Fibromyalgia: How do you cope?

Have you tried going to church for Spiritual food? Or if you don’t feel like doing that you can always watch church on TV or on your phone or computer. I love Joyce Meyer she has changed my life.

@lioness I have thought of keeping a journal as to weather/time changes. I know I was not pleased when they went to the time change. Messes up all of my rhythms.

Good Morning!
As you all know, dealing with chronic pain, like that of Fibromyalgia, can cause us to be depressed about our situation.
Well, some drugs that we use for the Fibro, might be adding to those depressed feeling.
Please read the following:

Over 30 percent of adults take medications that may increase risk of depression or suicide: Here's how to protect yourself.
https://www.aarp.org/health/drugs-supplements/info-2019/depression-side-effects-prescription-drugs.html?cmp=EMC-DSO-NLC-WBLTR---NMCTRL-031519-F1-3638047&ET_CID=3638047&ET_RID=8426170&mi_u=8426170&mi_ecmp=20190315_Webletter_NM_CTRL_Winner_685000_1009402&encparam=JhroBFvDhdqKSRvuiZYWnFU93kHt%2fyyxTjsBbtXPqkE%3d

Happy Weekend!
Ronnie (GRANDMAr)

@grandmar I just read what you sent from AARP Why take any drugs then with all these side effects What are Dr,s @drug companies doing to us it's shameful they are not helping us just lining there pockets

@lioness Sure seems this way. My hope of a better future has been destroyed.

Hi!
I would like to think that sometimes you just have to weigh the odds.
It would be impossible for pharmaceutical companies to develop medications that would address ALL the variables of their patients.
That is why it is so important for us to be our own advocates and to take an active role in our medical treatment.
Ronnie

Hi fellow pain warriors. I'm 54. My Fibro took a bad turn 2 1/2 years ago and I'm slowly doing better after having a lot of physical therapy and nerve blocks, ablations, and massage. I've been following Dr. Skip Pridgin's protocol since 11/2018 and am feeling less pain. He's doing a large study using 500 mg of Famcyclovir 2X/day & 200 Celebrex with the morning Famvir. Google him for more info. I also take Methaxalone, Magnesium, Curcumin, D3, a good multivitamin 2X/day, HRT, Imitrex, Plaquenil (am also diagnosed with Lupus), and I just got Botox injections for my migraines. I was a long distance runner, golfer, tennis, cycler etc. etc. It's been quite an adjustment. I'm doing Acceptance and Commitment Therapy (ACT) for Pain which has been very helpful. Other than the constant engulfing pain, I'm happily married, have 3 grown kids and 3 older stepkids, 2 dogs, a cat, a parrot (great, chatty companion), and wonderful friends. I'm not dying and try to focus on how blessed I am. I definitely get into funks and have found Youtube videos about ACT, Mindfulness, yoga stretches when I'm up for that, and other fun stuff to be helpful, too.

Hello @jamie2020, welcome to Connect. You mentioned that you have fibromyalgia. Has your doctor suggested any treatments to help with the associated pain other than the therapy you mentioned? There is another discussion on Connect where your post may receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion:

> Groups > Chronic Pain > Fibromyalgia
-- https://connect.mayoclinic.org/discussion/fibromyalgia-3/

Has anyone ever come across an ANA TITER 1 of 1:32:0 with a homogeneous pattern being positive that I was tested twice for but, was told negative for lupus, rheumatoid arthritis, etc.? Can these results ever change from being negative and you should get re-tested for lupus, rheumatoid arthritis, etc.? My joints all over are getting worse and are so stiff. I do have fibromyalgia but no physical/occasional/pool therapy are helping or making it better if it's supposed to be truly caused by fibromyalgia. Help! Any thoughts would be appreciated!

Hi @jamie2020 I want to join @johnbishop in welcoming you to Connect. I moved your post to this discussion so you can connect with others who have fibromyalgia. I'd like to tag @grandmar as she also has fibromyalgia and may be able to offer you support.

Back to you @jamie2020 I wanted to repeat John's question, has your doctor suggested any treatments to help with the associated pain other than the therapy you mentioned?