C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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@serenityva So happy to hear you were healthy on your trip. Now let's hope you are well. Are you taking Florastor or some type of probiotic with S. Boulardii in it? I think that's really helping me.
THank you @pines for your response to my posting. I am taking vancomyacin . I am washing my hands constantly. What has surprised me is how little information there is about how to protect other people from catching it. I have a nurse practitioner friend who has worked with thousands of hospitalized patients with C.Diff. she says what you said about counters and light switches and washig hands. She also added that from now going forward I should never let a person eat from my plate or use my utensil (I guess because the spores can lie dormant in a host). Did you know that the EPA has a list of products that they approve as effective against C.Diff? I believe they work faster than bleach and water. Again thank you for your response.
Pines@pines...yes, I am taking Florastor 2 per day...I started that way back when I saw you post it...grateful for that! Just feel like I am on pins and needles waiting...like it is always lurking in the background...
I was told bleach was the only thing to kill spores. We are contagious until maybe about 6 days after we started on antibiotics. I always kept rubber gloves in the bathroom for when I went and kept people out of the house for a week. This is just what I was told. Good luck to you.
Hi,I'm taking Budesonide,Cortiment.9mg tablet.(c-diff is gone...dealing with colitis).Good luck.
Stay away from antibiotics. It will only get worse if you have to use them.
I was treated at Mayo for Cdiff. Fecal transplant! Same procedure as colonoscopy! Very easy and I highly recommend this treatment! Have been good for 6 months now . Success rate is in the high 90’s percentile
It seems like I have back issues when I have bad stomach cramping. I had an ischemic colon a couple of years ago. My stomach was never the same. Eight months after that I had a severe case of Cdiff. Actually 4 relapses, a trip to the hospital by ambulance, & finally after failing all the meds, I had an FMT. That was a year ago. I still can’t get my bowels & stomach to any kind of normal. I’ll be fairly ok for about 2 weeks & then for no apparent reason I’ll get cramps bad enough to almost cause me too pass out. Then the next day my muscles in my thighs feel like I’ve run a mile. Absolutely my back is like I’ve hurt it. Has anyone else suffered with this maybe after Cdiff ?
Hi @sandyabbey, I know that you have posted to this discussion previously, but you will see that I have added your new discussion to this post to benefit you as well as other members looking for relief after multiple treatments and fecal transplants. In fact, one of our newer members @judik just posted about his FMT above you. @losthope, @bluebanana, @pines, @annapocono, @plm2019 and @skolotilin have all dealt with C. diff.
You might also be interested in @skolotilin's post about C.diff and neck pain. You can follow that discussion here.
https://connect.mayoclinic.org/discussion/c-diff-and-neck-pain/
Sandy, are you having constant back pain or does it only come around when you have a bout of stomach cramping? Are you currently on any medications for it?
This still is my mantra to this day. Anyone who wants to live through this viral pandemic will need to keep their liver, spleen, thyroid, and pancreas working diligently to keep these bugs under control. Using prebiotics, biotics, and postbiotics in various forms, be it in clean food, supplements, green food, and water will help your body fight the good fight to destroy and stave off this ongoing assault. Listen to you body, learn what works and does not work. Use your intelligence to map out a plan for yourself in what helps you stay strong. Write it down. What works for you may not work for your immediate family because you are unique and have a medical history specific to your exposures and experiences. Your body remembers and seeks to find the perfect equilibrium - that is why YOU need to make the decisions, not someone else. Do your homework, trial and error will help you set your guidelines. We are here to let you know what has worked for us in our journeys but only YOU can make the decision.