1. < Osteoporosis & Bone Health

How did you manage the pain side effects of Prolia?

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

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lioness | @lioness | Mar 6, 2021

@contentandwell Read your post about Tymlos I hope it works for you .My next Reclast isn't scheduled till Sept but the other meds are helping I can tell

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parrotqueen | @parrotqueen | Mar 6, 2021
In reply to @sunnyflower "Hello dublin18 and @parrotqueen, I am Sunnyflower. I am also very sorry to hear about what..." + (show)
@sunnyflower

Hello dublin18 and @parrotqueen, I am Sunnyflower. I am also very sorry to hear about what you are going through dublin18. I too have taken the advice of parrotqueen but won't have another DEXA scan for about 1.5 years. I also have been taking Boron for quite some time now but only 3mg., twice daily w/ food. I've read you can safely have up to 20mg / day so I need to increase my dose. @parrotqueen, I would like to know why the two different types of magnesium? My Naturopathic doctor recommended I take Magnesium Glycinate which I have been forever. Could you please expound just a bit on why you also take the magnesium
L-threonate? Thanks so much! I've learned from you, others on the blog and my nutritionist, so much! One thing is that for vitamin D to do it's work helping us to absorb calcium, that it needs to have some fat w/ it. I didn't realize it but I wasn't eating any fat with that meal and very little in a day, not by intent, just didn't realize. So now I have 1/4 of an avacado w/ my yogurt, D and supplements. I've also added spinach to my diet as I wasn't eating any dark leafy greens. I have joined the Facebook group Osteoporosis Natural Remedies thanks to you parrotqueen. I am very grateful for all I've learned from you and others. Many blessings to both and all, Warmest wishes as well, Sunnyflower

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I take magnesium L-threonate for better brain function. It's just 144 mg a day. Then I take 400 mg of magnesium glycinate. Yes vitamin D3 needs a bit of fat - I eat an entire avocado every night and take my vitamin D3, K2 (mk4, mk7), calcium, boron, magnesium, and just a small bit of potassium at that time. I take 6 mg of boron at every meal and before bed. I've been doing a ton of research and there are MANY people who take 120 mg of boron daily. I am not going to go that high, but I am not so concerned with going over 20 mg a day now. Anything over 20 mg has the side effect of maximizing the absorption of any estrogen. Isn't that Facebook group interesting, Sunnyflower? Sadly, I left the group because they tried to saddle me with the administrator role - they said there were several of us and there wouldn't be much to do. hahahaha, I was the only one and OMG the amount of work that was involved was mind blowing. I need to figure a way to get back into the group. I tried getting someone else to do the moderating, but nobody would respond to my pleas for help - so I just left the group. I could see no other way out.

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parrotqueen | @parrotqueen | Mar 6, 2021
In reply to @migizii "@JK. I was on Tymlos twice for about 4 months at a time but would have..." + (show)
@migizii

@jk. I was on Tymlos twice for about 4 months at a time but would have to stop due to having increased pain in my legs. I had tried Forteo a number of years ago but that was unsuccessful due to getting migraines. I became very ill from my only Reclast injection. Thus far, IV Boniva worked for awhile and Prolia have been my only successful interventions.I don’t know what the future will hold once I can’t take Prolia any longer, but I am having better DEXA scores. Yes, I also had no success with only natural supports when first diagnosed. I hope you can proceed now with your journey.

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I'm curious as to what natural supports you were taking and for how long?

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JK | @contentandwell | Mar 6, 2021
In reply to @lioness "@contentandwell Read your post about Tymlos I hope it works for you .My next Reclast isn't..." + (show)
@lioness

@contentandwell Read your post about Tymlos I hope it works for you .My next Reclast isn't scheduled till Sept but the other meds are helping I can tell

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@lioness You have had no bad side-effects from Reclast. People need to remember that the serious side-effects are actually quite rare but of course people who have them are the most apt to participate in forums such as this. I know a number of people on Reclast who are very happy with it and I know that after 18-24 months on Tymlos I will need to go on a maintenance drug and Reclast has been mentioned.
JK

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lioness | @lioness | Mar 6, 2021
In reply to @contentandwell "@lioness You have had no bad side-effects from Reclast. People need to remember that the serious..." + (show)
@contentandwell

@lioness You have had no bad side-effects from Reclast. People need to remember that the serious side-effects are actually quite rare but of course people who have them are the most apt to participate in forums such as this. I know a number of people on Reclast who are very happy with it and I know that after 18-24 months on Tymlos I will need to go on a maintenance drug and Reclast has been mentioned.
JK

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@contentandwell No I haven't had any side effects from the Reclast at all . But with covid put on weight ,not from Reclast 😂

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 7, 2021
In reply to @contentandwell "@hopeful33250 I did my first shot on Thursday under the guidance of a "Clinical Educator" from..." + (show)
@contentandwell

@hopeful33250 I did my first shot on Thursday under the guidance of a "Clinical Educator" from Tymlos, on Facetime. That went well, my heart rate did not go up, or if it did it was only by a few beats. I tend to have a low heart rate anyway - resting heart rate is about 53 usually. I had a very slight amount of light-headedness for a brief amount of time. I did my second shot last night. I had the same, but I also did have some slight nausea, nothing bad enough for me to be concerned.

I have heard from others that taking it at night is good because then you can go to sleep if you have side-effects, but to do it a bit before you are ready to go to bed because if you have a rapid heartbeat it may interfere with falling asleep. I went to bed about a half hour after taking it and all was well. Hopefully it will continue that way but some people don't get bad side-effects for a number of months.

I am very hopeful. If I do have side-effects I can easily discontinue it, but I hope that does not happen. It's just so darned expensive. I am on Medicare so I used their website to find the drug plan that would be best for the drugs I am taking. That led to a change in drug plans, saving me about $800 a year! The new drug plan does have a hefty deductible though so the first month cost me $900. It will be about $500 next month I think and stay there until I hit the donut hole at which point it will go up, and then down quite a bit when I come out of the other side of the donut hole. I went through this xifaxan when I was pre-transplant too so I am familiar with the coverage.
JK

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@contentandwell,
When will you have your next Dexa scan to see if the new med is working?

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JK | @contentandwell | Mar 7, 2021
In reply to @hopeful33250 "@contentandwell, When will you have your next Dexa scan to see if the new med is..." + (show)
@hopeful33250

@contentandwell,
When will you have your next Dexa scan to see if the new med is working?

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@hopeful33250 They generally do a DEXA after you have been on Tymlos for a year. I had my last DEXA in the beginning of December. I thought I would start with Tymlos in January but things got bogged down with Medicare approval of it, and then getting it delivered from a CVS Speciality Pharmacy.

So far, so good. Last night just very mild light-headedness, but not bad.

When I was on diclofenac gel for my bursitis that was causing extreme dizziness in the morning. I had no idea what the problem was and then I researched diclofenac (same as Voltaren, diclofenac is the prescription name of it) for something else and discovered that dizziness is a rare side-effect. I stopped using the gel and no more dizziness! Too bad because it was helping with the bursitis pain. It never occurred to me that a gel I was applying to my hips could cause dizziness but those gels do get absorbed into your system.
JK

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lioness | @lioness | Mar 7, 2021

@contentandwell AFriend told me about IcyHot Advanced a mutual friend uses it so I tried it and it gives me relieve more so then other rubs but it has to be advance kind I get it through Amazon

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JK | @contentandwell | Mar 7, 2021
In reply to @lioness "@contentandwell AFriend told me about IcyHot Advanced a mutual friend uses it so I tried it..." + (show)
@lioness

@contentandwell AFriend told me about IcyHot Advanced a mutual friend uses it so I tried it and it gives me relieve more so then other rubs but it has to be advance kind I get it through Amazon

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Thanks, @lioness.
Unfortunately I led this discussion off-track, but I appreciate your suggestion.

I am doing a lot of exercise videos and the cardio ones often contain a lot of walking/jogging in place. I don’t know if that has helped my bursitis but something has. It only bothers me at night now when I try to sleep on a side.
JK

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migizii | @migizii | Mar 7, 2021
In reply to @parrotqueen "I'm curious as to what natural supports you were taking and for how long?" + (show)
@parrotqueen

I'm curious as to what natural supports you were taking and for how long?

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@parrotqueen. I never took the amount of supplements you do. However, I was very physically active at the time; eat gluten free; and supplemented with vitamins d, c, calcium, daily vit, omegas, magnesium, and biotin. The bottom dropped out on my dexa scores by the next year. I was 48.

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