C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
Interested in more discussions like this? Go to the Digestive Health Support Group.
This site is so difficult to navigate. Why are new posts at the end, requiring us to scroll and scroll to see new entries? I am not a computer novice and rarely enounter sites that are so frustrating to use.
One word of caution with the treatment for C-Diff. If you are continuous getting re-infected with it and treated for it with the antibiotics, there is a backlash that your body pays for. The antibiotics taken to rid you of C-diff also causes TINNITUS....permanently. I took more than 10 weeks of vancomycin to rid of the c-diff and subsequently got the noise in my ears then on. In fact I have two different pitches that are constant and will never go away. They are the cause of the original treatment of complications of surgery and then the super infection -sepsis that followed (treated with 4 antibiotics). That is why I have hearing loss, tinnitus, hyperacusis, vertigo, and an assortment of other GI problems. BEWARE of OTOTOXICITY.
I would also add that I had it also and I'm still on antibiotics for another reason but to keep cdif from.returning I'm on a supliment recommend by my doctor of Lactobacillus Acidophilus as that keeps your good gut bacteria balenced.
Dana
When you have various problems and new infections as i did , i turned to the fecal transplant and THANK GOD it worked,, it gives you a fresh start with good bacteria in your system. Process is just like a colonoscopy and insurances cover it. Hope it can help anyone who is interested .
Your body never recovers, ever, that I have been told. What happens the C-diff lays dormant in your system until another bacteria comes around that it wants to come out and play with per-say. I had C-diff for almost a year. It was the worst year of my life all the way around. It came back when I had to have stitches over my eye from a fall. I have falls like they are going out of style. I was given Keflex and that is one antibiotic that brings C-diff back out of its hole. Put that ion the list. Good luck everyone!!
Thank you for sharing your story and glad you are out of the woods from c Diff. If you don’t mind me asking after how long you needed antibiotic for your eyes that c Diff came back. Was it within a year?
Thank you for sharing. And now that you are on antibiotic for another reason your c Diff hasn’t returned right?
@mhi No, I had cdif jun of 2019 and due to a virus that plagues me called parvo b19 I've been on antibiotics for about a year now. No cdif issues at all. Praise God and I agree with the other person that I wouldn't wish that on my worst enemy. I also was told about the fecil transplant but didn't need it so far. I was treated at Mayo in Phoenix and I understand they have been having success with the transplant.
Have a blessed day
Dana
@mhi also the antibiotics I'm on now are Doxycycline Monohydrate 200 mg and Dapsone 100 mg both per day I also take Amoxicillin every 6 months prior to my dental cleaning .
It is amazing to hear that your c Diff didn’t come back after once again you were exposed to antibiotic! Stay well wishing you all the best