Has anyone tried the HF10 Spinal Cord Stimulation Device?

Posted by patrick17 @patrick17, Nov 21, 2018

Has anyone tried a device called HF10 ? It’s a device which stimulates your spinal cord to help relieve back and leg pain. After a trial period of about a week, if the patient is achieving good results the device is implanted in the person. My pain management doctor has recommended it to me for arm and hand nerve pain. I would like to hear from anyone who has used this device and especially from anyone who has used it for arm and hand pain. Thank you.

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@ariellalevymurray

thats the plan for me. I'll give a review when i get it

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@ariellalevymurray Welcome to Mayo Clinic Connect. Happy to have you.

You said, "thats the plan for me. I'll give a review when i get it."

Would you tell me a bit more about that?

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@martyk

I'm happy to hear that you were able to get some relief. As of yet I haven't talked to a Nevro rep or physician

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Well, please do it asap! It makes no sense for you to be getting no relief if there’s something they can change to help you relieve your pain! I know sometimes things feel overwhelming when pain is ever present, but you need to keep slogging on! Maybe ask a friend or trusted family member to accompany you for emotional support?
Don’t wait, do it. For your own sake!

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@bkruppa

That's a good question. We've gone through all the vitamin, pain meds, acupuncture, laser massages, caudal nerve blocks, pudendal nerve blocks, MRIs, X-Rays, etc. treatments to find relief or source of the problem but so far come up with nothing. From other research that I've done I'm leaning towards nerve entrapment as being the possible cause of my wife's pain. There are a lot of articles referencing PNE or Pudendal Nerve Entrapment as a cause of this pain. It is quite common and there are clinics around the country who treat such conditions. In these cases the cure is to remove the entrapment source which usually is a muscle tightening up and causing pressure on the pudendal nerve. The symptoms of PNE are exactly like what my wife has. However, most doctors are not supportive of this.

I was told by a Physical Therapist that pain due to a torn rotator cuff and then scar tissue entrapping a nerve is common. So I'm still leaning in the direction of PNE. We are also looking into inversion tables which can stretch the spinal column such that if there is an entrapped nerve this possibly will help the condition. As we age the body and muscles starts to shrink which can put undue pressure on nerves, spinal areas, etc..

Another pain doctor says that the source of PNE is at the spinal column (root of the nerve) and wants to do a spinal injection of a steroid to see if this gives some relief. However, this is not a permanent solution and would have to be repeated continuously over time. While we may try this I will still try to find a solution rather than using meds which only gives temporary relief.

I myself have had in the past excruciating lower back pain. It was like someone stuck an ice pick in my spinal column. Doctors prescribed pain meds and muscle relaxers but neither gave one bit of relief. I read about simple muscle stretching exercises in this area, tried it during an episode, and it worked like a miracle. Apparently what happens is if these muscles tighten from exercise, working, or whatever they will put pressure on the nerves and cause pain so bad you can't move. Whether this is due to entrapment or compression of the spinal column I don't know but stretching works for me. I told friends that I would rather pass two kidney stones then have this lower back pain.:):) I also totally relieved pain in my hip and knee areas using simple stretching routines. So for my condition stretching certain muscle groups has been the solution. But it won't work for all nerve pain conditions such as arthritic conditions where you have bone on bone conditions.

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@bkruppa most ppl who have similar conditions to your wife's diagnosis according to what you wrote about the pudeal nerve in or around her sacrum area's. I'm not sure of the exact wording, for that I apologize. However I wanted to explain that there are many different conditions similar to your wife's issues that point to other area's that most ppl do not think could affect & cause similar areas to experience pain. Does she lose her bowels? If not that's not her issue. Also Taking Gabapentin aka Neurontin doesn't help has she tried Pregablin aka Lyrica also for nerve pain & diabetic Neuropathy.
Even Cymbalta works for some ppl. Has she tried a procedure called Rhizotomy or Radio Frequency Ablation yet? Ask your Neurologist & try to find a Neurosurgeon to look at all her MRI'S X-Rays etc.
I wish you & your wife less pain. I'm currently assisting my Husband w/his adjustment of his brand new Nevro HF10 Senza SCS which was implanted in January 18th, 2021.
He is at program #2 & level 3 & he is doing ALOT better. Pain & neuropathy levels dwn he already has about 70% RELEIF in his entire body, including his feet & toes. Im so happy for him. With this Brand you bring your remote & open up the back of remote there is a red button it turns everything off. This is great because you can use an X-ray & MRI, & CT Scans. & When done you put it back on. There is no parethesia but it is on, & just releif, but if there is cramping then it means it's overstimulated. Then he lowers the strength thru remote. But we call the Reps & they're more than willing to fix or answer any issue's. I wish you both well.

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@msstoppainnagginme

@bkruppa most ppl who have similar conditions to your wife's diagnosis according to what you wrote about the pudeal nerve in or around her sacrum area's. I'm not sure of the exact wording, for that I apologize. However I wanted to explain that there are many different conditions similar to your wife's issues that point to other area's that most ppl do not think could affect & cause similar areas to experience pain. Does she lose her bowels? If not that's not her issue. Also Taking Gabapentin aka Neurontin doesn't help has she tried Pregablin aka Lyrica also for nerve pain & diabetic Neuropathy.
Even Cymbalta works for some ppl. Has she tried a procedure called Rhizotomy or Radio Frequency Ablation yet? Ask your Neurologist & try to find a Neurosurgeon to look at all her MRI'S X-Rays etc.
I wish you & your wife less pain. I'm currently assisting my Husband w/his adjustment of his brand new Nevro HF10 Senza SCS which was implanted in January 18th, 2021.
He is at program #2 & level 3 & he is doing ALOT better. Pain & neuropathy levels dwn he already has about 70% RELEIF in his entire body, including his feet & toes. Im so happy for him. With this Brand you bring your remote & open up the back of remote there is a red button it turns everything off. This is great because you can use an X-ray & MRI, & CT Scans. & When done you put it back on. There is no parethesia but it is on, & just releif, but if there is cramping then it means it's overstimulated. Then he lowers the strength thru remote. But we call the Reps & they're more than willing to fix or answer any issue's. I wish you both well.

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@msstoppainnaggiinfo
I am rooting for your husband to continue getting this level of relief. I have heard many stories of different people's results with implanted stimulators and they seem to be all over the map. I know of at least a couple of people who are thrilled with their results after a fairly long time. Quite a number seem to have had good results at first but less so after a period of time (usually a month up to a few months). Having heard a few horror stories from some people my wife, who suffers PN in her feet, has opted not to get one herself and I doubt anything will ever change her mind. She feels the risk of making things worse seems too great. Best, Hank

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@wcoombs106

Hello, I had extensive back surgery back in 2009 but it did not address my lower back pain which affects both legs. I had a StimWave STS implanted back in April. At first it seemed to reduce my pain levels but a month after the implant I fell and then everything seemed to have regress back to where I was in the begging. There are several adjustments that can still be made and perhaps we'll hit the right mix. Has anyone in this group had experience with StimWave? I would love to exchange information with respect to the results you are experiencing with this product.
Thanks for Sharing. Bill Coombs - Miami

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bill ref your post of dec 2019 i just had the stim wave pts done this week feb 25 2021, so far i belive some relive in lower back pain but left hip seems more painful . talked to rep to give it about 4 days to adjust i see the dr march 11,

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Thanks Jerry. Good luck and Keep us posted

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good morning marty ,had the stimwave feb pns installed feb 25 2021 ,for lower left back and left hip does not seem to be working, will the doctor and rep ,march 11. talk to rep friday , may be neads some program adjustment will talk to rep again tue march 2,

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Thank you. Perhaps you'll need an adjustment or two before it starts working for you.

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@patrick17

Thank you for your response and input. I am sorry for your wife’s pain. I read your other message and see that you and your wife have been through the mill. I am still undecided about a spinal cord stimulator. I am trying to connect with someone with arm and hand pain who has been helped by the Nevro device. The website below talks of a study of patients with neck and arm pain who had good results with the Nevro HF10. I don’t know anything more about it other than what I’ve read here. One question I have is how many patients were in the trial. It only states that 47 patients had the devices implanted.
https://blog.smarttrak.com/high-frequency-scs-for-upper-limb-and-neck-pain-an-interview-with-kas-amirdelfan-md

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Study Results for the upper limb and neck pain study with the Nevro HF10 implants by Dr. Kas Armirdelfan MD
https://academic.oup.com/neurosurgery/article/87/2/176/5650846

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