Pudendal Nerve Entrapment/Neuropathy/Damage

Posted by mandiPNE @mandee, Oct 5, 2018

Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I'm very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want - for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Lisa Lucier, Moderator | @lisalucier | Mar 17, 2020

Hi all, as social interaction is limited with the COVID-19 virus and many members have concerns they'd like to discuss, Mayo Clinic Connect has opened up a brand new group dedicated to COVID-19, https://connect.mayoclinic.org/group/covid-19/. The hope is to help members connect and cope during these unprecedented times.

Please follow the COVID-19 group by clicking on +Follow, look at the discussions there and participate. You are also welcome to start a new discussion on any COVID-19-related topic you'd like to discuss.

vklittle61 | @vklittle61 | Mar 17, 2020

In reply to @rstollery "What kind of pain patch are you using that works so good? ________________________________" + (show)

Yes Please tell us about the patch that you’re using

palmorejs | @palmorejs | Mar 21, 2020

In reply to @cake "Are you able to sit down without pain with this pain pump?" + (show)

I can sit down and whether or not I have pain depends on what kind of day pain wise I am having. Mostly I can sit down anytime. I will tell you that sitting is an irritant and sitting for long periods of time really ramps up the pain for me. Also depends on what kind of seat you are sitting on. Long term sitting in a hard chair is terrible. Sitting around my house in comfortable a chair is no problem. I hardly notice the pain. I can always sit. I have just learned which type of seats to avoid if possible.

lorid | @lorid | Mar 22, 2020

What is it exactly?

cake | @cake | Mar 26, 2020

In reply to @skiak22 "Hi all. I'm a new member and I have read all the posts concerning the pelvic..." + (show)

Hi skiak22, yes I am 9 months into this PN pain and now I must take a pain med when laying down to sleep. What state do you live in? I'm in WI.

Donald | @donfeld | Mar 26, 2020

In reply to @cake "Hi skiak22, yes I am 9 months into this PN pain and now I must take..." + (show)

Most of my pain is mostly at night when I'm trying to sleep and I get two to three hours and I have to wake up and walk around Fortec medical marijuana. It really helps a lot that's what makes me fall back to sleep again for another 3 hours.

cake | @cake | Mar 26, 2020

In reply to @donfeld "Most of my pain is mostly at night when I'm trying to sleep and I get..." + (show)

Thanks, donfeld. I've been seeing that mentioned quite a bit lately.

Donald | @donfeld | Mar 26, 2020

In reply to @cake "Thanks, donfeld. I've been seeing that mentioned quite a bit lately." + (show)

If you are in states that it's completely legal for recreation you get better quality marijuana and I know that a lot of people do CBD, but I believe the THC is a very important ingredients. What does everybody think?

Rachel, Volunteer Mentor | @rwinney | Mar 26, 2020

In reply to @donfeld "Most of my pain is mostly at night when I'm trying to sleep and I get..." + (show)

I concur. Medical marijuana use in the evening helps me greatly with pain and insomnia. My opiod pain reliever wakes me so is counter productive at bed time.

Rachel, Volunteer Mentor | @rwinney | Mar 26, 2020

In reply to @donfeld "If you are in states that it's completely legal for recreation you get better quality marijuana..." + (show)

I think you are correct. It's legal in my state of NY and I'm legally certified to purchase through a dispensery. I feel its safer, better quality and guided use. CBD is for calmness/relaxation. THC is for pain.