Forteo vs. Tymlos: Which did you choose?

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

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thanks everyone! Seems like the racing heart is indeed pretty common. I'm taking it at bedtime too. I guess it is something that I just need to accept.

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After reading the posts on this site, I was made the decision to try Forteo. So far, I’ve been on the medication for just over a month. I was able to begin the injections without nurse instruction ... the directions are clear, though it did feel strange to give myself a shot the first couple of times. Now, it doesn’t bother me at all, and it really doesn’t hurt at all. I’ve experienced (so far) no noticeable side effects, but did decide to do the injections at bedtime (based on the good advice in this thread). If there is anyone who has been on Forteo for the two year regime, I’d be very interested to hear what results you experienced and what you followed the Forteo with to maintain your gains.

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I had very good results with Forteo, which was years ago. Never needed Tymlos because it wasn't necessary. You actually get used to giving yourself a shot-- I used my belly area. For me, Forteo was effective and easy to use.

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@peggy1944

I had very good results with Forteo, which was years ago. Never needed Tymlos because it wasn't necessary. You actually get used to giving yourself a shot-- I used my belly area. For me, Forteo was effective and easy to use.

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Thank you for your input! Can you share what kind of results you experienced? How much did your bone density improve? And what did you follow up with after the Forteo?

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I am in my 5th month of Tymlos, don't know yet what it is doing for my bones. Injections into the abdomen usually are no big deal, every once in a while quite painful. Anyone have ideas about the variation? Overall few noticeable side effects except for some fatigue.

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@leacy

I’m 59, with osteoporosis, primarily in my spine, 3.4 t-score in spots. I’ll begin a daily injectable soon, it’s called Tymlos. If I understand correctly, it’s the newest version of daily injectable. Does anyone have any experience with this med? The results for other daily injectables sound good. Side effects?

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I’ve been on Tymolos for 4 months. Nothing to report yet other than it’s easy. No side effects for me. I pay 4$ copay for 1 month. It comes to my house.

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I have been on Tymlos for about the same amount of time. It has suppressed my appetite and my hair is falling out. Also -- I'm paying $600/month co-pay. May I ask how you are able to get it so cheaply?

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@jmanj

Thank you for your input! Can you share what kind of results you experienced? How much did your bone density improve? And what did you follow up with after the Forteo?

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Please excuse my delay on answering, jmanj, I just had cataract surgery. Forteo really improved my bone density almost 20 percent. Was going to use it another year but lost my good drug insurance. I started taking and eating lots of calcium, multivitamins for women, fresh fruit, etc. And miles of walking. Osteoporosis runs in my family, nobody but me bothered to get treated. Reclast did very little for my bones only 3--5 percent. Unfortunately I now developed congestive heart failure/long QT syndrome and my cardiologist said no to anymore bone density drugs for now. I just try to keep the faith, keep up the supplements and take my mind off myself with pleasant activities. Good luck and best wishes, jumanj! Your bones will really be OK. Peggy

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@laurapearl

thanks everyone! Seems like the racing heart is indeed pretty common. I'm taking it at bedtime too. I guess it is something that I just need to accept.

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I think the benefits of stronger bones outweighs the risks of a temporary racing heart. Good luck to you all with this side effect! Peggy

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@peggy1944

I think the benefits of stronger bones outweighs the risks of a temporary racing heart. Good luck to you all with this side effect! Peggy

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Yes, I'm with you -- as long as it's medically insignificant, I can definitely accept the racing heart! I have written to my doctor about this to see what she thinks -- because I wonder, does a nightly drug-induced spell of palpitations have any negative effect on our hearts (for those of us who have this side effect)? Or is it just a passing thing that really does no harm? Have any of you asked this question to your doctors? I will let you know what mine says -- she is consulting some of her colleagues.

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