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Primary Biliary Cholangitis and Autoimmune Hepatitis
Transplants | Last Active: Oct 3, 2021 | Replies (72)Comment receiving replies
I have a Hematologist who never picks up the phone to discuss my condition. She also believes that twice a year is enough to see her and get blood work done. When I do see her, she sees me for 20 minutes and never looks into my eyes.
Her Nurse hasn’t a clue and believes it’s alright to e-mail through “my chart.” I have sent a few condescending messages questioning why she won’t pick up the phone to answers a few simple questions to give me peace of mind. I also told her she was “cold” and in the wrong profession. She never takes responsibilities for her errors. She consistently blames other people. I find it difficult in dealing with liars. She doesn’t understand what PSC is.
I just don’t know who to turn to now. My faith in my Doctor and Nurse is soul destroying
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If you are that unhappy find another Doctor!
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Hi @jacinta, if you are seeing a hemotologist at Mayo Clinic, I encourage you to contact the Office of Patient Experience to discuss your situation. They can help mediate. Find out more here as well as contact information for all Mayo Clinic locations: https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Some patients really appreciate the email functionality through the patient portal and ease of use of electronic communication through the Mayo Clinic app. If this is not your preferred communication method, please talk to your nurse about it. We want to help improve your faith in your care.
Jacinta, I also noticed that you are not following the Primary Sclerosing Cholangitis (PSC) blog here on Connect. I think you might be interested in this blog written by Mayo experts:
- Primary Sclerosing Cholangitis (PSC) https://connect.mayoclinic.org/page/psc/
You'll also see that there is a conference for PSC patients and caregivers being held in Rochester, MN June 20-23, 2019. See more info here: https://connect.mayoclinic.org/page/psc/newsfeed-post/15th-annual-conference-for-psc-patients-and-caregivers-in-rochester-mn/