Pudendal Nerve Entrapment/Neuropathy/Damage

From what I have read, the subject of pain is glossed over when a lot of these doctors went to school. Central Sensitization Syndrome is something they never heard or read about. It seems only the very brightest who have gone on to advanced studies have some knowledge of this subject. Strange and frustrating that these people stop educating themselves after they start practicing. The lack of time is the excuse I get mostly. It is a real problem for them in the sense that medical facilities and insurance companies want that practice of pushing as many patients as possible in a day through their doors. 15 minutes a person is a stupid idea and extremely harmful. You can’t make a diagnosis of any real value. If you have something like I have, it is deadly. The constant need to prescribe a med is also bad. Most of that crap is on the pharmaceutical companies need for money. All that said, doctors are still responsible for what they do. In the case of prescribing me Fentynal, they relied on the advice of a pharmaceutical rep as to how great this crap was. Those people are sales people with little to no education in medicine. Doctors are suppose to read about the medications they use on their patients. I wouldn’t have used that on a chronic pain patient. The original intent for that med was after major surgery and for terminally ill cancer patients. As for after surgery, the use was for no longer than 5 days. A large part of the blame is on the AMA and the FDA for approving the use. To me this whole thing is about greed!

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@goldleaf I'm going to jump in here and say you are totally right the Dr.s only know what they are taught in school and they aren't up to date on the knew diseases and how to help but I have had fibromyalgia since the 90,s then they didn't know what caused it and today they still don't WHY? I'm a retired nurse and have seen so much that I began studying herbal homeopathic meds and have a D.O for a Dr. who is in agreement with holistic meds for this and other things I have . If you can look into functional medicine , Integrative or holistic medicine . Heck the AMA doesn't even teach nutrition to the Dr.s .

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From what I have read, the subject of pain is glossed over when a lot of these doctors went to school. Central Sensitization Syndrome is something they never heard or read about. It seems only the very brightest who have gone on to advanced studies have some knowledge of this subject. Strange and frustrating that these people stop educating themselves after they start practicing. The lack of time is the excuse I get mostly. It is a real problem for them in the sense that medical facilities and insurance companies want that practice of pushing as many patients as possible in a day through their doors. 15 minutes a person is a stupid idea and extremely harmful. You can’t make a diagnosis of any real value. If you have something like I have, it is deadly. The constant need to prescribe a med is also bad. Most of that crap is on the pharmaceutical companies need for money. All that said, doctors are still responsible for what they do. In the case of prescribing me Fentynal, they relied on the advice of a pharmaceutical rep as to how great this crap was. Those people are sales people with little to no education in medicine. Doctors are suppose to read about the medications they use on their patients. I wouldn’t have used that on a chronic pain patient. The original intent for that med was after major surgery and for terminally ill cancer patients. As for after surgery, the use was for no longer than 5 days. A large part of the blame is on the AMA and the FDA for approving the use. To me this whole thing is about greed!

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II had pelvic vein embolization on November 30,2018 as my pelvic veins were causing leg vein issues, swelling and pain. I never had pelvic pain. I woke up the day after the surgery with numbness and tingling in my buttocks and vulva area. The surgeon said it would pass. I had to wear compression shorts for 30days and was in agony. My insides were pressing against my outsides, which were being compressed by the compression shorts.
Ifinally demanded to be seen by the surgeon 37 days after surgery and 1 week after being out of compression shorts. Doing my own research I said I thought I had pudendal neuropathy – I am textbook case for all of the symptoms of pain, tingling, burning and numbness and pressure. I feel lucky not to have any incontinence issues. My surgeon said since it is inconsistent it is not damaged and will improve, that I just need to be patient.

Meanwhile I am trying to go to work, care for my family and have a normal life. Some days are better than others. Today is a bad day, and it isn’t an illness you really want to publicize as it is such a private area of the body. Additionally I have suffered from fibromyalgia for,the last 10years. I don’t take any prescriptions, and try to be sugar and gluten free to reduce inflammation. I am not comfortable that the surgeon knows anything about this condition.

Does anyone have any advice for me? I live in Cincinnati. I don’t know what type of doctor to see- the surgeon has never in 20years had this happen. I would love to know what type of doctors other are seeking for help, and what is helping. I would be very reluctant to have another surgery since I am significantly worse off than when I had the first procedure.

Thank you

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No one can understand the pain.... I've had years of worsening pain... As well as being diagnosed with an autoimmune disease.... I don't hold back talking about it to be honest... But because of the personal nature a lot of people don't care to listen!! I feel your pain and I can sympathize....

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FYI.... Did y'all know that pudendal is Latin for shame! Just thought I'd share that snippet... Dang!!!

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I am glad that you jumped in. I am also retired. I use to work for a telephone company and worked outside for my 25 years there. I did graduate from college and have a limited amount of knowledge about the human body. I was a physical Ed. Major. I never wanted to be a doctor even though I had relatives who were doctors. It has been my personal experience dealing with my medical problems and having to go back to school, so to speak, that has lead me to this information. Since you are someone with more first hand experience, you have confirmed my opinions. The reading of articles is also helpful. This is also my opinion, my vet for my dog gets better medical treatment than I do. One of the things I have found is that Eastern medical practices are more in- tune with the idea of how to treat patients. I am not saying Western medical practices are bad they are not, but they leave a lot to be desired. Too much of the factory production line idea and that’s bad. As I explained before I can no longer use even natural healing products. This part is what has frustrated and amazed my current doctors. I am too hypersensitive.

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