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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)

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@rosemarya

Good Morning, and Congratulations on your successful liver transplant and recovery! My experience has been that it takes some time for our bodies to adjust to these new medications. And over time, your medical team will be able to establish a maintenance dosage that works for you. No two of us are the same, so our antirejection medications and dosages are individualized and monitored via routine labs.
My prednisone dosage was lowered to a maintenance level, so I did not have prednisone related side effects. My biggest bother was that my tacrolimus caused me to tremble, and at 10 years post transplant, I do occasionally experience the trembles. For example: currently, my tacrolimus lab level is within my target range, but a little highter than it has been, so I am experiencing trembling, again.

You are doing the right thing to discuss this with your surgeon. I try to encourage everyone to seek the advice of their medical team, and never to make any changes on their own.
You can read about medications on Transplant Medications 101: Q&A -
https://connect.mayoclinic.org/page/transplant/newsfeed-post/transplant-medications-101-qa/Transplants>Changes after Transplant

Here is a discussion where our members are talking about changes that they have experienced. I found it to be an eye-opening experience to learn about what patients actually experience. Please know that you can add your thoughts, ideas, questions.
https://connect.mayoclinic.org/discussion/changes-after-transplant/

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Replies to "Good Morning, and Congratulations on your successful liver transplant and recovery! My experience has been that..."

Thanks for your thoughts. I think the tough part is that we need to come to terms with side effects, they will never go away. As I grow stronger I will be adding yoga to my weekly activities. This was a great help to me with relaxation pre-transplant. Daily walks help as well. I am also eager to resume social activities. See more of friends, grandchildren, and my wife and fewer doctors!