Multifocal Adenocarcinoma of the lung, continual recurrences

Posted by Merry, Alumni Mentor @merpreb, Dec 11, 2018

We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.

For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.

This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.

Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn't know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don't even know where they start..

Multifocal Adenocarcinoma has sub types and it's management is based on whether it's indolent or very virulent.

These are very simplistic explanations. Even doctors are confused by it and it's only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).

The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It's enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@meka

Update, leaving tomorrow for tests on Friday and Monday. Decided to stay downtown at the Hilton garden inn, any energy would welcome, thanks so much!!!

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@meka- I've been thinking about you and wondering how you are feeling about these upcoming tests.I was going to post early but I over slept- not something that I do very often. Are you relieved? Anxious? You've worked hard to get to this place called "tests". You should be proud! You've got this, I know! I wish you all the best and will keep all my extensions crossed. You will definitely be on my mind!

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@merpreb

@meka- I've been thinking about you and wondering how you are feeling about these upcoming tests.I was going to post early but I over slept- not something that I do very often. Are you relieved? Anxious? You've worked hard to get to this place called "tests". You should be proud! You've got this, I know! I wish you all the best and will keep all my extensions crossed. You will definitely be on my mind!

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Merry said everything right. Am thinking about you too

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@meka

Update, leaving tomorrow for tests on Friday and Monday. Decided to stay downtown at the Hilton garden inn, any energy would welcome, thanks so much!!!

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@meka- thinking of you! You've got this!

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@merpreb

@meka- thinking of you! You've got this!

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Thank you so much! Some meditating this morning trying to keep anxiety, etc in check. Probably exhausted by evening. Putting on my Women's Army Corp cap for some extra strength. Positive energy!!!

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@meka- I'm pulling for you! Good idea for meditation to help with anxiety. That's ok to be exhausted. I get like that after I have my scan and dr.'s appointment. Always positive energy!

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@meka- How did you make out? Did you sleep well?

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@merpreb

@meka- How did you make out? Did you sleep well?

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Long day, big place!! Big accomplishment for the day, went through MRI without sedation, thank goodness I have been doing some meditating. Hurt all over, kept waking up all night, but great early breakfast. There are truly nice people around everywhere and felt you all with me, thanks!!!

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@meka- Are you hurting from walking a lot?

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@merpreb

@meka- Are you hurting from walking a lot?

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Some of it is my knee, but think most is from tension for so many days and yesterday just being in a new situation!! Rest today!

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