Liver transplant - Let's support each other
What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?
Interested in more discussions like this? Go to the Transplants Support Group.
Just out of curiosity does anybody have any credible information out there regarding cellular memory transference? My wife and I were talking about that the other day. We are both Packer fans....she said as long as I don’t instantly become a Vikings fan it’s all good. 🙂
@rodney9999 You got me curious about this so I did some googling. Most of the traits and tastes that people think they may have acquired from their donor can be explained by other things. Simply going through what we have gone through can have an effect on a person. I am pretty much the same person I was before, perhaps a bit more sympathetic but that was always a trait of mine. If I had to come up with any change in me I think I enjoy moderately hot (spicy) foods more than I used to but I also think that as a person ages their taste buds are not as strong so that could be the reason for that.
JK
Hi Taylor
Please try not to be too scared. I, too, lived in a rural area with my husband and our animals; we had a busy hotel an , yes, liver disease, can creep up on you especially when you are so busy and distracted all the time. I was ill for four years without realising what was wrong until the physical symptoms became so bad that i sought help from my GP. After that, I was in the hands of my consultants and hospital who were wonderful.
I had my transplant five years ago and I feel as if I have a whole new life. I am on minimal medication and, honestly, some days I think it was all a dream. It was also a good learning experience is so many ways so it's not all negative by any means. I have a better life now and I value that life more than ever.
I know that I am in the unusual position of having no financial worries as health care here in Scotland is completely free. I am so sad when I hear the stories on this wonderful forum about people struggling to pay for care and medication.
Please be assured that members of this forum will give you all the help and advice you need. I wish I had known about it when I had my own transplant. There is a wonderful life waiting for you after your transplant.
Did you get your liver?
Id sure like to talk to you about cieders..is that possible
@craiger, I want to welcome you to Mayo Connect. I want to tag @luckonetj o this conversation because he is the patient who mentioned Cedar Sinai. I know that he can answer your questions about his experience.
Are you a liver patient? Are you considering an organ transplant?
@craiger , since I am a transplant recipient at CS. I would be happy to help with info.
Yes I am and I think I will need one very soon..I have NASH and wanted to ask a few quistians.
Thank you so much, I was wondering if you had any really bad right shoulder pain add and shoulder blade pain before you had your transplant and if you know anyone in this group that needed a transplant because of Nash
@craiger, the first step is is diagnosed liver disease. Next, a federal from your primary doctor to a liver transplant seorgon. Your medical insurance should have a list of heptologists that will be able to refer you for liver transplant evaluation. If you would like more information about a transplant evaluation I recommend calling Cedar Sinai Comprehensive liver transplant center in West Los Angeles. I assume you are in the LA area. Mayo Clinic seems to be a good choice as well as UCLA, and USC Transplant centers. I know of people that have had transplant at all the above centers. Above all you need to know what your MELD score is. I was inter hospital transferred to CS at MELD 40. I was very ill and I was given the first transplant intensive care bed that was available at the time. Dr.Nissin was my liver Surgeon. Dr. Sean Cao I was my liver specialist. Cedar Sinai and Fountain Valley in that order. Be well, Tim