I can't put my finger on why. I don't want to go anywhere or do anything. Among the meds I take for Fibro, I take meds for depression and anxiety, yet I have had two panic attacks in the past week. I feel really alone although my husband and grown son live with me.
.In the fall when the clocks change I suffer from SAD- seasonal affective disorder. It generally occurs when one is in less sunlight. Do you think this could be part of my issue? Mornings went from sunny at 6:15 AM to dark until 7:15 AM. It is light later in the evening now.

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Have you tried going to church for Spiritual food? Or if you don’t feel like doing that you can always watch church on TV or on your phone or computer. I love Joyce Meyer she has changed my life.

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Profile picture for lioness @lioness

@parus since you feel this way plus Jen maybe there is something to it It's sunny here and warm today and I feel good have to keep better track if this to see start to journal about weather hummmm ?

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@lioness I have thought of keeping a journal as to weather/time changes. I know I was not pleased when they went to the time change. Messes up all of my rhythms.

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Good Morning!
As you all know, dealing with chronic pain, like that of Fibromyalgia, can cause us to be depressed about our situation.
Well, some drugs that we use for the Fibro, might be adding to those depressed feeling.
Please read the following:

Over 30 percent of adults take medications that may increase risk of depression or suicide: Here's how to protect yourself.
https://www.aarp.org/health/drugs-supplements/info-2019/depression-side-effects-prescription-drugs.html
Happy Weekend!
Ronnie (GRANDMAr)

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Profile picture for grandmaR @grandmar

Good Morning!
As you all know, dealing with chronic pain, like that of Fibromyalgia, can cause us to be depressed about our situation.
Well, some drugs that we use for the Fibro, might be adding to those depressed feeling.
Please read the following:

Over 30 percent of adults take medications that may increase risk of depression or suicide: Here's how to protect yourself.
https://www.aarp.org/health/drugs-supplements/info-2019/depression-side-effects-prescription-drugs.html
Happy Weekend!
Ronnie (GRANDMAr)

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@grandmar I just read what you sent from AARP Why take any drugs then with all these side effects What are Dr,s @drug companies doing to us it's shameful they are not helping us just lining there pockets

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Profile picture for lioness @lioness

@grandmar I just read what you sent from AARP Why take any drugs then with all these side effects What are Dr,s @drug companies doing to us it's shameful they are not helping us just lining there pockets

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@lioness Sure seems this way. My hope of a better future has been destroyed.

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Profile picture for lioness @lioness

@grandmar I just read what you sent from AARP Why take any drugs then with all these side effects What are Dr,s @drug companies doing to us it's shameful they are not helping us just lining there pockets

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Hi!
I would like to think that sometimes you just have to weigh the odds.
It would be impossible for pharmaceutical companies to develop medications that would address ALL the variables of their patients.
That is why it is so important for us to be our own advocates and to take an active role in our medical treatment.
Ronnie

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Profile picture for jamie2020 @jamie2020

Has anyone ever come across an ANA TITER 1 of 1:32:0 with a homogeneous pattern being positive that I was tested twice for but, was told negative for lupus, rheumatoid arthritis, etc.? Can these results ever change from being negative and you should get re-tested for lupus, rheumatoid arthritis, etc.? My joints all over are getting worse and are so stiff. I do have fibromyalgia but no physical/occasional/pool therapy are helping or making it better if it's supposed to be truly caused by fibromyalgia. Help! Any thoughts would be appreciated!

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Hello @jamie2020, welcome to Connect. You mentioned that you have fibromyalgia. Has your doctor suggested any treatments to help with the associated pain other than the therapy you mentioned? There is another discussion on Connect where your post may receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion:

> Groups > Chronic Pain > Fibromyalgia
-- https://connect.mayoclinic.org/discussion/fibromyalgia-3/

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Has anyone ever come across an ANA TITER 1 of 1:32:0 with a homogeneous pattern being positive that I was tested twice for but, was told negative for lupus, rheumatoid arthritis, etc.? Can these results ever change from being negative and you should get re-tested for lupus, rheumatoid arthritis, etc.? My joints all over are getting worse and are so stiff. I do have fibromyalgia but no physical/occasional/pool therapy are helping or making it better if it's supposed to be truly caused by fibromyalgia. Help! Any thoughts would be appreciated!

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Hi @jamie2020 I want to join @johnbishop in welcoming you to Connect. I moved your post to this discussion so you can connect with others who have fibromyalgia. I'd like to tag @grandmar as she also has fibromyalgia and may be able to offer you support.

Back to you @jamie2020 I wanted to repeat John's question, has your doctor suggested any treatments to help with the associated pain other than the therapy you mentioned?

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@jamie2020 I was diagnosed with Fibromyalgia in 2000. Came on quickly and I had no idea what was wrong with me. It is called an invisible illness. I seldom mention thus as many do not believe how real the pain is. I live each doing the best I can and some days I do very well. I never know which day will be better. I know some things that do make the fibro worse for me. We are all wired differently. I have learned things here at connect. The most important thing for me is self care. I try not to dwell on the things I have lost and what I can do to continue moving forward.

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