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gas issues post liver transplant

Transplants | Last Active: Aug 27, 2022 | Replies (30)

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@contentandwell

@smithjim Hi Jim, and congratulations on your successful liver transplant. I had a liver transplant in September 2016 and am doing well, except for...
having gas, and I am also having problems with diarrhea — when I have one, I also have the other. I hate to ask this, but are you having diarrhea or soft stools?
I have been researching this and will try to find the sites again tomorrow. I looked up lactose intolerance and IBS. This led me to some other conditions such as IBD and crohns. What I read was that these are considered to be auto-immune conditions, and one of the causes can be immunosuppressants! I have definitely identified lactose or maybe all dairy to be a trigger for me, but I am having a problem sometimes even when I avoid these, and/or take lactaid. These problems started after I started after taking the immunosuppressants and have gotten progressively worse. It has taken me all of this time to begin narrowing down the cause.
If you also have similar problems or stomach cramps you may also have this. I do not have other symptoms such as stomach cramps unless I exercise too soon after eating anything so I am not sure if that is related, probably not.
If this sounds at all like your problems please let me know, and I will let you know what else I find out.
JK

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Replies to "@smithjim Hi Jim, and congratulations on your successful liver transplant. I had a liver transplant in..."

My bowl movements had stabilized months ago, obviously also doing immune suppressants, 7 prograph and 2 cellcepts daily along with 1 multivitamin. Just finished with my Bactrim, valcept, nexium ect.
My mornings and into the early afternoons are fairly good, gas build up more so afternoons , eve and nights.
I might need to check to see if I have some type of lactose intolerance!

I know it's now 2022 and you posted in 2019..but I had my liver transplant in January last year.
I had fluffy soft poo's for about 5months but put it down to the op. No one seemed worried until the diarrhoea started and in a very short period of time I lost 3stone and struggled standing up etc. Ended up back in Hospital for two weeks to discover that I was "allergic" or not tolerating the Mycophenolate..anti rejection pill. It was stopped and within two or three weeks I was by far much much better..has any one else had this issue.? Still have lots of smelly wind which can be uncomfy and embarrassing.
Congratulations to all with their new livers, I feel, blessed, honoured and eternally grateful to my donor for giving me another chance. I have PBC which destroyed my liver. Bless all of you, keep well...Janni1