Primary Biliary Cholangitis and Autoimmune Hepatitis

Posted by mahdi123 @mahdi123, Dec 16, 2018

Hi this is Mahdi

Interested in more discussions like this? Go to the Transplants Support Group.

@mahdi123

Hi nice to find cooperative person like you
Attached is some records
Please advise me and tell me your experience with MAYO CLINIC
THANKS

Jump to this post

Hi @mahdi123, I removed your medical records from this public forum. It is not recommended to share personal identifying information on a social network such as Connect. If you would like to seek a second medical opinion, please contact Mayo Clinic here: https://www.mayoclinic.org/departments-centers/international/appointments

REPLY
@colleenyoung

Hi @mahdi123, I removed your medical records from this public forum. It is not recommended to share personal identifying information on a social network such as Connect. If you would like to seek a second medical opinion, please contact Mayo Clinic here: https://www.mayoclinic.org/departments-centers/international/appointments

Jump to this post

Thanks a lot for removing the document

REPLY
@rosemarya

lisababs, Have you been able to get an appointment with a gastroenterologist (GI) or a liver specialist? How are you feeling?

Jump to this post

Hi
In fact I need to hear from specialists the possibility of treatment before having an appointment .But at the same time I don’t know to hear the specialist opinions
Do I have to have an appointment first?
Thanks

REPLY
@mahdi123

Hi
In fact I need to hear from specialists the possibility of treatment before having an appointment .But at the same time I don’t know to hear the specialist opinions
Do I have to have an appointment first?
Thanks

Jump to this post

Hi, Mahdi.
No two patients are alike, and it would be unfair to you for me to try to answer this question.

I encourage you to make contact to the Mayo Clinic with your question about a second opinion. You will be able to talk with someone who will be able to answer your questions. They will likely ask you questions to connect you with the appropriate department who will be qualified to guide you forward.
https://www.mayoclinic.org/departments-centers/international/appointments
Mahdi, I hope that you find the answers that you are seeking.

REPLY

Thanks a lot for your advice
I just want to know the possibility of treatment or transplanting in the clinic whether they have or not

REPLY
@mahdi123

Thanks a lot for your advice
I just want to know the possibility of treatment or transplanting in the clinic whether they have or not

Jump to this post

Mahdi.
Wanting to know the possibility of treatment is exactly the reason that you should call and begin a conversation.
I don't know how the system works where you are, but there would be no obligation on your part by making phonecall and having a conversation. That is the only way to find out if there is any need to set up an appointment for you.

In my case, my transplant doctor called Mayo and begen the conversation. Then he sent my records before Mayo agreed to see me. Then an appointment was scheduled because I needed to be seen by a specialist who was there. I do not know about how anyone else made their contacts.

I would be interested to hear what you learn. If you do need to make an appointment, I will help you if you want.

REPLY
@mahdi123

Thanks a lot for your advice
I just want to know the possibility of treatment or transplanting in the clinic whether they have or not

Jump to this post

@mahdi123 I think your best bet will be to call or go online and schedule an appointment.

REPLY
@rosemarya

Mahdi.
Wanting to know the possibility of treatment is exactly the reason that you should call and begin a conversation.
I don't know how the system works where you are, but there would be no obligation on your part by making phonecall and having a conversation. That is the only way to find out if there is any need to set up an appointment for you.

In my case, my transplant doctor called Mayo and begen the conversation. Then he sent my records before Mayo agreed to see me. Then an appointment was scheduled because I needed to be seen by a specialist who was there. I do not know about how anyone else made their contacts.

I would be interested to hear what you learn. If you do need to make an appointment, I will help you if you want.

Jump to this post

My gastro Dr. Referred me. FL Research Institute ordered a biopsy as part of a clinical trial for NASH., so I had that and a diagnosis and a Fibroscan.

REPLY
@jeanne5009

My gastro Dr. Referred me. FL Research Institute ordered a biopsy as part of a clinical trial for NASH., so I had that and a diagnosis and a Fibroscan.

Jump to this post

jeanne, Have your doctors given you and indication if or when you might need a transplant?
You mentioned a clinical trial for NASH, What does it involve? - only if you are comfortable in sharing. Are you still participating in it?

REPLY
@rosemarya

jeanne, Have your doctors given you and indication if or when you might need a transplant?
You mentioned a clinical trial for NASH, What does it involve? - only if you are comfortable in sharing. Are you still participating in it?

Jump to this post

I am waiting they said Within two days they will call me

For transplant not determined yet

REPLY
Please sign in or register to post a reply.