How did you manage the pain side effects of Prolia?

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

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@parrotqueen

I am so sorry. There is a support group on Facebook called Osteoporosis Natural Remedies that may have answers for you. The reason I did not take Prolia is that the drug supposedly works for six months - I hope your side effects do not last that long. If I come across anything to help you in my research, I will come back here and let you know right away. Have you tried things like a muscle relaxer, perhaps vitamin D3 and magnesium? Also, I don't know if it would be effective, but you could try activated charcoal (I always take activated charcoal if I have taken something that causes unwanted side effects). Maybe contact the drug manufacturer and doctor and ask for an antidote.

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I have been taking a very strong antibiotic and am better. No one would believe that a few shots would cause this. I have a new oncologist because the Dr that gave this to me made a big mistake. She said I had to take Prolia with the cancer medicine as preventive. I have strong bones and didn’t even need Prolia! That’s the part that is hard to get over and the worry about what she may be doing to other people. Keep posting ideas! Thanks!

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@kay71

I have been taking a very strong antibiotic and am better. No one would believe that a few shots would cause this. I have a new oncologist because the Dr that gave this to me made a big mistake. She said I had to take Prolia with the cancer medicine as preventive. I have strong bones and didn’t even need Prolia! That’s the part that is hard to get over and the worry about what she may be doing to other people. Keep posting ideas! Thanks!

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Are you taking a probiotic? I strongly urge you to take a probiotic, limit your sugar intake (that includes bread and fruit), and take herbal antifungals or eat anti fungal food (garlic, ginger, apple cider vinegar, coconut oil, oregano, etc.) for a period of 90 days. Antibiotics and chemo drugs can kill the good bacteria in your gut, allowing then Candida (which is a fungus) that lives in all of us to take over your gut. Once candida takes over your gut - you are in for real trouble. At least check out a book called The Candida Cure by Ann Boroch. That is what happened to me and I got VERY sick over time. If you do the diet for 90 days, you can restore your gut health. Hypocrites said "All disease begins in the gut," and I think he was correct. I got so sick, I thought I was going to die. The good news is that you can get your gut health back. If you want to do this and you need support, I can hook you up and I will help you as much or as little as you need.

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@parrotqueen

Are you taking a probiotic? I strongly urge you to take a probiotic, limit your sugar intake (that includes bread and fruit), and take herbal antifungals or eat anti fungal food (garlic, ginger, apple cider vinegar, coconut oil, oregano, etc.) for a period of 90 days. Antibiotics and chemo drugs can kill the good bacteria in your gut, allowing then Candida (which is a fungus) that lives in all of us to take over your gut. Once candida takes over your gut - you are in for real trouble. At least check out a book called The Candida Cure by Ann Boroch. That is what happened to me and I got VERY sick over time. If you do the diet for 90 days, you can restore your gut health. Hypocrites said "All disease begins in the gut," and I think he was correct. I got so sick, I thought I was going to die. The good news is that you can get your gut health back. If you want to do this and you need support, I can hook you up and I will help you as much or as little as you need.

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@kay71

The pain has been over the top and no one could figure out what was wrong for months. They just couldn’t believe it was Prolia. They finally sent me to a infectious disease doctor that had dealt with this before. I have been taking 875mg x 2 times a day of Augmentin for 4 weeks and finally better. I have good bone density which makes me question. It was given for prevention by oncologist because of a cancer medicine. I’m starting over with new doctor and never taking this drug again. Many bad side effects!

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Did you have bone cancer? I see that Prolia is sometimes prescribed for people with bone cancer. If you DO have bone cancer, please look into treatments that use turmeric. I used to get my IVIG treatments with a woman who had Stage 4 bone cancer - and she told me she owes her life to turmeric. I'm pretty sure MD Anderson uses turmeric as a treatment for bone cancer. I live in the Berkeley, CA area - and that's where she got her treatment. Maybe Mayo has a turmeric treatment for bone cancer. I wish I knew more about it so I could tell you. I have taken turmeric for an autoimmune skin disease that was killing me - turmeric stopped it cold. I get my turmeric from Starwest-Botanicals.com; I like their turmeric best because it is organic, fresh and potent. But I'm sure you will need an oncologist to tell you what to do. it's worth looking into. BTW, she got her cancer to stop - there is HOPE and you must never lose sight of it!

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Okay I'm getting a lot of suggestions from other women who took Prolia and had side effects. They are saying take turmeric, Low Dose Naltrexone (LDN), black seed oil, CBD (from cannaibis), magnesium glycerinate and piles of food high in vitamin C, one woman wrote this: "I've told my story several times here but it's still relevant. Basically Prolia rebound cost me my spine, my mobility, and most of what was left of my health." Many of the women said you should take a comprehensive multivitamin and some said calcium also until this is out of your system. There is a Prolia Side Effects support group on Facebook and there are a lot of women in that support group who are having a very difficult time - but you might find some help from someone in that group. I am in the Osteoporosis Natural Remedies group. I may join the Prolia support group so I know more about this.

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@parrotqueen

Did you have bone cancer? I see that Prolia is sometimes prescribed for people with bone cancer. If you DO have bone cancer, please look into treatments that use turmeric. I used to get my IVIG treatments with a woman who had Stage 4 bone cancer - and she told me she owes her life to turmeric. I'm pretty sure MD Anderson uses turmeric as a treatment for bone cancer. I live in the Berkeley, CA area - and that's where she got her treatment. Maybe Mayo has a turmeric treatment for bone cancer. I wish I knew more about it so I could tell you. I have taken turmeric for an autoimmune skin disease that was killing me - turmeric stopped it cold. I get my turmeric from Starwest-Botanicals.com; I like their turmeric best because it is organic, fresh and potent. But I'm sure you will need an oncologist to tell you what to do. it's worth looking into. BTW, she got her cancer to stop - there is HOPE and you must never lose sight of it!

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No, I was told I had to take it because I was taking Letrozole which is given because I had an estrogen fueled breast cancer. She never checked my bone density. I thought I had to take it. My breast cancer was cured and this was only for prevention. I had 7 shots when this horrible jaw disease began. It took 6 months to get it out of my system, much antibiotics, surgery, root canal. I just want people to know you can get this jaw bone issue very easily! Don’t take Prolia! Bad mistake for me.

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@parrotqueen this article and what you and @kay71 say is really very alarming. Why is this drug still on the market? I guess I really need to do a lot more research before my endocrinologist appointment for osteoporosis.
JK

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Hello @parrotqueen and other members discussing the side effects and concerns with Prolia. It is important to consider each person tolerates medicines differently and what may work for one can cause known or unknown side-effects in another. Decisions with medications are best made with a provider or pharmacist, especially if one is experiencing side-effects. Here are a few additional resources to consider as well as you consider Prolia or alternative treatments:

- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4480604/
- https://www.mayoclinic.org/drugs-supplements/denosumab-subcutaneous-route/side-effects/drg-20074315

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@JustinMcClanahan

Hello @parrotqueen and other members discussing the side effects and concerns with Prolia. It is important to consider each person tolerates medicines differently and what may work for one can cause known or unknown side-effects in another. Decisions with medications are best made with a provider or pharmacist, especially if one is experiencing side-effects. Here are a few additional resources to consider as well as you consider Prolia or alternative treatments:

- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4480604/
- https://www.mayoclinic.org/drugs-supplements/denosumab-subcutaneous-route/side-effects/drg-20074315

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Thankyou so much for providing these two links to reliable ,trustworthy, unbiased evidence-based websites.

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@contentandwell

@parrotqueen this article and what you and @kay71 say is really very alarming. Why is this drug still on the market? I guess I really need to do a lot more research before my endocrinologist appointment for osteoporosis.
JK

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@contentandwell Yes do a lot of research of all the osteoporosis drugs JK I for one never take the newer drugs I use the tried and true one that have been out for 15 yrs or more . But everyone is different you have to know your body and how you respond to medicines for me I know I am sensitive to the dosages on meds also. I cant tolerate the regular dose that is recommended I let the Dr know I cant take the reg. dose but this is just me . Others can tolerate reg. dose that is prescribed .

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