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Holidays Greetings - To all who are touched by Organ Donation

Posted by Rosemary, Volunteer Mentor @rosemarya, Dec 16, 2018

May love be with you as you celebrate the traditions of the season.
May you be blessed with a new year of peace and joy.
And may the message of hope sustain you throughout your transplant journey and guide you for the rest of your life.

What holiday message would you like to share?

Interested in more discussions like this? Go to the Transplants Support Group.

triciaodonnell | @triciaodonnell | Dec 24, 2018
In reply to @contentandwell "@triciaodonnell Tricia, that's wonderful that you were a donor for your husband, but I am sure..." + (show)
@contentandwell

@triciaodonnell Tricia, that's wonderful that you were a donor for your husband, but I am sure quite distressing that he is experiencing rejection issues. I hope they manage to get that under control. When I questioned my surgeon about what would happen if rejection occurred, he just told me not to worry, that they would take care of it, so I trust that they would. What were your husband's symptoms that led them to discover that he was having issues? It's been two years and three months for me now and no problems but they say that no matter how long it has been, rejection can occur. At this point, I worry more about catching something than I do rejection.
JK

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I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are good “detectives”, and hopefully will solve the mystery. My husband’s symptoms are unusual fatigue and some muscle aches. The biopsy showed some inflammation in his kidney, but they also wanted to tweak the cholesterol and blood pressure meds. It’s only been a few days...so we are still waiting to see improvement.

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2 replies
triciaodonnell | @triciaodonnell | Dec 24, 2018
In reply to @gingerw "@triciaodonnell So sorry to hear of this concern. It must be scary! My husband is 26..." + (show)
@gingerw

@triciaodonnell So sorry to hear of this concern. It must be scary! My husband is 26 months out from kidney transplant. I worry more than he does, about rejection. Keeping you both close in prayer.
Ginger

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Thanks you so much!!

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JK | @contentandwell | Dec 24, 2018
In reply to @triciaodonnell "I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are..." + (show)
@triciaodonnell

I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are good “detectives”, and hopefully will solve the mystery. My husband’s symptoms are unusual fatigue and some muscle aches. The biopsy showed some inflammation in his kidney, but they also wanted to tweak the cholesterol and blood pressure meds. It’s only been a few days...so we are still waiting to see improvement.

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@triciaodonnell I think it is really key to have confidence in your doctors. I am sure they will, as you say, "solve the mystery". I have that confidence too in my doctors at MGH (Mass General). I am surprised that blood pressure is an indicator. I think I am about to go on blood pressure medication, I'm sort of borderline and my PCP wants me to wear a 24-hour monitor. UGH, another medication.
JK

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cmael | @cmael | Dec 24, 2018
In reply to @triciaodonnell "I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are..." + (show)
@triciaodonnell

I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are good “detectives”, and hopefully will solve the mystery. My husband’s symptoms are unusual fatigue and some muscle aches. The biopsy showed some inflammation in his kidney, but they also wanted to tweak the cholesterol and blood pressure meds. It’s only been a few days...so we are still waiting to see improvement.

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I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute rejection. I was given steroid infusion for about 5 days. It solved the problem and my creatinine levels have been right on since then. I was told the cause was that they misjudged how much immunosuppressants I needed. People my age usually have lower immune systems and can get by with lower levels of immunosuppressants. I’m in the 17% who don’t.
Wishing your husband good results.🙏🏻

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2 replies
triciaodonnell | @triciaodonnell | Dec 24, 2018
In reply to @cmael "I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute..." + (show)
@cmael

I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute rejection. I was given steroid infusion for about 5 days. It solved the problem and my creatinine levels have been right on since then. I was told the cause was that they misjudged how much immunosuppressants I needed. People my age usually have lower immune systems and can get by with lower levels of immunosuppressants. I’m in the 17% who don’t.
Wishing your husband good results.🙏🏻

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Thanks, he had the infusions as well a few weeks out. But now at 6 mos. out, they are trying other things. His function went from 40% to 20% in 6 weeks...so we are sure hoping for a turnaround soon.

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JK | @contentandwell | Dec 24, 2018
In reply to @cmael "I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute..." + (show)
@cmael

I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute rejection. I was given steroid infusion for about 5 days. It solved the problem and my creatinine levels have been right on since then. I was told the cause was that they misjudged how much immunosuppressants I needed. People my age usually have lower immune systems and can get by with lower levels of immunosuppressants. I’m in the 17% who don’t.
Wishing your husband good results.🙏🏻

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@cmael That's wonderful that they were able to fix things so quickly. Obviously, things are humming along great for you now. You can breathe a big sigh of relief.
JK

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 21, 2021

My Holiday Message to ALL who are touched by Organ Donation

May love be with you as you celebrate the traditions of the season.
May you be blessed with a new year of health, peace, and joy.
May the message of hope sustain you and guide you for the rest of your life.

What holiday message would you like to share?
REPLY
1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 21, 2021
In reply to @rosemarya "My Holiday Message to ALL who are touched by Organ Donation May love be with you..." + (show)
@rosemarya

My Holiday Message to ALL who are touched by Organ Donation

May love be with you as you celebrate the traditions of the season.
May you be blessed with a new year of health, peace, and joy.
May the message of hope sustain you and guide you for the rest of your life.

What holiday message would you like to share?

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Thank you to the anonymous deceased donor of my husband's kidney, just over 5 years ago. May your family know how much it has meant to us!
Ginger

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