Liver transplant - Let's support each other

Thank you for the response. It seems everyone is saying the same thing.

Thank you for your input. I hope you are doing well.

Wish you the best! I had no idea how many people were going through this.

Is there anything overall that is recommended for people with our issues to do differently than following the rec for immunocompromised individuals?

@racing212, I'll be thinking about you. Hope all goes well.

@tjgisewhite What else do they base who gets the next available liver besides MELD? Of course I know blood type and size, but are there other things? If so I was not aware of them but I found it surprising that I got my transplant at MELD 28 when they were generally transplanting at MELDS in the 30s in my region.

@racing212 Good luck with the testing. Please let us know how it goes.
JK

@contentandwell They also base it on how many people are on your list according to your blood type.

@tjgisewhite As I said, I do know of course that blood type is part of the screening of whom gets an available liver, but I thought from your post that there might be other criteria that transplant centers can be a bit subjective with. My MELD would probably have gone into the 30s within a few weeks of getting a liver, I had taken a serious turn for the worse. I always wonder if even though my MELD did not reflect that, they could make that decision. When my liver was dissected it was approaching being totally non-functional. Something that was said made me wonder if they did have some leeway there.
JK

There might be some other things they consider, but I’m not really hearing of anything definite. I have read about increased “pulmonary artery pressures” making a difference if you reach certain numbers. All I know is I have “pulmonary hypertension”. I don’t know any numbers. Also, apparently my liver is terrible like yours. They say my “liver density” is way off the charts even for people with severe cirrhosis and I know I bleed everywhere all the time. I’m sure everyone else does too.
I am happy to hear you did receive a liver and I pray you are doing great!

I am A+ and I think that’s pretty common. I wouldn’t think that would be a huge deterrent in my case. What is your experience with this?
Karen