Anyone else have a Redundant / Tortuous Colon?

Great! You can ask these people anything. There's nothing that hasn't been asked before. There are newbies and veterans of this difficult thing.

Hello Jane yes I do
I knoe your post is a few months ago but hope u receive this
I have had several colonoscopies and tend to easily become constipated ... I have had several
Episodes of being constipated with severe cramping to the point I faint several
Times during the episode ..fortunately my husband is an ER trauma physician and since these episodes have only occur at night he is home
I am recovering from last night episode and saw
The Restrictive diet fr fruits
And certain vegetables
I am
With you I don’t think mine is connected to diet
I eat fairly clean /
Green smoothies which usually helps me stay regular ... I
Think I get dehydrated and it sets up
Constipation.
The last episode was last year so I don’t faint on a regular basis and before that 6 years ago.
I would not want to have a
Partial colon removed .... I think the surgeon knows best... are u fainting too? The cramping is a ten painful and my BP drops etc I am screaming at times ...
What have you done since your post!
Did I get the surgery? Did U try the diet
I just joined this site

PS someone above posted they take magnesium
I do too Phillips Pills and they do help I also
Ate steak a few nights ago
And Although I
Am
not allergic I tested highly reactive which sets
Up a inflammatory response ... last night during my episode I got hives on my hands .... I tend to break out in hives about once a year if Ia
Stressed.
Has anyone had fainting hives etc
Ty
Nellie

What is on Facebook @quiteachiver76 you mentioned in your message

Hi @tracy430,

It sounds like you’ve been through so much! I’m so glad you’ve joined this group, and was wondering if you had an opportunity to view this Mayo Clinic Connect discussion:
– Ostomy: Adapting to life after colostomy, ileostomy or urostomy https://connect.mayoclinic.org/discussion/ostomy-adapting-to-life-after-colostomy-ileostomy-or-urostomy/
It’s an incredibly informative conversation, where fellow members have shared their experiences, insights and tips about life before and after ostomy.

Another Connect discussion that I would really encourage you to read through is, "Three months after colon surgery” https://connect.mayoclinic.org/discussion/three-months-after-colon-surgery/ where you will meet @joyce1 @starrlight @sallyg @nannytart @travelgirl @swatson. I’d also like to bring in @maet @frane1939 @lamerex4 t see if they might be able to share more about colon resection and diverticulitis.

@quiteachiver75
Please look at my post. It gives the name of a group on Facebook for colectomy patients.

I have constant constipation. I have found GO EASY tea..or a laxative tea works even better than Miralax

Miralax does not work for me or maybe I'm not patient enough to wait 4 days for it to work. I take Linzess and Milk of Magnesia when that doesn't work as well.

I have had two diverticulitis attacks within one year and after recovery I recently had my 2nd colonoscopy. Both attacks happened while I was constipated. I rarely get constipated except these two times though which is confusing to me. Because of this I am so afraid of constipation. I have been diagnosed with a torturous colon and diverticulosis in all areas of my colon. Up until these attacks I never had a problem with constipation that I can recall. Each night after dinner and a couple of hours before bed I now take a heaping teaspoon Metamucil mixed in at least 8 ounces of water. I do this twice within the 2 hours before retiring for the night usually between 8-10pm. I get up in the morning and drink an 8 ounce glass of water while brewing my first cup of coffee. I usually have 2 cups of coffee in the morning and sometimes(3 times a week) one cup in the early afternoon. I go like clockwork while drinking that first cup of coffee each morning before work. I work a 7:30-4:30 day and also take a gummy fiber before lunch and a gummy fiber after. It has kept me regular for the last 6 months with no days of constipation. I also am trying to drink more water as I am not too often thirsty. When ever dining out I make sure to order a glass of water even if I have another beverage. I have always thought I have eaten a fairly good fiber diet but am trying to amp it up. I do cheat a little here and there with a dessert and a small steak once in a while and red wine in moderation. I have NOT noticed that coffee constipates me but rather helps me stay regular but perhaps it is because I have in the morning after the Metamucil has had a chance to work. I try not to take ibuprofen as it does tend to constipate me as I took it continual for a week when I had broken my wrist a week before my first attack. Are you on alot of other meds? I have heard that many medications do this.

I'm sitting at the 4 week after colonoscopy diagnosed with severe tortuous colon and sent home. In constant discomfort but I've got the screaming and fainting pain under control since they did a major clean out when they found stool stuck in the walls of my ascending and in the cecum having to force it out. I got home and was still pooping. I saw the top surgeon in the area and was told there was nothing they can do but remove the colon completely because they can't take out just the twisted almost closed section. I'm down to eating mushed up food as I found solid food is the enemy. But I am miserable. And scared. I am scheduled for rectocele surgery April 4.. That was a terrifying moment when I did that, I made the mistake of pushing. I usually can only get any out if i push it out with my thumb but even that wasn't working. I was diagnosed years ago with hemorrhagic gastritis and gastroparesis by colonoscopy after I luckily cleared out my impacted colon. I had drunk too much water n not enough food and was severely deficient of potassium. I was ok for years except for a lot of bouts of symptoms here n there. I'm on lifetime potassium replacement therapy. I found that magnesium was to help better than M. O. M. so I picked up a cheap bottle n had decent results so I searched extensively for the best out there n came across Synergetic Magnesium Complex... Extra strength 500mg. It worked perfect till I did one of the bipolar no no's n stopped taking them without realizing or understanding why. I am back on it and now I'm going quite a bit every day but that leaves me with the feeling of a constant period cramp. I'm so glad I found this group cause the GI only recommended a virtual colonoscopy in 3 years and return to previous diet... That's it! Same with the surgeon, he basically refused to help because I'm still so young... 48... n he'd have to take it all and I'd be on a bag. Nothing else. WHY don't they tell you ANYTHING? SOMETHING? With it being rare and not easy to find info on it, ya'd think they'd recommend something... Even if just referring them to a website that can offer info. Well, thanks for existing, nice to know I'm not alone but sorry you have to have it too. I'll be following along n will comment when I have ANY changes or can offer a suggestion.