Any good results from taking Amikacin?? and what were side effects?

@windwalker Hi Terri! I really don't think my mom and aunt lived out their normal life span. They were otherwise very healthy. No other issues. We all had a similar problem that we dont usually run a temp. If we should..its very low grade. Which means Docs dont think you are sick! My mom would actually get pneumonia all the time. No temp. A year or so before she died, she was in the hospital actually dying. Her Minister came in and prayed over her..she had lost continence and her awful Doc that I hated had resigned that she was dying. I was crazy!!! I tried to get that Doc to listen to me that she needed an antibiotic.
No way. I had to make a lot of noise and demanded a Pulmonologist to examine her. I told him that we dont run temps..she gets pneumonia with no temp. I got nasty looks..but they grudgingly took her for an xray. Short time later they come in..Doc looks at me and said she had pneumonia..puts her on IV antibiotics. By the end of the day she was back talking and laughing.
This is definitely an immune problem!! My Mom lived in Central Florida, I'm in Alabama so I wasn't close enough to fight people every day. Also, she had married a horrible man after my Dad died from lung cancer. He controlled everything and was sick of her..she couldnt cook anymore and was always sick. He insisted she see this bad Doc. She lived with constant stress with him, and developed anxiety. The doc put her on adavan or something that wacked her out. She lost her appetite and just wanted to sleep. That was the end. No food..heavy drugs. I questioned her husband what drugs she was taking and got hell for it. Next I knew she was going into hospice. We rushed there and 3 days later she was gone. I've never been able to shake the feeling that she was "put down" . There's even more awful stuff that I dont have time to go into, but that was how she died. She should have lived a lot longer..

@windwalker one more thing about my Mom..before she remarried, she had a Pulmonologist!!! who diagnosed her with copd and fibrotic lung disease. She had also had part of a lobe removed because she had been coughing so hard she ruptured and was hemmoraging. She had to be transfused.

Hi @angiejohnson Hi Try to find Strepfen, they are great, I think you can get them online, and rinse your mouth out after nebulising, hope it helps.

I have been on Arikayce for 4-5 weeks. My doc decreased my use to every other day due to my severe loss of voice, as I am a psychotherapist and most definitely need the voice! I lost the voice for the first 3 weeks, then it came back for 1 week. Now gone again. Other than that, I have no side effects. I am taking a great probiotic, after trying several brands (Jarro dophilus). I also have been taking NAC after seeing others who have success regaining energy, as well as other potential benefits. In addition to Arikayce I take Ethambutol and Azithromycin. I could not tolerate Rifampin.

I just started the Amikacin and my nurse advised me to do my treatments at night before bed. That way the vocal chords are rested for several hours vs doing treatment in morning then talking all day. She also suggested to gargle and rinse with warm water to remove the residue of the medicine from throat and vocal chords as it becomes sticky.