Multifocal Adenocarcinoma of the lung, continual recurrences

@meka-I know, people mean well but don't always come across as they do. Their questions often sound nosy and not caring. As Nancy said you don't need to tell your story to everyone, not if someone sounds challenging (for whatever reason) you do not have to defend yourself. During treatments and tests and Dr's appointments we are all vulnerable because, I think, we have to go so darn often! You can always say that you do not want to talk about your cancer. You want to talk about happier things; not all cancers are treated with chemo; Stages are not important. Did someone really ask you this? how long do you have? OMG. a. How long do you have? b. Long enough for me to live my life out and have fun! c.‘I appreciate that this is of interest to a lot of people but I can't live or think that way. I'm being treated to live not to think about funeral expenses.
@linda10, @sakota, @bluelagoon - WHat kind of answers have you given?

@meka What are you telling your family and friends about your illness? How are you explaining to them that it is a chronic type of cancer?

@meka, @sakota9, @linda10, @bluelagoon- Hello! It warms my heart that we are all together here! It must be a Mayo meet-up for sure. lol
My next CT scan won't be until mid-June. I'm hoping to be in Rochester in early June for the mentor meet-up but because of the virus, I will have to wait and see. You all sound upbeat. I'm in self-isolation. RI now has 20 cases of COVID-19 and within 30 minutes of me!
I found my SBRT a breeze compare to surgery but the recovery time is about 6 months for me. I really had to take it easy- nothing strenuous. But that might be because I have so much lung tissue damage.
Linda was the recovery from SBRT difficult for you? I was some tired!

@meka-I know, people mean well but don't always come across as they do. Their questions often sound nosy and not caring. As Nancy said you don't need to tell your story to everyone, not if someone sounds challenging (for whatever reason) you do not have to defend yourself. During treatments and tests and Dr's appointments we are all vulnerable because, I think, we have to go so darn often! You can always say that you do not want to talk about your cancer. You want to talk about happier things; not all cancers are treated with chemo; Stages are not important. Did someone really ask you this? how long do you have? OMG. a. How long do you have? b. Long enough for me to live my life out and have fun! c.‘I appreciate that this is of interest to a lot of people but I can't live or think that way. I'm being treated to live not to think about funeral expenses.
@linda10, @sakota, @bluelagoon - WHat kind of answers have you given?

@meka maybe we will cross paths. Is your Dr in the Charlton Building? That’s where I had my SBRT.

Morning @sakota- How are you doing? Are you still in treatment? I never had anyone ask me how long I had to live either. How did you handle telling people that you had cancer? I was very honest and straightforward. I was embarrassed but I went ahead and talked. At the time, though, I had a different lung cancer. When a second cancer, multi-focal hit me it was a different story. Most people already knew that I had had cancer and I think that people expected that the second one at some time in the future wouldn't be unusual, sad but... What really got my cockles up was when people told me that I could beat it, that I was strong, that God would see me through! grrr.

Hi merry I agree with so many things that you said especially about beating it. No one has that answer not even us. When i tell people i have cancer most just say how sorry to hear that and then i or they start talking other things. I go to mayo on april 22 for pulmonary testing and my ct scan so hope to answers on my left lung. You extra worried about the virus since we are high risk. I do what i can to protect myself and the rest is in Gods hands. My girls have been and are a great help. Hugs merry and keep in touch.