Pudendal Nerve Entrapment/Neuropathy/Damage

Thank you Ginger!

@trishj46 Hello, I had some discomfort and some sitting pain in that area. It was in the whole glute region, too, as well. I am convinced for me tight muscles / myofascia were causing nerve compression (not quite "nerve entrapment" but close). I found the enzymes nattokinase (Drs. Best, 2000 U), serrapeptidase (Biomedix Lab) and lumbrokinase (Drs. Best) - all available on Amazon helped me a lot. It took a while (several months). You take those on an empty stomach between meals. They may help digest scar tissue / adhesions / relieve some tension and relieve nerve irritation. That is definitely "alternative medicine". However, barring it causes you stomach/digestive issues the only other side effect of those generally reported is to avoid if you have a blood disorder or are on blood thinners already and perhaps discontinue if you get an infection. Otherwise, these enzymes have been used by many for years.

For me, stretching and exercising along with the above enzymes helped my tension go away along with other supplements (resveratrol, quercetin, higher vitamin C with several meals up to the maximum limit (<2000 mg/day)). While speculative, these supplements may work in aiding proper tissue remodeling and lessen the nerve pain somewhat if it is caused by tight muscles. For exercise, I also use a vibrating platform as well as lift weights, do pilates exercises and TRX suspension exercises. Also, have you seen a pelvic floor physical therapist? Tried to relieve internal trigger points (like described in the book "a headache in the pelvis" by Anderson and Wise)? Tried Kegels while sitting? Trigger points can often cause this type of pain internally. That could be the source of the pain. Obviously, work with your physical therapists and follow their recommendations, too, and do things you can tolerate. Some exercises may not be agreeable to you. Those are some options if you are able to do those. Good luck.

Lots of good suggestions for me to consider....Thanks!
...

Thank you Richman for all your information. I don't think my stomsch would tolerate thosesupplements or exercise. Thats why I have such a hard time staying on other meds because I seem sensitive to everything! Exercise sets off the pn nerve with me, even walking. I did try physical therapy, but same problem,. Do you have PN or not sure?? Your doing a lot of work to help youtself, and I admire that, its not easy! After 8 years I have done so much, and
feel like I have accomplished nothing! I hope you have good results! Thanks for thinking of me!
I will keep you in my prayers and let me know how you are getting along! Good Luck to you too.

I had rectal repair surgery in 2006 which left me in agonizing pain. The surgery also caused peripheral nerve damage in both my feet. I didn’t find a good neurologist until 2017. He usages injections of a steroid and so far they work for me. The injections usually last for about 7 months at a time with little to no pain. I maybe somewhat different in that I was diagnosed with Central Sensitization Syndrome and have become chemical sensitive. This Dr. name is Zhao and you can find him in San Gabriel California. He owns the California Headache and Pain Center.

No one can understand the pain.... I've had years of worsening pain... As well as being diagnosed with an autoimmune disease.... I don't hold back talking about it to be honest... But because of the personal nature a lot of people don't care to listen!! I feel your pain and I can sympathize....

The feeling of pain is personal. I have spent way too many years experiencing and talking about mine to too many people. Some were sympathetic some as you said don’t care to listen. I have never looked for sympathy from anyone. The people who caused my pain never care about how they hurt me. As for the people who felt bad for me, they were my friends and family. I still feel bad for people who I hear and see in some of painful situation. The main reason for this is I can’t stop it. I know no one can stop mine. What I find ironic is that I have had a lifetime of painful situations caused by people in my life. The ironic part is that I went for help for a medical problem and was told by them that they would fix that medical problem and I wouldn’t have any more pain. What happened is just the opposite. Now I am in constant pain with no cure for the damage they did. To make a mole hill into a mountain it caused hypersensitivity in the syndrome of Central Sensitization. I am not a doctor but the truth be told, neither were these people, and there have been a lot of them. “ Doctors due no harm”, is suppose to be something that doctors were supposed to pledge themselves to. They failed with me. I know that Central Sensitization Syndrome has a genetic origin and I would qualify for that as I was probably born with hypothyroidism. This is what made a more sensitive, physically and mentally. I was very healthy and active most of my life, so no one knew I had this medical problem. I was never tested by a doctor until I was 45. Men don’t usually have a thyroid problem seems to be the way doctors think. When I finally found doctors who were interested in helping me and they took the time to listen to my history, they saw that I had symptoms that should have razed red flags. What I do find disturbing is that so many doctors don’t no anything about Central Sensitization Syndrome. They also know very little about Thyroid disease. On top of that they know very little about pain.

@goldleaf check out Dr. Jonathan Kuttner’s book “life after pain”. He talks about pain sensitization and what can be done. He has a further program and many videos, too. Also, some supplements may help a lot. I’ve posted a lot of comments in the pudendal nerve thread and the “pain in the Butt” thread with specifics about exercise and supplements. Perhaps give the supplements like quercetin, resveratrol, higher vitamin c, enzymes like nattokinase, serrapeptidase, lumbrokinase a try. It might help.

Thank you for this reply and these thoughtful ideas. This is my reality now. I have become way to unnatural. I have developed chemical sensitivity and Central Sensitization Syndrome has affected all my senses. When dealing with my nerve damage, I was prescribed Fentynal. I was put on the patch. This was the only pain killer I was ever prescribed. I was never told what Fentynal was and was to blinded by the excruciating pain I was in to ask. Dumb I know! If I had known I would never have used it. I was never an addict but I have known people who were. Some were friends of mine. They all died. I started in 2011 and didn’t stop until 2017. I only used 25 mg. I was constantly encouraged by doctors to use a higher dosage but I was already chemically sensitive and I didn’t know it. In November of 2016 I had a pancreatitis attack and nearly died. I never had a problem with my pancreas before. As usual, the doctors there couldn’t find anything wrong with my pancreas and sent me home with this dumb reason, some times this happens and now your OK. I wasn’t. I started starving to death. No matter how much I ate I kept loosing weight. I saw too many doctors and they did the same useless tests over and over. I lost 40 lbs and I normally weighed around 188. The other problem was they thought I was starving myself. Before I finally was referred to a very good gastroenterologist, I decided to look into this myself as I couldn’t trust these people anymore. It took me about an half an hour on the computer to find my medical problem. I was only using two medications at that time. Thyroid med an Fentynal. Thyroid med would not affect me this way but when I looked into that crap Fentynal that could. Where were my doctors brains? This new gastroenterologist agreed with me. I also started seeing a new pain specialist who told me more about Fentynal. He doesn’t use any opiates in his practice. You might guess by now I no longer trusted doctors and I wanted off Fentynal. I detoxed at home with some help from these new doctors. This is when chemical sensitivity hit me. I was prescribed two drugs to help me. I tried using just one pill and it screwed me up real bad. So I had to detox with no help at all. Within 4 days of detox, my pancreas started working. I stopped loosing weight. The gastroenterologist put me on what is called a map diet. There is a high side and a low side, and both sides are all natural foods. I can’t eat anything from that high side without causing me to have an allergic reaction. I can eat everything on the low side without a problem. I can no longer drink herbal teas or herbs or spices. I can no longer use any pharmaceutical drugs not even an aspirin. That leaves me with very little options for pain relief. I get injections. Because I have chemical sensitivity, the injections last me a longer time than in most people. My senses can be a a real pain. If I am the least bit stressed, which I am all the time, well I don’t think I need to explain that. My doctors are at the point of understanding that there is very little they can do for me now. There are no answers or treatments that really help. I am constantly trying to keep updated with anything that some researcher might come up with but I am a realist. I am 71. I don’t have the finances or the ability to go more than twenty miles in one direction. I can’t get on a plane. One of the weird things is, most people who see me would never guess I have any of this. I walk twice a day with my dog for about an hour. I have peripheral nerve damage in both my feet. I exercise 7 days a week. I eat good natural foods and have gained back my weight an muscle. Then there is my reality. I am in constant pain all the time. The injection wares off about, like right now. About 7 months for the surgical area and without a warning, the pain hits all at once. My wife is use to this and all she can do is watch me scream in agony. I have learned to use hot and cold compresses to relieve some of that. Here is another reality for me. I can’t go to a emergency room for help. They can’t help me.

It sounds like you're living in hell... I am so sorry for you. I understand totally your pain... Sometimes I just lay in bed and cry. Narcotics help me for break through pain but no one wants to prescribe them... I find that so unacceptable when we are suffering so much!!! I go home to the UK every year and the journey is a nightmare... This forum is helping me just in the fact that people understand... I never even heard of this until this year. My doctor misdiagnosed me with an STD!!! So for 5 years I went on with my life feeling dirty as well as in agony. I actually told my doctor what my diagnosis was!!! Amazing that I pay $150 for a 10 minute appointment and I'm the one who had to research my pain....
What do you take for pain?