What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

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@dilly69

Hi, one thing l've noticed if l eat more than usual for dinner l pay for it the next day. Doc said twice a day and continue for 4 weeks after off vancomycin. It's the only probiotic she recommended and she's a gastroenterologist.
I have had good days in the last 10 months but suffer now badly with anxiety, have no desire to go to hospital with the covid thing going on.

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I am so sorry you are going through all this. I too suffer badly from anxiety and depression and it is all caused by c Diff I am not able to sleep. Stay strong you will get through this.

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@mhi

I am so sorry you are going through all this. I too suffer badly from anxiety and depression and it is all caused by c Diff I am not able to sleep. Stay strong you will get through this.

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So, l live in Canada and pot is legal here. I couldn't sleep either so l started taking CBD oil and smoke some pot with CBS in it before l go to bed. I sleep like a baby, only have 1 puff or get too stoned. I think the CBS helps alot

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@dilly69

So, l live in Canada and pot is legal here. I couldn't sleep either so l started taking CBD oil and smoke some pot with CBS in it before l go to bed. I sleep like a baby, only have 1 puff or get too stoned. I think the CBS helps alot

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The worst thing is not being able to sleep. I am glad for you at least you are getting your night sleep because it does help with the healing. Keep us posted wishing you a speedy recovery!

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I've shared this before on this site but I went through 4 bouts of Cdiff in 2018 after taking Clindamycin. I took Flagyl after the first bout. Then I took Vancomycin for the 2nd and 3rd bouts. I even did the pulse and taper with Vanco for the 3rd bout. Nothing worked for me until I took Dificid (fidaxamycin) for the 4th and final bout. That's the RX that cured my Cdiff. I now take Florastor or any type of S. Boulardii brand daily and have been taking it since 2018 when my gastroenterologist recommended it. I had a UTI last month and was a nervous wreck being on an antibiotic (Macrobid) for 5 days and them Flagyl for a week. I was scared to death that Cdiff would return. That was one month ago and so far, I'm fine. I knock on wood whenever saying that. I wish more doctors would prescribe Dificid after a second Cdiff occurrence instead of putting patients through so much pain and suffering. I know it's expensive but it works. I have another friend who was given it after her 2nd bout of Cdiff. I'm thankful every day that she told me about it working for her.

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Thank you a ray of hope. If this wean off doesn't work, going to ask for it. Can l ask, are you in Canada ?
We have different drugs here than US.

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@pines

I've shared this before on this site but I went through 4 bouts of Cdiff in 2018 after taking Clindamycin. I took Flagyl after the first bout. Then I took Vancomycin for the 2nd and 3rd bouts. I even did the pulse and taper with Vanco for the 3rd bout. Nothing worked for me until I took Dificid (fidaxamycin) for the 4th and final bout. That's the RX that cured my Cdiff. I now take Florastor or any type of S. Boulardii brand daily and have been taking it since 2018 when my gastroenterologist recommended it. I had a UTI last month and was a nervous wreck being on an antibiotic (Macrobid) for 5 days and them Flagyl for a week. I was scared to death that Cdiff would return. That was one month ago and so far, I'm fine. I knock on wood whenever saying that. I wish more doctors would prescribe Dificid after a second Cdiff occurrence instead of putting patients through so much pain and suffering. I know it's expensive but it works. I have another friend who was given it after her 2nd bout of Cdiff. I'm thankful every day that she told me about it working for her.

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Thank you for sharing your story and glad you are out of the woods from this vicious cycle. If you don’t mind me asking why did you take flagyl after microbid was it to make sure c Diff doesn’t come back? Or to treat your UTI? And how many Boulardii pills do you take daily?

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@mhi

Thank you for sharing your story and glad you are out of the woods from this vicious cycle. If you don’t mind me asking why did you take flagyl after microbid was it to make sure c Diff doesn’t come back? Or to treat your UTI? And how many Boulardii pills do you take daily?

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I had told my doctor how scared I was taking any antibiotic. We were just trying to be safe before Cdiff spores even started to form and Flagyl can also be used for UTI's but not used as frequently as Macrobid. And yes I take S. Boulardii every day along with a regular probiotic.

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@dilly69

Thank you a ray of hope. If this wean off doesn't work, going to ask for it. Can l ask, are you in Canada ?
We have different drugs here than US.

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No I live here in the USA. My insurance wouldn't cover the cost for Dificid until I had tried a less expensive drug..... either Flagyl or Vanco. I did the Vanco pulse and taper for 5 or 6 weeks and a couple weeks after finishing it, the Cdiff returned for a 4th time. I was a wreck. I kept wondering what I was doing wrong and why couldn't I get rid of it. I cleaned our home from top to bottom and even tossed out a pillow. I had wipes and bleach in every bathroom. It was 8 months that I wouldn't wish on anyone.

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@pines

No I live here in the USA. My insurance wouldn't cover the cost for Dificid until I had tried a less expensive drug..... either Flagyl or Vanco. I did the Vanco pulse and taper for 5 or 6 weeks and a couple weeks after finishing it, the Cdiff returned for a 4th time. I was a wreck. I kept wondering what I was doing wrong and why couldn't I get rid of it. I cleaned our home from top to bottom and even tossed out a pillow. I had wipes and bleach in every bathroom. It was 8 months that I wouldn't wish on anyone.

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Been 10 months for me,l totally agree, getting slot of anxiety. Been through tons of lysol. Dif you get any answers fissures? I can't even sit on the toilet,it's so painful to go.

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@dilly69

Thank you a ray of hope. If this wean off doesn't work, going to ask for it. Can l ask, are you in Canada ?
We have different drugs here than US.

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After three months of alternating between one antibiotic and then another, my husband put his foot down and refused to take any more. The GI doctor finally prescribed Questran, an anti-cholesterol powder. My husband started with four scoops per day and gradually weaned down to none. After four months of agony, his gut was stabilized.

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