1. < Digestive Health

How do you manage daily life with IBS-D?

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I'm taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

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snooky0925 | @snooky0925 | Feb 3, 2020
In reply to @colleenyoung "Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the..." + (show)
@colleenyoung

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

Jump to this post

Have you tried eating gluten free combined with fodmaps. I have suffered for many years with IBSD. The last 10 years became impossible diarrhea for months with no relief along with severe abdominal pain. Once I started the gluten free with fodmaps life looked a lot better. I can not tolerate vegetables or fruit on a daily basis. Once in a while I can do it without too much discomfort. I usually have sweet potatoes with a protein for dinner and eggs and gluten free bread for breakfast sometimes gluten free oatmeal. Good luck

REPLY
falconfly | @falconfly | Feb 3, 2020
In reply to @srobison "Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for..." + (show)
@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Thank you and everyone for all the words of wisdom...

REPLY
shirleyfoggepiazza | @shirleyfoggepiazza | Feb 3, 2020
In reply to @colleenyoung "Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the..." + (show)
@colleenyoung

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

Jump to this post

I have IBSD and recurrent CDIFF for nine years due to mistakes by Physicians in Gastroenterology and ID in FL. For real treatment I have to go to NY or MA. Not familiar with Viberzi. Does anyone have Zinplava information. Will Mayo Clinic offer it in 2017

REPLY
shirleyfoggepiazza | @shirleyfoggepiazza | Feb 3, 2020
In reply to @srobison "Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for..." + (show)
@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

Jump to this post

How is Mayo Clinic Gastroenterology in Jacksonville, FL. I NEED ADVANCED CARE ASAP.

REPLY
falconfly | @falconfly | Feb 3, 2020
In reply to @colleenyoung "Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the..." + (show)
@colleenyoung

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

Jump to this post

I was tested for gluten and they ruled it out....thank you tho for your summary...it all helps and I will keep it in mind...

REPLY
falconfly | @falconfly | Feb 3, 2020
In reply to @yyyy "Are you sure you don't have H -pylori?" + (show)
@yyyy

Are you sure you don't have H -pylori?<br><br>

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Tested negative....

REPLY
shirleyfoggepiazza | @shirleyfoggepiazza | Feb 3, 2020
In reply to @colleenyoung "Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the..." + (show)
@colleenyoung

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

Jump to this post

Even though I have not tested positively with a gluten issue, it is my experience that most digestive issues be treated as gluten free, no matter what. I was given whole wheat English muffins today and froze knowing it would cause bloating and aggravate all my intestinal problems

REPLY
shirleyfoggepiazza | @shirleyfoggepiazza | Feb 3, 2020
In reply to @yyyy "Have you been tested for c-dif" + (show)
@yyyy

Have you been tested for c-dif

Jump to this post

I have.....

REPLY
joannem | @joannem | Feb 3, 2020
In reply to @healthsearch "Interesting how the system works. I heard from DrBerg.com that the pancreas produces some hormons that..." + (show)
@healthsearch

Interesting how the system works. I heard from
DrBerg.com that the pancreas produces some hormons that digest vegetables. He doesn't have the ability to digest broccoli. I am very fortunate that it helps me and don't react to it. The liver, pancreas, and gallbladder work together. Stress impacts them and the medication for stress is exercise. Also the splin have a lot to do with such problems. There are tests to check each organ. My experience have been a clean liver gives you all the health and removes many symptoms. If the pancreas is not working properly a doctor can guide you to heal it properly. I also heard from nutritionist that coloidal or certain minerals help rebuild the pancreas. Check with Dr Wallach he has a book on "Dead Doctors Don't Lie" there are a lot of websites that sell items, but your interest is your specific problem. Have you gone to Mayo Clinic for examination? What did they recommend? They are the best in the world. I hope soon they will combine nutrition with drugs to help heal us.
For me flaxseed is making my intestines work properly. It it is a fiber item that will react with you. Have you taken any stress management class? It maybe the source of your symptoms. Under stress the organs don't work properly. Since I was able to put Crohn's in remission I have a good understanding how the system is operating. The doctor setup my next appointment four months from now. I have not resolve my inflammation problem that I had for many years but now I have it isolated and responds to vegetables. But I do eat items out of diet and get the pain. My best wishes to you.

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Hello Healthsearch. You just answered a question I had wondered about. I couldn't understand how taking pancreatin helped the pain in my gallbladder - now I know. It is not in my best interest to have my gallbladder out taken out due to rerouting of my small intestines to my transverse bowel. to much scar tissue from surgery and location of connection makes it a dangerous operation for me, so getting relief by taking pancreatin helps the issue. I also take apple cider vinegar and orange juice to cleanse my liver.

REPLY
shirleyfoggepiazza | @shirleyfoggepiazza | Feb 3, 2020
In reply to @healthsearch "Interesting how the system works. I heard from DrBerg.com that the pancreas produces some hormons that..." + (show)
@healthsearch

Interesting how the system works. I heard from
DrBerg.com that the pancreas produces some hormons that digest vegetables. He doesn't have the ability to digest broccoli. I am very fortunate that it helps me and don't react to it. The liver, pancreas, and gallbladder work together. Stress impacts them and the medication for stress is exercise. Also the splin have a lot to do with such problems. There are tests to check each organ. My experience have been a clean liver gives you all the health and removes many symptoms. If the pancreas is not working properly a doctor can guide you to heal it properly. I also heard from nutritionist that coloidal or certain minerals help rebuild the pancreas. Check with Dr Wallach he has a book on "Dead Doctors Don't Lie" there are a lot of websites that sell items, but your interest is your specific problem. Have you gone to Mayo Clinic for examination? What did they recommend? They are the best in the world. I hope soon they will combine nutrition with drugs to help heal us.
For me flaxseed is making my intestines work properly. It it is a fiber item that will react with you. Have you taken any stress management class? It maybe the source of your symptoms. Under stress the organs don't work properly. Since I was able to put Crohn's in remission I have a good understanding how the system is operating. The doctor setup my next appointment four months from now. I have not resolve my inflammation problem that I had for many years but now I have it isolated and responds to vegetables. But I do eat items out of diet and get the pain. My best wishes to you.

Jump to this post

Excellent. We have to support each other.

REPLY
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