Redundant / Tortuous Colon

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

@virginia44

I recently tried a new way to deal with my redundant colon/IBS symptoms and it is going quite well. My niece gave me a copy of the book "The Plant Paradox" by Steven Gundry, M.D. I've been reading it very carefully and started with just a few of his dietary change ideas and I have already seen marked improvement of my symptoms of pain, cramping, diarrhea, etc. I'm sure his book is not the solution for everyone, but I plan to follow his recommendations for a few months and see how it goes.

It's interesting to me that when I last posted in May I was contemplating surgery. Now it seems that a medical solution will work quite well for me, and actually help me get off some of the drugs. I particularly dislike the dicylomine because it makes me shaky and confused.

There is a website for the Plant Paradox method. Maybe it's worth checking out.

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Virginia, I'm glad that making changes to your diet is working for you. I hadn't heard of the Plant Paradox diet, so I had to look it up. Here is some information from the Cleveland Clinic and Mayo Clinic about it:
– Why Weight Loss on the Plant Paradox Diet Is Itself a Paradox https://health.clevelandclinic.org/why-weight-loss-on-the-plant-paradox-diet-is-itself-a-paradox/
– Mayo Clinic Q and A: What are dietary lectins and should you avoid eating them? https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-what-are-dietary-lectins-and-should-you-avoid-eating-them/

You might also enjoy this blog post and video on Connect:
– Know Your Lectins https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/know-your-lectins-1/

Virginia, what dietary changes have you made so far that seem to be having a positive effect?

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@colleenyoung

Virginia, I'm glad that making changes to your diet is working for you. I hadn't heard of the Plant Paradox diet, so I had to look it up. Here is some information from the Cleveland Clinic and Mayo Clinic about it:
– Why Weight Loss on the Plant Paradox Diet Is Itself a Paradox https://health.clevelandclinic.org/why-weight-loss-on-the-plant-paradox-diet-is-itself-a-paradox/
– Mayo Clinic Q and A: What are dietary lectins and should you avoid eating them? https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-what-are-dietary-lectins-and-should-you-avoid-eating-them/

You might also enjoy this blog post and video on Connect:
– Know Your Lectins https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/know-your-lectins-1/

Virginia, what dietary changes have you made so far that seem to be having a positive effect?

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I know the program is controversial and there is a lot of disagreement. But my background in biology kept me interested because what he says about plant "warfare" and the production of chemicals meant to harm, and thus drive off, the herbivore is very accurate. So I decided to try it. I have cut back on whole grains and replace that with a less fibrous carbohydrate at breakfast. I can eat tomatoes and cucumbers and summer squash and not get diarrhea if I peel them and remove the seeds. Those are a few of the things that have helped.

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@lesliedenny

I was just diagnosed after a painful colonoscopy. Unfortunately, the doctor didn’t stop to talk aboutit so I am doing my own research. For the last several years, since my last coloscopy, I have had episodes where I cannot relieve myself then it feels like I am going to pass out, followed by a drop in blood pressure with cold sweats. These episodes take up to 30 minutes to finish and I have to lie down afterward. I am wondering if they are related. I certainly appreciate everyone’s experience and input.

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I was diagnosed a week ago … and haven’t pooped since despite a LOT of laxatives snd prunes. Concerned. Yesterday doctorrecommended another laxative (which I took) and today she is in surgery. Hoping. But this is ridiculous.

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@bzb1000

I was diagnosed a week ago … and haven’t pooped since despite a LOT of laxatives snd prunes. Concerned. Yesterday doctorrecommended another laxative (which I took) and today she is in surgery. Hoping. But this is ridiculous.

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Milk of Magnesia? 3 tbsp?

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There are surgeons at Mayo that do something called the DeLoyers procedure that apparently helps in extreme cases of redundant colon. I can't tell you much about it, but hopefully the moderator of this discussion will jump in and give you the exact info about it. She mentioned it when I started on this thread back in May. Just want to tell you, however, that I was actually considering it because of my flare-ups. Those have now stopped since following the Plant Paradox Diet by Dr. Steven Gundry. I'm (thankfully) SO much better. Hope you find a solution fast, be it surgery or diet. Wish you the best.

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Just got diagnosed with redundant colon in bad shape
HELP

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Do not worry I have it too, and with a good diet and proper medicine l’am Ok, I'm taking Elavil pills for depression, they calm the colon, I'm pretty good, it has taken me 6 months to adapt to this new situationbe, and be able to have a somewhat normal life.
First take (probiotics) ALIGN) take a capsule a day with food, you open it and take only the powder that goes inside, we talk about getting rid of the bad stuff (bugs and food sensitivities), not milk, You can also eat foods like kimchi, kombucha, miso, or sauerkraut.
Sometimes, you can also eat yogurt if you are not allergic to dairy. Try unsweetened sheep or goat yogurt. These are all foods that help your gut flora get and stay healthy. METAMUCIL FIBRE SUGAR FREE to help you To go to the toilet, take a spoon of tea a day, before eating it has saved me from being able to control the movement of the colon. Antispasmodic medications like belladonna, only if it hurts.

Vitamin A, zinc, omega-3 fats (fish oil), evening primrose oil, and glutamine all help repair the gut. We also use herbs like quercetin and turmeric to reduce inflammation and heal to leaky gut, grilled salmon, and little by little you can eat something else, you have to investigate it yourself, with patience and a diet, you can get to live a normal life.

Relax try to sleep, and good luck.

Liked by les2436

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@cielo

Do not worry I have it too, and with a good diet and proper medicine l’am Ok, I'm taking Elavil pills for depression, they calm the colon, I'm pretty good, it has taken me 6 months to adapt to this new situationbe, and be able to have a somewhat normal life.
First take (probiotics) ALIGN) take a capsule a day with food, you open it and take only the powder that goes inside, we talk about getting rid of the bad stuff (bugs and food sensitivities), not milk, You can also eat foods like kimchi, kombucha, miso, or sauerkraut.
Sometimes, you can also eat yogurt if you are not allergic to dairy. Try unsweetened sheep or goat yogurt. These are all foods that help your gut flora get and stay healthy. METAMUCIL FIBRE SUGAR FREE to help you To go to the toilet, take a spoon of tea a day, before eating it has saved me from being able to control the movement of the colon. Antispasmodic medications like belladonna, only if it hurts.

Vitamin A, zinc, omega-3 fats (fish oil), evening primrose oil, and glutamine all help repair the gut. We also use herbs like quercetin and turmeric to reduce inflammation and heal to leaky gut, grilled salmon, and little by little you can eat something else, you have to investigate it yourself, with patience and a diet, you can get to live a normal life.

Relax try to sleep, and good luck.

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Thank you so much. What do you eat usually? Which diet should I follow? Do I need to not drink coffee or coke? I do drink lots of water. What do you do for pain and bloating? I'm on tramadol and dicyclomine. Live in Largo, Fl. Im on Medicaid, Medicaid doctors are hard to get down here, Do have appt. on July 30th with new gastro. Doc. It seems like I have a severe case of redundant colon.
Been in and out of ER with this, no help. Had colonoscopy thats were they diagnosed it. Tired a lot. Also, I need to work. Cant with this. Depressed have bipolar too. Have several health conditions including Heart problems. On a lot of meds. What about surgery? I'm 53 and want to live. Thanks so much again. Have a blessed life. Lesley

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I'm sorry to read that you feel this way, I live in Canada so I do not know anything about Madicaid, I guess it's the health insurance?

I started with the diet Fodmap, you have recipes on the internet that can help you, Please out Stop coke or any refreshing with gas, probiotics every day, antidepressants to take at night to help you sleep and calm anxiety Ativan, anti-exspam painkillers Bentyl (dicyclomine)

Yoga has helped me, meditation to calm my anxiety, and do not forget Metamucill to control my bowel.
look for a dietician specializing in torturous Colon, sure to help you, and have adequate exercises to place your colon.
I do not advise operation unless your situation is already very serious.
My son is a pharmacist and it is the advice he gives me, and I am 70% better than when I was diagnosed with this problem.
Good luck you deserve it.

Liked by sue225

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@cielo

I'm sorry to read that you feel this way, I live in Canada so I do not know anything about Madicaid, I guess it's the health insurance?

I started with the diet Fodmap, you have recipes on the internet that can help you, Please out Stop coke or any refreshing with gas, probiotics every day, antidepressants to take at night to help you sleep and calm anxiety Ativan, anti-exspam painkillers Bentyl (dicyclomine)

Yoga has helped me, meditation to calm my anxiety, and do not forget Metamucill to control my bowel.
look for a dietician specializing in torturous Colon, sure to help you, and have adequate exercises to place your colon.
I do not advise operation unless your situation is already very serious.
My son is a pharmacist and it is the advice he gives me, and I am 70% better than when I was diagnosed with this problem.
Good luck you deserve it.

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thank you, take care of yourself, Sorry I'm so down on this illness, but I only get a few good moments every now and then, usually sleeping.

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You do not have to excuse yourself, I understand, I'm sorry I can not help you more, because I know how you feel, I hope you get better, be patient and keep searching, somewhere you'll find something to relieve you, you'll see.
Take care.

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@bzb1000

I was diagnosed a week ago … and haven’t pooped since despite a LOT of laxatives snd prunes. Concerned. Yesterday doctorrecommended another laxative (which I took) and today she is in surgery. Hoping. But this is ridiculous.

Jump to this post

I have the same problem, a painful colonoscopy, I had to look at my diet by myself, without help from my doctor, I am with Low FODMAP DIET, I also drink Meta-Mucil -Natural fibers a spoon of tea dissolved in a good glass of water, followed by another glass of clear water, to regularize my colon,
It tastes like orange, and coffee, with dried plums. ( You have to be pacient. )
After two weeks I go every day in the morning, and my pop is normal, If you take laxatives the only thing they do is irritate your colon, and get used to this.
This works for me.
Good luck.
Cielo

Liked by sue225

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What is the difference between probiotics and prebiotics. One reference I have says to use prebiotics. Yes, it seems to be the case with lots of folks on this blog that gastro specialists are not much help with diet suggestions or advice. Cannot figure that out!

Liked by TERESA LOGAN

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Your gut microbiome is a vast community of trillions of bacteria and fungi that inhabit every nook and cranny of your gastrointestinal (GI) tract. The human colon is a real health organ. There are over a thousand separate bacteria living in your colon, believe it or not. The total number of bacteria can reach tens of billions, more than ten times the number of cells in the entire body! These microbes mostly live in your lower intestine (the colon) and outnumber all the other cells in your body put together.

These bacteria, when treated right, can do some amazing things for our health. They have a major influence on our metabolism, body weight, predisposition to illness, immune system, appetite and mood. They can provide numerous health benefits that range from strengthening our immune system to helping us with weight loss to sharpening our cognitive skills.

What are probiotics?
Healthy, probiotic foods
There are many very healthy probiotic foods you can eat which include numerous varieties of fermented soybeans, dairy and vegetables. If you can't or won't eat any of these foods, you can also take a probiotic supplement.

Probiotics help improve your health in a variety of ways:

Break down and digest food. Reduce bloating and constipation. Support overall gut health and improve digestion. Ensure the immune system works well
They play a role in how you think and feel. Gut bacteria can improve the production and regulation of hormones, such as insulin and leptin. Probiotics have also been found to produce neurotransmitters such as serotonin, dopamine, and GABA — which play a key role in your mood.
———–
What are prebiotics?

Prebiotics are present only in plants, mostly vegetables. They are the non-digestible part of foods like bananas, onions, garlic, Jerusalem artichoke, the skin of apples, chicory root, beans, and many others. Prebiotic fibre goes through the small intestine undigested (unchanged) and is fermented when it reaches the large colon.
Prebiotics are also available as supplements, one is called Oligofructose. This small molecule is acted on very quickly in bacteria on the right side of the colon. Inulin, on the other hand, is a larger molecule and is fermented more slowly on the left side of the colon.
Healthy, prebiotic foods
Prebiotic foods are high in special types of fibre that support digestive health.

I have torturous Colon, and I take a capsule a day of Align Probiotic Supplement, I break the capsule and I take the powder in a toast, after three weeks I feel very well, it has helped me in my bowel, with the inconfort that I had , less gas, less pain, and I can have an almost normal life, I've changed my way of eating, and it seems I'm doing much better.
I hope this helps you.
Take care.

Liked by koryn

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I tried Align and it gave me terrible stomach cramps…I later read that it contains milk ..does the capsule contain milk? If so what is meant by taking in a toast?
Thanks,
Patty

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