GI Disorder and Internal Shaking

Posted by gigiraj @gigiraj, Feb 15, 2019

Hi all. I'm a 21 year old South Asian female and I have been having GI issues for about five years–mainly along the lines of constipation. I do have bowel movements every day but it takes a long time & I am rarely fully cleared out. These GI issues are always accompanied by other health issues (gas, pressure in head, etc). Recently, some scary new conditions have manifested: In the past few weeks, there have been times where my heart starts beating wildly and very fast. Sometimes, when I'm tired and constipated, my entire body feels like its vibrating internally; the shakes aren't visible but it feels like all my muscles are quivering. At this point, I feel a constant shaking/quivering within my body, especially in my heart cavity.

I have had TWO EKG's and both came back normal. All lab tests for diabetes, hypertension, cholesterol, etc came back within normal limits. I am very concerned about this internal shaking. My dad says he found something about how GI disorders can impact muscoskeletal system and since the heart is a muscle, it's contracting and being affected. But I wanted to know if anyone here can help!!!!!!! If anyone knows anything at all please please please let me know!!!!!

Hello everyone. I see this post has been quiet for several months, and I'm going to try to revive it, because I find myself at the place some of you were at 6 months to a year ago.

My diagnosis for now is IBS-C and non-alcoholic day liver, with asymptomatic (minor) gastritis. Like most people in this thread, my doctors have found nothing to cause my symptoms. Abdominal ultrasound found my fatty liver, upper GI scope found my gastritis. Otherwise, my upper GI scope and colonoscopy were perfectly clear.

I've had blood work done three times in the last year. My nurse practitioner ordered a full spectrum of tests in November 2019. She said she wishes her healthy patients blood results were as perfect as mine. So, I still have no answers.

I am hopeful that someone In this thread has received a diagnosis that makes some sense. The internal vibrations started in November 2019, and were sporadic…I'd have them for a few days and then they'd go away for a couple weeks. Currently I have had them for over a week, with no indication of them stopping this time. They mainly come at night (I'm posting this at 4:45am after waking up at 3am).

i hope everyone finds relief from their symptoms.
Take care everyone.

@gigiraj I PMed you as well.

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@tazdvl

Hello everyone. I see this post has been quiet for several months, and I'm going to try to revive it, because I find myself at the place some of you were at 6 months to a year ago.

My diagnosis for now is IBS-C and non-alcoholic day liver, with asymptomatic (minor) gastritis. Like most people in this thread, my doctors have found nothing to cause my symptoms. Abdominal ultrasound found my fatty liver, upper GI scope found my gastritis. Otherwise, my upper GI scope and colonoscopy were perfectly clear.

I've had blood work done three times in the last year. My nurse practitioner ordered a full spectrum of tests in November 2019. She said she wishes her healthy patients blood results were as perfect as mine. So, I still have no answers.

I am hopeful that someone In this thread has received a diagnosis that makes some sense. The internal vibrations started in November 2019, and were sporadic…I'd have them for a few days and then they'd go away for a couple weeks. Currently I have had them for over a week, with no indication of them stopping this time. They mainly come at night (I'm posting this at 4:45am after waking up at 3am).

i hope everyone finds relief from their symptoms.
Take care everyone.

@gigiraj I PMed you as well.

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Hi all-
Regarding the internal shaking, found a similar support site for neuropathy where many people complain of internal vibrating at night which may be "small fiber neuropothy" (SFN), a nerve disorder. These fibers small fibers (in your skin?) help you feel pain and thermal sensations plus help regulate your heart rate and digestion. Hard to diagnose, requires a skin biopsy. Online reading says that SFN is a symptom, the cure it is to find the cause-diabetes, pre-diabetes, Celiac, Lymes. others? I now have read about Neuronopathy or non-length dependent small fiber neuropathy which may be a closer fit to me (?). Caused by "autoimmune, nutritional, and toxic conditions…the nerve tips farthest from the seat of circulation would be more vulnerable to metabolic disruptions, simply because oxygen/nutrients have to travel more to get there, and more effort is needed to get rid of waste buildup." (not sure where I found this info). So for you, as well as for me, an unhealthy liver is involved (waste removal). I have Celiac (autoimmune), have nutritional deficiencies (because of Celiac) and all this started when I was exposed to industrial demolition dust during construction at work (toxic?). During my joy ride, I was also diagnosed with sleep apnea and after getting my CPAP, found vibrations left for about 2 months (getting more oxygen?). I may be way off base, just really trying to connect the dots to get rid of this horrible vibrating. Been suffering for 5 years.

For liver issues, lymphatic support helped me somewhat. Google "dry brushing", try rebounding/jumping on mini trampoline, exercise, soak in a tub with epsom salts. The lymphatic system is your internal garbage disposal systen so anything to get that moving may help (?).

For those of you with gastro/constipation issues, have you been tested for small intestinal bacterial overgrowth (SIBO)? Fairly common. Gastro doc can give you a breath test.

Best of luck!

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@rjk

Hi all-
Regarding the internal shaking, found a similar support site for neuropathy where many people complain of internal vibrating at night which may be "small fiber neuropothy" (SFN), a nerve disorder. These fibers small fibers (in your skin?) help you feel pain and thermal sensations plus help regulate your heart rate and digestion. Hard to diagnose, requires a skin biopsy. Online reading says that SFN is a symptom, the cure it is to find the cause-diabetes, pre-diabetes, Celiac, Lymes. others? I now have read about Neuronopathy or non-length dependent small fiber neuropathy which may be a closer fit to me (?). Caused by "autoimmune, nutritional, and toxic conditions…the nerve tips farthest from the seat of circulation would be more vulnerable to metabolic disruptions, simply because oxygen/nutrients have to travel more to get there, and more effort is needed to get rid of waste buildup." (not sure where I found this info). So for you, as well as for me, an unhealthy liver is involved (waste removal). I have Celiac (autoimmune), have nutritional deficiencies (because of Celiac) and all this started when I was exposed to industrial demolition dust during construction at work (toxic?). During my joy ride, I was also diagnosed with sleep apnea and after getting my CPAP, found vibrations left for about 2 months (getting more oxygen?). I may be way off base, just really trying to connect the dots to get rid of this horrible vibrating. Been suffering for 5 years.

For liver issues, lymphatic support helped me somewhat. Google "dry brushing", try rebounding/jumping on mini trampoline, exercise, soak in a tub with epsom salts. The lymphatic system is your internal garbage disposal systen so anything to get that moving may help (?).

For those of you with gastro/constipation issues, have you been tested for small intestinal bacterial overgrowth (SIBO)? Fairly common. Gastro doc can give you a breath test.

Best of luck!

Jump to this post

Wow @rjk this is really helpful! Just read your post from October 15th as well and the news about the diet is heartening, especially with such intense symptoms. I should try that out and see what happens. Just to reiterate for everyone—my heart is normal and I don't particularly get palpitations anymore. I've started moving around & getting more physical activity in. But the internal vibrations and finger twitching (which I posted about in another group) are still very much there. Parasthesia in my arms showed up again a few times in December, making it hard for me to sleep.

Just last week, I was barely able to sleep because I had internal vibrations all over my body….usually they have just been confined to my fingers. I was able to sleep just fine last night without them bothering me so I suspect it may have something to do with my period, last week, and the gas build-up that usually comes with that. The SFN sounds very plausible though. Literally all my problems seem to connect to my gut health, just like yours. I got a second blood test that tested my liver last week and will be seeing the results tomorrow—will update if it's abnormal.

Will look into SIBO!

(Just FYI—I'm trying to share as much information about my condition as I can so that people suffering similarly can see what matches. Sorry if anything is TMI)

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Hi all, thought I would give an update on a diagnosis I got in September of potentially Restless Leg Syndrome. I don't know if it has anything to do with the internal vibrating or not……for me, the relationship seems to be through parasthesia, where I need to move my arms because it feels like they're convulsing. The internal vibrations certainly heighten that feeling. But more often than not, internal vibrations are just the shakes or a crawling feeling so I really don't know. But RLS is the first concrete diagnosis I've gotten

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One more thing y'all. Our gut is our second brain. My troublesome spot is "BRAIN FOG." I had it so bad that I was putting laundry in the fridge, couldn't find things that I laid down, and my brain was crazy. I'm a RN and didn't realize this. I was thinking another autoimmune response disease. My father had the same thing before he passed at age 50. He was a Type 1 diabetic (another autoimmune disease) and I too have Type 1 diabetes. Then his gut started and GI specialists didn't know what to do. They still don't know what to do. I have zero confidence in GI specialists. Medical schools are not teaching something of dire importance – Microscopic Colitis.This is a difficult disease to deal with and people are suffering.

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@oakbourne

Thanks, JK, plus the hospital trying to milk me for all I got. This is Beaufort, SC, and they have always been notorious for doing this evil.

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Oh, don't even talk about Beaufort, SC, hospital. I had a diabetic low in Beaufort, and taken to the hospital and treated like an alcoholic. They are beyond bad! I was wearing a Dexcom, information stating I was a diabetic and they did all these tests to pad their wallet. They performed an ethanol test and treated me like an alcoholic.I refused to pay the bill and will never pay it.Do what they may, but they will never see a dime from me. SCAM HOSPITAL!

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H all-
In case this helps, my arms and hands used to get pins and needles and fall asleep in a very scary way (zero feeling at all). My doc told me I had "Saturday Night Palsy" and to teach myself to sleep with my arms straight. I have and yes, the falling asleep stopped but the vibrations in my hands continue. Hand vibrations now seem physical, not sure (?). I have a heart monitor thing that requires you to put two fingers on a device and when I am vibrating, it says it cannot read due to disruptions. I am sure those 'disruptions' are my vibrating figures, even though I can't see my hands shaking. I have the heart monitor because of the double beats, missed beats and flopping feeling that happens in my chest. All heart work ups come up with nothing, good news.

I also had a sleep study to test for restless leg. No legs movements in legs but did have sleep apnea which my heart doc can't believe as I am very thin. CPAP helps though. Also, sleep doc thought my ferritin (stored iron) was low and seems that eating foods high in iron might be helping me sleep better (?). I force myself to eat liver (yuk). I think liver (biotin) may also be helping my super thin hair grow back too. Connection?

I am all in for these low cost solutions but still obsessed with 'why'?
rjk

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@gigiraj

Wow @rjk this is really helpful! Just read your post from October 15th as well and the news about the diet is heartening, especially with such intense symptoms. I should try that out and see what happens. Just to reiterate for everyone—my heart is normal and I don't particularly get palpitations anymore. I've started moving around & getting more physical activity in. But the internal vibrations and finger twitching (which I posted about in another group) are still very much there. Parasthesia in my arms showed up again a few times in December, making it hard for me to sleep.

Just last week, I was barely able to sleep because I had internal vibrations all over my body….usually they have just been confined to my fingers. I was able to sleep just fine last night without them bothering me so I suspect it may have something to do with my period, last week, and the gas build-up that usually comes with that. The SFN sounds very plausible though. Literally all my problems seem to connect to my gut health, just like yours. I got a second blood test that tested my liver last week and will be seeing the results tomorrow—will update if it's abnormal.

Will look into SIBO!

(Just FYI—I'm trying to share as much information about my condition as I can so that people suffering similarly can see what matches. Sorry if anything is TMI)

Jump to this post

"I have bowel issues, my legs/arms can sometimes feel heavy/odd, and sometimes I have pain [more like soreness] in my lower back/hips when I've eaten but am constipated." You literally have the exact same problems I'm struggling with that no one can find an explanation for. About 2 years ago I had troubles with gagging all the time and they diagnosed a small hiatal hernia, for that I took PPIs then about a year ago in May 2019 I noticed a sudden change in stool it took on every form or colour imaginable and I had a lot of pain in my epigastric area. I did multiple blood tests which only showed elevated levels of bilirubin but still within non dangerous levels. I did CT scan of abdomen and thorax which were both normal. But yea for a year now I am super fatigued all the time, my legs and upper arms can feel really strange (like a mix of crawling, heaviness, weakness, creepy) and I also feel weird/sore around my kidneys in the back but I can also feel it on 2 points from the front of my body (where my kidneys would be located).

I do not think Restless legs was the correct diagnosis unfortunately. Your case seems so similar to mine and I believe it is something in the gut. Just yesterday by chance I discovered that after oversaturating myself with vitamin C, which leads to watery diarrhea made me feel temporarily a lot better. I'm theorizing that there could be a bacteria or fungus in my gut that releases toxins that produce these symptoms in me. And the watery diarrhea acted as a kind of gut cleanse for a few hours which washed away the toxins for a period of a few hours.

You could try the experiment yourself if you have symptoms, if you experience the same relief it could point us both in the right direction. I drank half a glass of water mixed with a teaspoon of ascorbic soda every half hour until I have to rush to the toilet (Your guts will rumble a lot). It usually takes like 4 glasses and you'll end up an hour on the toilet.

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Also want to add that you should look into SIBO, I just read it in the post above and it makes a lot of sense. I'm gonna mention it to my doctor too.

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Yes, I had SIBO fooorrrrreeevvvvveeer but finally kicked it.

Was re-reading some old articles and remembered that a B12 deficiency can cause neurological vibrating sensations. I had been on B12 with folate and, looking back, that might have helped (?).

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Thank you all for returning to this thread and posting your current status.

@rjk I found a similar article about B12 and have been supplementing with B complex that has 100% of my daily value. I also found an article that referenced magnesium deficiency as a possible cause. I have also added a magnesium supplement to my daily regimen. I've been taking it in the morning with food. Don't take it on an empty stomach. The article discussed several benefits to a magnesium supplement, including aiding digestion, reducing muscle spasms, and improving neurological symptoms. My mother used to take magnesium when she got leg cramps at night.

Tonight my vibrations were pretty strong at bed time, so I took a magnesium to see if it helped. If it does, I'm going to start taking it at night to help me sleep without the vibrations waking me up. An hour later I can still feel the vibrations, so I'm not very hopeful at this point.

Like many of you, all of my symptoms stem from my gut. Every symptom I have correlates to some sort of pressure or other discomfort in my abdomin. I even get pain in my right shoulder that is radiating from my abdomin, as it accompanies right side abdominal pressure, and goes away when the abdominal pressure goes away.

Something else that is notable….I discontinued a diuretic (Chlorthalidone) and the potassium supplement that goes with it last September. I had been taking that medication for approximately 6 months when my symptoms appeared. Some of my symptoms have either disappeared or been reduced since I stopped taking it. I believe that some of my symptoms were side effects of the drug, i also wonder if my continued symptoms are lingering damage done by the medication.

Again, thank you all for your comments. Take care.

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tazdvl-Yeah, I take magnesium chelate (300 mg), but not sure if it is helping or not. I used to take magnesium oxide for constipation. I know magnesium is supposed to help you sleep and also helps with migraines. I forgot about the sleep part. I take it in the morning after reading your post will switch that to bedtime to see if it helps. Thx! ­čÖé

Another tip is supporting lymphatic system, helps get toxins out of body. My vibrations were super severe when my workplace was under construction and after our building had a fire so I really think the vibrations, for me, also have something to do with toxins. The lymphatic stuff helped – dry brushing, soaking in epsom salt bath, jumping on a mini trampoline, exercise (walking and really swinging your arms) and toe tapping. The toe tapping really helped when the vibrations started in my feet and would travel up and down my body all night. I did it right before bed. Here's a link but lots of videos: https://heartdrumbeat.com/toe-tapping/.
The dry brushing is also supposed to help remove cellulite but can't say I see a difference (rats).

I figure, none of this stuff can hurt me, so why not try?

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