Primary Biliary Cholangitis and Autoimmune Hepatitis

Posted by mahdi123 @mahdi123, Dec 16, 2018

Hi this is Mahdi

Interested in more discussions like this? Go to the Transplants Support Group.

@foustr68

Ursodiol 300 mg. 1500 mg per day

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@foustr68, I have had you on my mind recently. Today I had my own routine labs drawn and I am waiting to see the results - always a time of anxiety for me!
I lived with a liver disease for nearly 9 years prior to a transplant, and I remember the fear and the feeling of aloneness. I also fought a whole army of well meaning friends and family who offered well intentioned, but potentially harmful cures for me. I would like to offer my support during this journey. Have you seen your doctor yet to learn about this condition and how it affects you? Has the URSO had any effect on how you feel?

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@gema98,
Being diagnosed with a disease and seeing a new specialist are frightening. I want to invite you to this discussion, where some members in the past have shared some of their PBC experiences.

I understand that you are going to be seen by a new doctor - a liver specialist and I want to share a link to information about PBC - Primary Biliary Cholangitis from the Mayo Clinic.
Mayo Clinic Patient Care & Health Information> Diseases & Conditions
-Primary biliary cholangitis
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis/symptoms-causes/syc-20376874
How long have you been taking URSO? What are some questions that you would like to ask here?

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