Has anyone experienced internal vibrations?

I also have internal vibrations for 18 months have not found any thing that will help, lots of testing And medications, only relief I get is to lay on a electric blanket on low heat 1-2 hours day

I also have internal vibrations for 18 months have not found any thing that will help, lots of testing And medications, only relief I get is to lay on a electric blanket on low heat 1-2 hours day

Hello @novajeff,

I am sorry to hear of your internal vibrations. It sounds as if this is affecting many areas of your life and that it is not easy to adjust. It is a very frustrating thing to have a problem that doctors cannot diagnose and treat. Many of us on Connect, myself included, have had problems that took perseverance and years of searching before we found answers.

It sounds like you have been advocating for yourself quite well. You have seen a variety of specialists and they all seem to be trying very hard to help which is a good thing.

Is your neurologist considered a "movement disorder specialist?" This is a specific type of neurologist who deals with movement disorders.

Hard to diagnose problems can often be solved if you go to a Mayo facility for a consultation. Here is a link for their appointment department, http://mayocl.in/1mtmR63. In lieu of an appointment at Mayo, a university medical center that has a multi-disciplinary approach would also be good for a complicated issue such as yours.

Do you have any other problems that you might not have mentioned, such as a staggering gait (walking) problems, balance or vision problems?

Hi, @ocaladave - have you been given a diagnosis for this? Does the heat from the electric blanket providing soothing during the internal vibrations, or does it stop them?

Hi Lisa lucier
No diagnosis as of now, I lay directly on the electric blanket in my shorts and get soothing relief on my legs and back, my internal vibrations are not as bad when I am laying down,
If I turn on my side they will start up for about 20 minutes and then go away until I turn over again this goes on all night,

Thanks @hopeful33250

I am currently seeing a neuro at Jefferson. He is a sub specialist in oncology and not particularly movement disorders, but I had to see whoever I could get, in the ER last week when I was so broken that I couldn’t take it anymore and was at my wits end. It was physically impossible for me to wait the 2-4 months to try and get help through a standard appointment. The good news is, is he’s a Jefferson neurologist so he’s obviously a pretty smart guy. I’d hope that, given the university clinical setting like that, if it got to the point where it would be helpful to have one of their true movement disorder sub specialists weigh in, that he would go knock on their door.

You mentioned other issues like bait, balance or vision issues. I have none of those.

Thank you

Hello @ocaladave,

I'm sorry to hear that you have also had a problem with internal vibrations. You mentioned having a lot of testing. I was wondering if you could share about the types of specialists that you saw and the tests that you had.

Were any of these tests done by a neurologist?

I also have internal vibrations for 18 months have not found any thing that will help, lots of testing And medications, only relief I get is to lay on a electric blanket on low heat 1-2 hours day

Curious if any of you have explored the potential of Benign Fasciculation Syndrome. Found out more about that yesterday and it really checks almost every box for me. My one neuro didn’t know about this, and my other neuro disagreed, saying I don’t have fasciculations. I personally disagree with his comment. I feel my muscles twitching and firing all over, often.

Fasciculations (primary symptom)
Blepharospasms (eye spasms)
Generalized fatigue
Muscle pain (Or soreness)
Anxiety (which can also be a cause)
Exercise intolerance (Less Stamina)
Globus sensation
Paraesthesias
Muscle cramping or spasms
Other symptoms include:

Dyspnea
Hyperreflexia
Muscle stiffness
Tremors
Itching
Myoclonic jerks