Fecal Microbiota Transplant (FMT)

Posted by wendyw @wendyw, Apr 3, 2018

I have been researching this procedure and the success occurring with C Diff and now some success with curing ulcerative colitis.
My 43 year old son has severe recurring kidney stones ( lithrotripsy every 8-10 weeks) and he had medullary sponge kidney and ulcerative colitis, both of which can cause kidney stones.
Our hope is that if the FMT cured his ulcerative colitis, and IF that was the cause of his kidney stones he may be cured. Does anyone have any experience please?

Interested in more discussions like this? Go to the Digestive Health Support Group.

@sandyjr

Has anyone had this...I would like to hear about it. I want information.

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Sure. My daughter has Crohn’s disease. I do not know much about it, but a Dr I was talking with the other day, who also knows my daughter and who also used to be a chemist, told me to look into it. He believes it would be a good avenue to explore/ pursue. I would like to hear from someone that has had this done or knows about it. Thanks for the response.

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Has anyone had this...I would like to hear about it. I want information.

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Hi @elle1233 and @sandyjr,

I’m tagging @pines @annapocono @nettecook @suzannedee @oceanone @dntsass01 @sandyabbey @losthope @bonniedeely @nerofish @abixby413 @concernedmtnmom @claudiabrende @tammy1pike @gstill – they’ve written about FMT or fecal transplant on Connect, and I sincerely hope they will return to share their insights.

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@kanaazpereira

Hi @elle1233 and @sandyjr,

I’m tagging @pines @annapocono @nettecook @suzannedee @oceanone @dntsass01 @sandyabbey @losthope @bonniedeely @nerofish @abixby413 @concernedmtnmom @claudiabrende @tammy1pike @gstill – they’ve written about FMT or fecal transplant on Connect, and I sincerely hope they will return to share their insights.

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Thanks a lot @kanaazpereira , hopefully they will return! Over the years I've heard comments about people having this with good results, but I don't see a lot about it from the medical community, and no one has ever suggested it, but I'd really like to learn more....

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@wendyw. I had an FMT on February 28th. Mine was for recurring Cdiff. It definitely helped me. I’m not totally ok because I’m still having colon issues, but I’m in remission from that deadly Cdiff. I think the FMT saved my life. I certainly hope & pray it helps your Son.. My husband has kidney stones too & now he has one that’s too big for lithotripsy. He’s had laser by cystoscope & a lithotripsy all in the last month. Now he's facing major surgery to remove it. I’m so worried that he will get Cdiff from all the antibiotics they have given him & more to come I’m sure. I’m a believer in the FMT.

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@sandyjr

Has anyone with Crohn's had a fecal transplant with positive results? Any information would be appreciated.

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Hello @sandyjr,

We have had members post about fecal transplants. While we wait for others to post, I thought you might find this Mayo video interesting, Are you considering a fecal implant for Crohn's disease?

https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/fecal-transplants-for-ulcerative-colitis-1/
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@sandyjr

Has anyone with Crohn's had a fecal transplant with positive results? Any information would be appreciated.

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Good morning!!! I heard that fecal transplants/implants can cause death? Also that they are either causing people to be miserable if not done correctly. Don't ask me where I heard it from, I remember it specifically, because the doctor was telling me when they were talking about it that it works very well there is not very many problems with it and then I read that. I was horrified!!! Didn't really make me want to have one if I ever had too. I have Recurring C-diff apparently its going to like my body and they were talking about doing that this past time if the last drug didn't work. Not to make anyone afraid of it, but you might want to do your research!!! There may not be a lot in this post but there is a lot out there

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@sandyjr

Has anyone with Crohn's had a fecal transplant with positive results? Any information would be appreciated.

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Hi @sandyjr,

Here are some Mayo Clinic videos and more information about FMT:
– Fecal microbiota transplantation (FMT) https://www.mayoclinic.org/medical-professionals/digestive-diseases/videos/fecal-microbiota-transplantation-fmt/vid-20433518
– FMT demonstrates consistently high success rates for recurrent CDI https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/fmt-demonstrates-consistently-high-success-rates-for-recurrent-cdi/mac-20429966
– Updated IDSA guideline for treatment of Clostridium difficile infection https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/updated-idsa-guideline-for-treatment-of-clostridium-difficile-infection/mqc-20442395

I’m tagging @sandyabbey @pines @gfpp @thrasher3062 @nettecook @annapocono @oceanone @suzannedee @concernedmtnmom @tammy1pike – they’ve discussed FMT or fecal transplant on Connect, and I sincerely hope they will return to share their insights.

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@sandyjr

Has anyone with Crohn's had a fecal transplant with positive results? Any information would be appreciated.

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it saved my daughter's life--she had recurring C. Difficile that was persistent and she was only 12. Very scary and debilitating. FMT process is easy and I found it safe. Mayo Clinic is a safe place for it, but it is being done all over now. At the time we were pioneers. It is a simple and immediate fix for C. diff. I'm forever grateful.

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