Liver transplant - Let's support each other

@rowdyramsey Prograf is tacrolimus but not a generic form. There are various generic forms of tacrolimus. Prograf is the name brand, the original, thus more expensive than the generic.

So,Tac.is considered as old as Prograf?

This is a great question, @rowdyramsey, and @gaylea is correct.
Tacrolimus is a generic version and cheaper. I used to be on Prograf (brand name) and was switched to the Tacrolimus when it (generic) became available. My labs and I did not experience any changes, although my costs were reduced!
I have been taking Tacrolimus for most of almost all of my 11 years with my transplant. And still do today.
I have a routine prograf lab kit that is tested at Mayo to monitor the level of prograf in my blood. It has to be within a target range that is individual for every patient and organ. On occation my dosage has been adjusted to keep me at the best level for me. Not too high, Not too low, but just right. 😊
What have your doctors said about the rash? Do they think there is a connection to the medication? Other than the rash, How are you getting along?

Thanks for that info.! Sounds just like me. Yes,the doctors have said the rashes were from the Tac. Since they dropped me to 4 mil.a day, the rashes have,for the most part,gone away. Now they are about the size of a silver dollar. I will take that anyday over what I went through before they dropped my dose. They use to get as wide and as big as my foot! I’m a size 10 wide!!

I have had ERCPS since 1990 which helped with that awful scratching. However, the Doctor told me yesterday that the ERCPs days are over as I’m not getting a year out of them anymore. I have a tumor in the bile area. . . Won’t know the results until next week.

I’m worried about getting a liver transplant.

Best wishes for a good outcome.

@jacinta I was worried about a liver transplant too. When I was told it was inevitable I reached out to this group. That was almost 3 years ago. I am now 1 1/2 years post transplant. Trust your doctors and always feel free to ask any questions to this group. Everyone is wonderful, full of tips and great advice. It is a scary process but we're here for you to lean on ❤🇨🇦

@jacinta, You sound like a strong and determined patient. I hope that you get results that will lead to a positive treatment for you.
Was the doctor's message a surprise? Did you know there was a tumor in the bile area?

I was surprised by the tumor. I should know the results next week. What’s hard on me is I don’t have any family in the U.S.

Thank You