1. < MAC & Bronchiectasis

Diagnosed with pseudomonas aeruginosa infection in my lungs

Posted by smokeycat442 @smokeycat442, Jan 3, 2019

I haven't had any success with many antibiotics including 3 weeks on a IV of Zosyn! Does anybody have any suggestions? What about the antibiotic Ceftazidime? I'm sure that this is one antibiotic that I have not been prescribed by my doctor. Any feedback would be greatly appreciated! Thanks!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Mentor
Sue, Volunteer Mentor | @sueinmn | Dec 12, 2020
In reply to @rits "Thanks for your response Sue. I am not very good at finding old discussions (this one..." + (show)
@rits

Thanks for your response Sue. I am not very good at finding old discussions (this one began in Jan 2019) so it iots of work for me to find my post and check for replies. I appreciate you finding it and responding.

Until the Oregon study is completed, we won't know for sure if saline actually kills bacteria in the lung as opposed to in a petri dish. I believe they are recruiting so it's really at an early stage. My doctor, and others, have said that it is not a treatment for killing bacteria. However, clearing sputum out of airways is certainly beneficial.

I am very glad that you are doing well. I believe it's a year since you stopped the antibiotics?

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Yes, one year next week. Pulmonologist saw me this week and she is happy with the sound of my lungs and general progress, but laughed when I complained about lack of energy and told me that I am doing pretty well considering age and lungs. She suggested chasing toddlers might be the cause.
Sue

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Erika | @erikas | Dec 14, 2020
In reply to @megan123 "Hi Erika...there are many of us that also have MAC and bronchiectasis and get pseudo,and dialogue..." + (show)
@megan123

Hi Erika...there are many of us that also have MAC and bronchiectasis and get pseudo,and dialogue about it in this group....are you keeping in both groups then?

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@megan123 It sounds like this discussion would be helpful in both groups. Yes, due to your question I added it to both groups just now. Thank you for the question/suggestion.

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Erika | @erikas | Dec 16, 2020
In reply to @r0nald "I believe the nigella sativa (Black Seed) may assist along with Hemp and palmitoylethanolamide" + (show)
@r0nald

I believe the nigella sativa (Black Seed) may assist along with Hemp and palmitoylethanolamide

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@r0nald Welcome to Mayo Clinic Connect. May I ask what brings you to connect? I may be able to help connect you with members like you.

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2 replies
tubaplayer | @tubaplayer | Dec 16, 2020

I seen Post for mayo Clinic Interferon

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r0nald | @r0nald | Dec 16, 2020
In reply to @erikas "@r0nald Welcome to Mayo Clinic Connect. May I ask what brings you to connect? I may..." + (show)
@erikas

@r0nald Welcome to Mayo Clinic Connect. May I ask what brings you to connect? I may be able to help connect you with members like you.

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I am a retired MD and have worked with many infectious diseases, I have been following closely Mayo clinics integrated medicine, which I believe should be adhered to by all Doctors.

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rits | @rits | Jan 4, 2021
In reply to @erikas "@rits You have pseudomonas and you are looking for treatment information. You will notice that I..." + (show)
@erikas

@rits You have pseudomonas and you are looking for treatment information.

You will notice that I moved your question, "Treatment for pseudomonas" into a discussion where members are already discussing this topic. I did this so you could more quickly connect in order to have your questions answered. I encourage you to scroll back through the comments to find previously shared suggestions as well.

May I ask if you have considered getting a second opinion to see if their treatment recommendations are similar?

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Erika, I've posted my question again in the MAC group. I don't follow this group and I don't believe that the people I am trying to reach belong here either. It took me 3 days to find my message and I didn't get the response I had hoped to receive, Please leave it in MAC. Thanks and happy new year.

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Nancy C | @nac1 | Nov 12, 2021
In reply to @rits "It took me forever to find this and I wondered and wondered why it wasn't posted..." + (show)
@rits

It took me forever to find this and I wondered and wondered why it wasn't posted so I'm glad that I finally found your post. I had to go into my profile to see if I actually wrote and posted or was losing my mind. Lol.

As I said I did search and found the previous replies but I didn't find them helpful or I wouldn't have posted. I know what the treatments are and I am fortunate to being able to be treated by a top expert in the field of lung organisms, Pamela McShane at Tyler, Tx. She got rid of my MAC in 2 months and we have an amazing rapport. My general pulmonogist at the U of Chicago defers to Dr McShane re bacteria. But thanks for the suggestion.

What I was looking for was input from other patients, e.g. Terri, who recently stopped treatment which she took for years due to side effects.

All is good. I will discuss it with Dr McShane in a few weeks and ask her why she doesn't want to treat immediately which is what she did with MAC.

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Is Dr. McShane with a hospital or group? Tyler would be close for me since I live in Louisiana.

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1 reply
rits | @rits | Nov 12, 2021
In reply to @nac1 "Is Dr. McShane with a hospital or group? Tyler would be close for me since I..." + (show)
@nac1

Is Dr. McShane with a hospital or group? Tyler would be close for me since I live in Louisiana.

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Dr Mcshane is at Tyler.

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feralgodmother | @feralgodmother | Oct 25, 2022

I have also been diagnosed with Pseudomonas Aeruginosa back in Jan.2022. I am sorry to say I only know the name of the medication I am currently on. I have a nebulizer for use with saline then followed by Tobramycin.
Originally I was given a tablet that was maybe Levaquin that had rupture of tendons as a side effect. They eventually realized I had ruptured tendons so I couldn't take that.
Then I went on the IV medication which helped a lot. At some point they stopped that and replaced it with the nebulized Tobramycin. I continue on Tobramycin.

I wish I could help both of us! May you be safe for many years to come.

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feralgodmother | @feralgodmother | Oct 25, 2022
In reply to @erikas "@r0nald Welcome to Mayo Clinic Connect. May I ask what brings you to connect? I may..." + (show)
@erikas

@r0nald Welcome to Mayo Clinic Connect. May I ask what brings you to connect? I may be able to help connect you with members like you.

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A friend of mine here in Oregon who is an amazing herbal self taught healer. She swears by Oregon Grape Bark as a tea.

I want to try it but need someone to find me some.

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