PMR - Decreased prednisone and pain returned

To all that suffer from PMR think positive. This is what I mean I am almost 78 PMR came on 2 years ago very depressing when it props up then as time went on I learnt to live with it. I told myself I'll be darned if this is going to get the best of me. Now I do gym work 4 days a week, this time of the year I down hill ski, summer time I still take trips on my motorcycle. Active you might say but believe me it take my mind off the discomfort to the point that at the end of the day I am amazed on how good I feel & then of course the next morning it starts all over again. The big secret is keep active volunteer at the hospital or something I myself I am with our local police dept. for the last 12 years. KEEP MOVING

Agree completely ! I volunteer at the local Nature Center 4 hrs every Thursday, 2 hrs weekly at library book store, go to a book club once a week, and go outdoors as much as possible with Lily, dog. Cannot play tennis or pickleball any more, because I relied a great deal on fast feet, however this month starting back to the gym for at least 3 days per week. Keep it up and stay happy.

@noosat1 and @rolandhp You two are such an inspiration with your “getting on with life” attitude! As soon as I can, I need to get back to all my volunteering. It makes such a difference! Thank you, Becky

I am pleased for you. I am in a hilltop town in Sisily and having a job with the steps and hills but doing it slowly My husband Ainslie is very patient with me and we are having a grand time. I come back to the hotel and put my hot pad on Off again soon have to get up these stone steps to the restaurant and some good Sisillian food and wine. It am not letting it stop me but it sure slows me down. Beryl

Hi @beryl, I notice that you mention having a difficult time going up steps...is this from the Prednisone or the PMR? I’m finding it quite hard to get up stairs as well and not sure if it’s because I’m resting too much and should be pushing myself more!! Are you still taking Prednisone? Enjoy yourself in Sicily!!

Sorry put an s instead of a c Beryl

Beryl, I too find stairs (steps) difficult.I am wondering if the problem is that for so many months I have been very sedentary. Also I think it is the disease because when not taking the prednisone, lifting my legs, even getting in and out of the car and bathtub, is more painful and difficult

Hi Noosat1 stairs put more pressure on your legs and of course hills Cold makes your muscles tight therefore pulls on the tendons. Don’t now how to put it any other way. Beryl

Glad you are enjoying Sicily. I, with my daughter, plan to go on a trip somewhere, considering options, this year. I am determined to be in condition good enough to go. One of my great pleasures of the day is to have a shower as hot as I can stand it, with it aiming for my lower back and thighs most of the time. While under it, I bend and stretch. I believe it really helps to give more flexibility. To morrow plan on taking Lily for nail cutting then a trip to the park to let her run wild, then go to gym. and pick up application and look at classes.
So glad you have a patient and loving hysband. A support "group" really helps. 🙂
Maggie

Hi Noosat1 I think most people with PMR effecting their legs would say it is the PMR......but I have come across that question before ......so I think we are all different .......but for me it is PMR.....it is good for you to move around but also have to be careful not to over do things and make it flair up ......which I have a bit on my weekend in a Sicilian hilltop town called Rasusa.....but I don't regret it for one minute .....amazing buildings so old .....being English and my husband with an English Mum we miss all that in the USA.......I have just picked a lemon from the garden .....that's the sort of thing I love to do......Beryl