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Cleaning before Fecal Microbiota Transplantation (FMT) for Cdiff.

Posted by sandyabbey @sandyabbey, Feb 22, 2019

I’m about to have to have an FMT next week. What kind of cleaning needs to be done before I get home. I have never soiled my bed, but have been vigilant in keeping my bed linens clean. Do I need to blesck all bedding. That will ruin top quilts, but I don’t want to reinfect myself. I’ve had 4 relapses & I’ve been very careful with hand washing & bleaching the bathroom I use. I would love some opinions

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pines | @pines | Feb 23, 2019

@sandyabbey It sounds like you must have relapsed after taking Dificid (fidaxamicin). I went through 4 bouts of Cdiff in 2018 but after taking Difiid last October, I have not relapsed. I didn't bleach blankets or anything like that. One thing I did do last October is discard the pillow I sleep with between my knees. I've had 3 back surgeries and have to sleep on my side with a pillow between my knees. I don't know if that was infected or not, but I tossed it out. Like you, I was diligent cleaning the bathroom. Are you doing the capsules from OpenBiome? That's what I had decided to do if I relapsed again. Please keep us updated after your FMT. I've made it through most of the winter without needing an antibiotic for sinus infections. I wish they would take Clindamycin off the market. I wish you well and have positive results from the FMT. I hope more people give us updates after they do FMT.

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1 reply
sandyabbey | @sandyabbey | Feb 24, 2019
In reply to @pines "@sandyabbey It sounds like you must have relapsed after taking Dificid (fidaxamicin). I went through 4..." + (show)
@pines

@sandyabbey It sounds like you must have relapsed after taking Dificid (fidaxamicin). I went through 4 bouts of Cdiff in 2018 but after taking Difiid last October, I have not relapsed. I didn't bleach blankets or anything like that. One thing I did do last October is discard the pillow I sleep with between my knees. I've had 3 back surgeries and have to sleep on my side with a pillow between my knees. I don't know if that was infected or not, but I tossed it out. Like you, I was diligent cleaning the bathroom. Are you doing the capsules from OpenBiome? That's what I had decided to do if I relapsed again. Please keep us updated after your FMT. I've made it through most of the winter without needing an antibiotic for sinus infections. I wish they would take Clindamycin off the market. I wish you well and have positive results from the FMT. I hope more people give us updates after they do FMT.

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I’m having my FMT via endoscopy into the small intestine. I still have to have that awful prep & I don’t understand that. My GI doesn’t want to do it via colonoscopy because last year when I had one he had a hard time. He said my intestine was so many twists & turns that it was not the bast way for me

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pines | @pines | Feb 24, 2019
In reply to @sandyabbey "I’m having my FMT via endoscopy into the small intestine. I still have to have that..." + (show)
@sandyabbey

I’m having my FMT via endoscopy into the small intestine. I still have to have that awful prep & I don’t understand that. My GI doesn’t want to do it via colonoscopy because last year when I had one he had a hard time. He said my intestine was so many twists & turns that it was not the bast way for me

Jump to this post

@sandyabbey I can relate to your last colonoscopy. When I had mine, he couldn't complete the last turn. I ended up having to go to the hospital a week later and have the contrast put through my colon. Two preps a week apart. I'm not looking forward to my colonoscopy this spring. Please do give us an update. Positive thoughts being sent your way.

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sandyabbey | @sandyabbey | Feb 26, 2019

I’m on vancomycin after my last relapse up until 2 days before my FMT which is Thursday. I stop my vancomycin today. I haven’t been having diarrhea since I started back on the vancomycin. Just one loose stool a day. I was wondering if I’m still contagious at this time. I wanted to wash my sheets the day before but I was wondering if I could contaminate them them them Wednesday night during my prep. Meaning just getting back in bed after the clean out half the night. I don’t anticipate any soils. Should I change then just before I leave for the procedure, ot will they be ok. I could fold another sheet to sleep on over the clean ones, but I didn’t want to re contaminate myself.

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gfpp | @gfpp | Feb 27, 2019

I believe you have done a good job with cleaning as you mentioned. Washing material items well with Tide will be sufficient. Also , sounds like you are clear but the Doctor can run a test to see if you are clear. Wishing you the best and stay confident.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Feb 27, 2019

Hi @sandyabbey,

Here are some great Mayo Clinic videos and information about FMT:
– Fecal microbiota transplantation (FMT) https://www.mayoclinic.org/medical-professionals/digestive-diseases/videos/fecal-microbiota-transplantation-fmt/vid-20433518
– FMT demonstrates consistently high success rates for recurrent CDI https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/fmt-demonstrates-consistently-high-success-rates-for-recurrent-cdi/mac-20429966
– Updated IDSA guideline for treatment of Clostridium difficile infection https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/updated-idsa-guideline-for-treatment-of-clostridium-difficile-infection/mqc-20442395

I was also wondering if you’ve had a chance to see the Gastroenterology & GI Surgery page on Connect? https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/

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sandyabbey | @sandyabbey | Feb 27, 2019

No I haven’t seen that.

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