PMR - Decreased prednisone and pain returned

Posted by alan bruce @alanbruce, Dec 29, 2018

I was at 2mg for 6 weeks of prednisone and decided go down to 1 1/2 and after 2 weeks I started to have pain in my shoulders. Will 1/2 a mg make a that sort of difference. I have been on prednisone for 18 months and have gone up and down before… Any recommendation on what to increase the predisone to.

@noosat1

Good advice Roland. I find since I have reduced to 7.5mg, split dosage, that I fell discomfit in my legs in early hours of morning. However, to me it is not pain whereas to someone else it may be. I just "zone out" until I go back to sleep for a few hours. I do not want the ill effects of the prednisone. I am, somewhat impatiently, looking forward to reducing the dosage.

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Well noosat no-one really enjoys taking any type of medication but lets face it we need medication to enjoy some quality of life. Prednisone at a low dose is not to bad yes there could be side effects but overall is isn't to bad. Yes try reducing at a slow rate & if it doesn't work up it. As I had said on one of my replies keep active it helps take your mind off the discomforting pain.

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@noosat1

Good advice Roland. I find since I have reduced to 7.5mg, split dosage, that I fell discomfit in my legs in early hours of morning. However, to me it is not pain whereas to someone else it may be. I just "zone out" until I go back to sleep for a few hours. I do not want the ill effects of the prednisone. I am, somewhat impatiently, looking forward to reducing the dosage.

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I have found that using any pain medication stopping or reducing may cause leg cramps. I had to quit pain meds. I could take the leg pain while I waited for refill. I don't wa not nt this pain
Just me. I know most NEED the pain meds. I am trying treadmill and healthy diet. Again, just me.

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@johnbishop

That's good news. Thanks for the update @noosat1!

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Hi John, Went to MD yesterday. I had been on 7.5mg (self imposed) for one week. My SED rate has gone from 57 to 26. Advice was to stay at this level for at least another week, preferably 2 weeks befoe trying to lessen dosage. He was pleased with SED, but wants it to go below 20. When trying to drop dosage, If I feel pain to go back up again. Cheers, hope you are well.

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@noosat1

Hi John, Went to MD yesterday. I had been on 7.5mg (self imposed) for one week. My SED rate has gone from 57 to 26. Advice was to stay at this level for at least another week, preferably 2 weeks befoe trying to lessen dosage. He was pleased with SED, but wants it to go below 20. When trying to drop dosage, If I feel pain to go back up again. Cheers, hope you are well.

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Very good to hear that you are dong well…..do as you are told and don't get too impatient …….Beryl

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@noosat1

Hi John, Went to MD yesterday. I had been on 7.5mg (self imposed) for one week. My SED rate has gone from 57 to 26. Advice was to stay at this level for at least another week, preferably 2 weeks befoe trying to lessen dosage. He was pleased with SED, but wants it to go below 20. When trying to drop dosage, If I feel pain to go back up again. Cheers, hope you are well.

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@noosat1, I'm with @beryl. Glad to hear you are doing well. Patience is important ☺ Keep it up!

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@johnbishop

@noosat1, I'm with @beryl. Glad to hear you are doing well. Patience is important ☺ Keep it up!

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Thanks so much for all the encouragment

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@johnbishop

@noosat1, I'm with @beryl. Glad to hear you are doing well. Patience is important ☺ Keep it up!

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Forgot to add, M.D. thinks it a very good Idea to join gym. He knows they have special classes to help with flexibility and strength for people with physical problems. He said that I should not think of trying treadmill until my muscles have recovered some of the initial strength. Although he practices "family medicine," his specialities are sport medicine and pain management. I started going to him over 15 years ago because of shoulder overuse pain. He starts with good diet and exercise. I asked him about going to a rheumatologist. He said he would recommend one if that is what I want to do, but that he does have patients with PMR. I'm staying with him at this time.

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