GI Disorder and Internal Shaking

I hope you can get to the root cause.

Wow! I can relate. These sound like some of my symptoms as well. Do you by chance get weak legs? Bladder issues? All my pain and issues stay on my left side.

I get depressed with Celiac Disease and Microscopic Colitis. Our Gut is our second brain. It does what it wants to...regardless. It's messed up my Type 1 Diabetes. I was in control with my diabetes until MC came along, so now my blood sugar is sky high. I know with 3 autoimmune diseases, this will be my demise. I'm going down the same road as my father, great grandfather and great great grandfather. You can't win and minimal to no progress has been made in the diabetic realm since the 1950s to 1970s. Yea, you have devises to alarm you when you B.S is high, but many times the devises give you wrong readings. I had no control over my Type 1 diabetes.My body attacked my pancreas. Now it's attacked my Gut! What is next? I can't take it any longer!

Diabetes is the CASH COW! Why kill the Cow? Everybody makes too much money off diabetes. We are also the Golden Goose that lays the Golden Eggs! Why kill the goose? They don't want a cure! I am angry. By the way, WE ARE OUR PARENTS!

One more thing, Gut issues do cause internal shakiness. Been there, done that.I was always a shaky nervous child with a huge gigantic abdomen. Celiac disease messed up my life for decades. My parents were too consumed with my father's sickness. He died at age 50 and probably had Type 1 diabetes in WWII and the Korean War. I too was sick as a kid, but ignored.

When I'm full of gas, I do get weak legs. If I take something for the gas (Gas-X or activated charcoal) and walk around to get things moving, then the weakness goes away even when I feel like I shouldn't be walking because my legs are weak. I think something about the gas pressure must press on something to do with the legs. Either that or it's mild dehydration from too many loose stools (?) causing the leg muscles to cramp. But it feels more like just weakness. No one can explain this but I feel like we have to be our own detectives as so many digestive symptoms aren't "textbook". I hear them from others with digestive issues too so I know it's not just me. I do sometimes get bladder issues. I had SIBO at one time and the person treating me said that where the SIBO was at that time was behind the bladder so after a few bowel movements or if I would lie down on my back, the bladder pressure got significantly better. I have also had mild bladder infections but apparently that's all part of the package--low pH, leaky gut, yeast overgrowth, bladder infection. I'm taking a lot of supplements and nutrients that are helping to heal me from the inside out so to speak, but it's a long process.

After a week of continual diarrhea a couple years ago, I was diagnosed with microscopic lymphocytic colitis which my doctor said is "usually self-limited and will usually go away on its own". However, he did say I needed to take a steroid to get rid of it which I took for two months and it did. Before the colitis, I was on five different prescriptions, all digestive related. My goal was to get off all of them and I did. In the last year, I am being helped by a chiropractor dealing with nutrition (naturopathic?) and it's been a process to get well. I do take a lot of supplements and nutritional aids but I'd rather take something to help repair the problem(s) than prescriptions which "manage" symptoms. I seemed to get side affects from the medications, then another prescription to manage the side effects. I'm not against all prescriptions, but in my case I don't usually do well with most of them and felt like I was getting worse. One article I read said that a couple of the prescriptions I was taking can cause colitis. My GI specialist said they can't. I don't know who to believe but I know I was getting worse.

It does seem like we deal with our health backwards in this country and, as a whole, we take way too many medicines. Western medicine seems to deal more with symptoms than finding the root cause and dealing with that. I wish the medical community and the naturopathic community could work together better for our health. And I wish our medical insurance would pay for nutritional supplements instead of only prescription drugs.

I was hoping to be tested for SIBO, but our labs are not open during Covid. The strange thing about my issues are I only have issues on my left side. I have normal BM ( sometimes leaving my in aching pain for hours), but many times I can not finish with urination and the intestines, urinary tract and muscles on the left are in constant spasms. I soon developed internal vibrations with pins and needles through out the body, some numbness, weak legs, nerve pain. It's the strangest thing and ALL my doctors are stumped. It's so very odd to me what is going on with my body ( our bodies). I have been working with a few friends on trying to figure me out. Have you looked into Dysautonomia?

No, I've never heard of it. I just looked up a quick definition now.

Hi Nancy, there is no magical pill for Microscopic Colitis. The only thing to do is DIET! You need to find out what you can eat and what not to eat. Stay away from STEROIDS. GI Specialists give em out like candy but don't give em out to their family. They don't make any money saying it's all about the DIET, so they say take this med, take that med.

It's all about DIET! There are few and far between GI specialists who give a damn.Many don't know and will tell you anything to shut you up! It's about healing and pills aren't the answer. Try Enterolab for testing your stool. You need to know what you can and can't eat. Steroids is a NO NO in my book. Don't even get me started about GI Specialist. There isn't anything special about them.

I have the same issues on and off for over 10 years but it usually lasts a little while and goes away. However, I’ve been having an acute attack for almost 4 weeks. It feels like a panic or asthma attack, my heart races and I feel like I can’t breathe. I went to the ER in June and they did a Covid test (negative) and x-ray and EKG. The pulmonary doctor thought it was related to Gerd and reflux going up into my nose at night, because my chest X-ray was ok. My EKG was ok. But a month later this is when it started up again in mid July. I took an antibiotic and that started off horrible gastrointestinal issues and now it’s been steady for four weeks.

I get a severe tremor and shaking in my abdomen all day and night. I get a pressure on my abdomen like a huge weight . I also have what feels like severe anxiety/panic attacks several times a day, gastrointestinal issues, nausea, lack of appetite, vomiting (in the morning usually) , tingling/numbness in my left thigh, poor circulation, high blood pressure and what feels like very low pressure in the morning, arrhythmia, fluid in my ankles and lower legs, night sweats, chills.

I think it’s vagus nerve related. I also have a history of different autoimmune issues. I don’t know how these are all related other than the gut /vagus nerve connection inflammation in the system. I also think that because for the last few weeks I haven’t been really digesting food very well probably not absorbing enough minerals and vitamins The lack of sleep is making it worse. A few days ago I got a prescription for Xanax and that’s the only thing that is helping me to sleep. It seems to ease the tremors a bit. I also started taking probiotics about a week ago. I’m getting tested for a pheochromocytoma soon. My ultrasound looks ok other than fatty liver disease and a hemangioma on my liver. I had my gallbladder removed 5 years ago.

I really hope you get answers and I would love to hear the results because I’ve been unable to find a doctor or the right kind of tests to get to explore the vagus nerve issue and rule that out.